I'm in the same boat. My pain started in my feet all the way up to my knees and worse on the right side. Now it has traveled all the way up to my hips and piriformis and low back. I think staying down for so long made everything much worse. I didn't have much choice since my foot and leg pain was so bad the doctors recommended me to stay down and give them rest.
I have seen a podiatrist, a neurologist, a rheumatologist, a physical therapist, and an acupuncturist. No one has been able to offer me more than temporary relief. I have had X-rays, a CT scan, MRIS, blood work, and ultrasounds and everything comes back clean. It's physically and mentally exhausting.
I have gone from being a fit, go getter to a wheel chair and cane and barely up and even bed ridden for a month at a time.
I feel your pain and wish you the best. I'm trying an antiinflamitory diet to try to keep my body "healthy" and hopefully eliminate some of the outside influencers.
It is hard to track because one day I could sit in a booth for an hour and another day I have had to leave a restaurant before my food has arrived.
I found a physiologist to help me work with some of my muscles and she has been incredible. I am definitely not healed but I could finally do a little supervised exercises without being bed ridden again.
My best advice is to pray. God has put some amazing people in my life to help guide me through the emotional and physical dilemmas.
Next keep a schedule of your food, and if your a woman, your menstral cycle. Many things that don't seem to be associated in your mind, may have a bigger influence than you think. Get some sunshine. Even if you are in a lot of pain make an effort to sit outside for a little. I get extremely overwhelmed on my bad days and I have noticed that if I get some fresh air, no matter how bad I feel, it lightens my spirit.
It's extremely hard to find people, even loved ones, who will understand ESPECIALLY if it's not visibly bruised or broken. Try to have friends who are overall positive but that understand the struggles. I have a few friends with autoimmune diseases and we can all share our good days and bad days. We can call in tears and it's nice to know you aren't alone. Be aware of the people who are actively angry and frustrated all of the time. I have definitely gone through periods of time that I felt those emotions but I have found people that I can unload on without judgement and then eventually transition to good things. You need to feel safe when you share those tough deep feelings and then be surrounded with love, not more anger.
You aren't alone and I will absolutely keep you in my prayers. Head up butter cup. If you can get through this, and you will, you will have a bigger understanding of the little things we are graced with on this earth. I just spent 10 min of crying from joy that I chose to walk an extra 5 steps to walk on a sidewalk instead of through the parking lot the other day. That is not a luxury I've had in the last year. I am always counting down the step until I get to sit or lay down. Things will get better. This too shall pass.