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Flare ups suck

May 16, 2016 6:14 PM

My knees and joints are killing me and my entire body feels achey and bruised. It hurts to breathe because of the tumors. I'm so sick of this. I find out on the 25th of its grown or not.

May 16, 2016 7:49 PM

Frailfairy, yes, flare ups really DO suck!!! They suck big, giant, sweaty, hairy ASS!!! (Descriptive enough for you?!! I am hoping and praying to God that when you go for your results, they say that the tumor hasn't grown. In the meanwhile I'll pray that your flare calms itself down. The weather is keeping my flare going full speed ahead and causing my anxiety levels to soar. My older Sister has to have her surgery Thursday to remove a cancerous tumor from her andomen, Friday, my Cousin's Mom is having more and more tests to remove the mass in her lung and then chemo, my Dad is having issues with his kidneys and my body is so stressed that my hair is starting to fall out and I'm exhausted but can't sleep. Wednesday I take my Mom and I for our eye exams, I have to make a gastro appointment because the last few bowel movements, there has been a bowl full of blood (sorry, TMI). I also have to get my ass in gear and get my mammogram and now with this, probably a colonoscopy. It's almost time for my complete physical and I really wanna scream.. LOL!!!! I don't know why on earth I just went off on that tangent, what a dope, I apologize. I'm off my soapbox now. I think this June I'm going to get myself a baby hedgehog. Been wanting one for a long time and they are sooooo easy to take care of that I just have to have another one. It helps to focus on giving love and affection to my babies than to think about my pain, I mean who the hell needs that. So, Frailfairy, I hope you begin to feel better really soon. Sending love, gentle {{{Hugs))) and prayers that you can break that pain cycle and get to a better place in your being.πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

May 16, 2016 9:22 PM

I have been having a flare up for the past 3 weeks due to the weather and pms. It sick I couldn't take my dog to the park. I was a prisoner to my bed and house . I feel so weak sometimes.

May 17, 2016 12:51 AM

I've been in a flare up for two months now. The weather, my stress levels, people around me are very negative. Its hard to stay positive in this environment. I had to move in with family members it's nice not to be homeless. Although being positive is what I need. Today I've been very bloated and not sure why. Frailfairy I'll be praying for you.

May 17, 2016 1:59 AM

@warriorwoman, yes, it's so much better not being homeless. That felt like being "less than" being judged and made every aspect of life harder. The stress of being around negativity does impact our health. I hope for positivity for you ASAP!
@nae & @alwayz, Yes, the weather -am just realizing it has a huge impact. Why? Humidity? Ozone levels? Temp, for sure... What else? Anything we can do?

May 17, 2016 2:20 AM

Also, @frailfairy and @alwayz, I'm so sorry you are each handling so much. ((Gentlest hugs)) I hope you will get good news and have relief soon.
Managing life while these illnesses have got hold of you like an angry dog that won't let go, is beyond hard. Constant pain, stress, deadlines, doctors, prescriptions, diagnoses, not having diagnoses... The world is lucky it hasn't driven us insane!

Although, I'm the first to say it's good to be a little crazy... In a fun way. Distraction can be as powerful as drugs, for pain. So I wish you wellness and a little 'crazy'. I don't have a pet right now but my grands are with me, being very distracting and making me smile.

May 17, 2016 12:49 PM

Autoimmunes, I was already insane before the pain started.. LOL!!! πŸ˜‰πŸ™„πŸ˜³

May 17, 2016 12:57 PM

You guys are so great, thank you all so much. @alwayzinpain you made me laugh and I really needed thatπŸ˜‚
And yes, I too was insane before the pain started πŸ˜‚πŸ˜” maybe that's what makes us so strongπŸ’ͺ
@warriorwoman I'm glad you're not stuck being homeless! That would be horrible, it's unfortunate so much of the homeless community is disabled 😭

May 19, 2016 7:28 AM

Frailfairy, I'll be praying your tumor has not grown, and your flare ends soon. I've been there and it's no fun. Sending gentle hugs!!

AlwayZ, you sound like me right now with too much on your plate. I'm praying for you and all your family members. I'm sure there's a little hedgehog waiting for you. Go get that baby! πŸ˜‰ And yes, we all need a little crazy to survive this mess. Thank God we have each other to understand & support each other! Hugs!!

Nae & Warriorwoman, I hope and pray your flares will soon ease up. This weather is so crazy I think it's affecting everyone. Hugs!!
πŸ™‚πŸ’•πŸ™πŸŒΌ

May 19, 2016 7:37 AM

Frailfairy, I'm sorry your flare is unrelenting. :( I hope you have relief soon!

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