Having a pretty rough night/day. I am usually able to push through the day whether I slept during the night or kept awake by the pain. Opioids seem to work short term but they don't seem to help over the long haul. So I'm not on any at this time, though right now I kinda wish I had something for breakthrough pain. I'm taking Nucynta which seems to take the edge off and at times with physical activity take away most of the pain. However when it's this bad it doesn't seem to help. I can write down how I'm feeling but it's pretty difficult to carry on a conversation (yeah, pain is that bad. A true 8/9 out of 10). I'm not complaining, as I've accepted these circumstances. I'm thankful for the good days and am always happy on the outside. Just sometimes this gets to me but I don't let anyone (family and peers) know what's going on. Doesn't seem like they understand and my parents think I'm abusing meds even when I'm not on any opioids. Somehow they think chronic pain and opoid epidemic go hand in hand... ugh. Usually I can ice of heat my leg but nothing is helping. I'm open to suggestions. I've tried walking, heat, cold, wearing long socks and long PJs, massage, positive-thinking, deep breathing, and calming meditation. A lot of that helps with the anxiety which comes hand in hand with severe pain.
What works for you when you're having a really bad pain flare-up?
I have been diagnosed with RSD/CRPS (phase 3). Been living with this since 2006 but it's spread from a small spot on the ankle to the entire limb and part of the other. Back pain is due to three spinal surgeries to implant spinal cord stimulator. First two didn't work due to lead migration and paddle placement and painful stimulation. Currently a beta tester for new Boston scientific spinal cord stimulator.