I have flares. In one now as a matter of fact. Sleep is un-attainable (sp)? I literally pace the floors and squirm in pain. I feel hopeless and need the Dr. To help me find a solution and not think of me as a junkie. I need more pain meds but am scared to ask.
I get very tired a couple of days before onset, then I crash into the pain, which gets progressively worse and then starts to subside. The cycle takes about 10 -14 days. No painkillers work. At all. My pain those days goes from a 6-7 to an 8-10.
I'm exactly like Gibber; pain always present, with fatigue & increased pain being the flare. I've had bad fatigue today with increased pain. Wondering if it's from activity yesterday or a flare starting. It was wickedly hot & humid today which has not been helpful!
Thanks Gibber! It's still going on, and with the sleep disturbances I'm certain it's a flare now. Usually my flares only last 5_7 days since starting the plaquenil last year, so hopefully it will pass soon. Hugs love & prayers for a good day for all! 🙂💕🙏🌸