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For Jenna

Dec 07, 2015 6:46 PM

Jenna texted me and asked me to pass along some information. She loves all of you and is grateful for the continuing prayers. As sick as she is they still don't know what is going on. She can no longer keep down what they are giving her through the feeding tube, so she is being moved to another clean room. Her mom has my number and will keep me posted on her condition if she goes back to the ICU. She doesn't have a lot of strength to respond to multiple posts, but she asks that you add your thoughts, prayers, funny stories and anything else that will lift her up here on this thread.
I'm sorry I have been absent for a few days. I was in such extreme pain, I was curled up in the bed until yesterday. It is better now that the Dr understood the nuts in a vise analogy β˜ΊπŸ˜„and gave me back the meds that I know work.
Please leave Jenna all kinds of good stuff here, and she will post when she can, or she will have her mom pass on anything she wants to say, and I'll post it on here for her. They are going to be doing a lot of different types of tests for things that don't even relate to CRPS, because they don't know where to go from here. I'll let y'all know as soon as I know anything. Hugs and prayers for all of you. πŸ’•

Dec 07, 2015 7:13 PM

Jenna we are praying for you. Keep your mind focused on your healing . we will be here waiting on you when you are well.

Dec 08, 2015 1:01 AM

Hi Jenna, I'm sorry to hear that you continue to be so unwell... I hope the health professionals begin to unravel your health situation and bring healing & comfort. Sending you sunshine : )

Dec 08, 2015 4:03 PM

Update on Jenna. I just received a text from her mother. Around 12 this afternoon, she was moved back to the ICU. They don't know how long she will be there but her mother said she would keep me updated. I will update all of you here when I know anything.

Dec 08, 2015 5:31 PM

Thank you and I am thankful you can talk to her momma. Jenna I wish we could be w you but I will continue to pray. My 3 children ask about you daily and are praying as well. Gentle hugs πŸ˜·πŸ’“

Dec 08, 2015 5:37 PM

They are trying to find a way to get these messages to her. Either by phone or somehow. Keep those thoughts and prayers going out to her!

Dec 08, 2015 6:08 PM

God bless Jenna, my thoughts and prayers are with you. Here's hoping the drs can get to the bottom of this for you and your family πŸŒΌπŸ’œπŸŽπŸŽ„

Dec 08, 2015 7:11 PM

Jenna, I'm rooting for you, especially with everything...

Dec 09, 2015 1:18 PM

Jenna, you're in my heart and my daily prayers. My heart aches that you are going through this. It kills me when I speak to such young people who are needlessly suffering when they should be enjoying their lives. Know that I am with you Jenna. Any time day or night I'm available and I know you have my cell number. Hang in there honey. I can't even imagine what you are having to deal with. Keep the faith, God will see you through this. I'm praying for you and sending you gentle {{Hugs}} and prayers. πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Dec 09, 2015 3:27 PM

Jenna I will email too but did they consider Stephens-Johnson syndrome as a cause of the skin blisters? I also read it can rupture organs like stomach. There is a girl on fb Crps w it and they are keeping in icy or burn unit until better aka a month or more. Continuing to pray

Dec 09, 2015 3:47 PM

Prayers to you & your family. <3

Dec 09, 2015 4:07 PM

Oh i was looking at this poor girls heartbreaking posts I pray for her and family so unfare makes my suffering feel minimal

Dec 09, 2015 7:59 PM

Update!!! Jenna 's mom texted me, and she is not doing well. They don't seem to be able to do anything for her. She can't keep anything down after the tube feedings. She throws it all up. They are going to start giving her vitamins and minerals and supplements through her iv tomorrow. She has been asking the Drs about the induced coma. They want to send her to the Mayor clinic. I think these Drs have done more harm than good and don't want to do the coma in their hospital while she is their patient. That's all I know for now. I will let you know when I know more. Back to bed to hug the trash can. Blessings all, and a less painful night πŸŒƒ

Dec 09, 2015 9:24 PM

Lord God hold Your child Jenna. Peace comfort and healing to her broken body.

Dec 09, 2015 9:51 PM

I declare healing to Jenna niw in the name of JESUS

Dec 10, 2015 12:29 AM

Hey, is there any chance they'd try DMSO? Like through the IV? Idk exactly how it works.
I know it's not a miracle but it seems like if nothings working out could be worth a shot. Jenna, know I'm thinking of you, even if you can't see this.

Dec 10, 2015 1:59 AM

Cearea, just how bad is Jenna's condition...could she die? I just can't imagine someone so young and good and sweet going through all of this. Life isn't fair. I hope and pray to any God or Good out there to help her right now.

Studies have been done regarding the efficacy of hope and prayer of loved ones when someone is in the hospital. It's actually been shown that somehow, even if the patient is in a coma or asleep while the prayer is going on, their condition will spontaneously improve a little bit. A little is better then nothing. Maybe if we gather and focus all of our energy on Jenna (at the same time?) we can give her some of our energy and hope.

I know it probly sounds ridiculous, especially coming from an agnostic, but the studies were pretty convincing to me. I will try to find them online.

Jenna, you are in my thoughts and prayers honey. Get better. You're one of us, and we need your voice here. πŸ™πŸ»πŸ’πŸ’Ÿ

Dec 10, 2015 2:30 AM

Jenna, you and your family are in my thoughts and prayers! You are a sweet girl and I'm so sorry you have to go through this. I pray they move you to another hospital quickly. Perhaps a new set of eyes and ears will help. I also pray God gives the doctors knowledge, wisdom, and compassion while treating you so that you may feel better. Sending butterfly soft hugs your way!

Dec 10, 2015 9:06 AM

Amei, the way her mother worded things, I thought that myself, but then I did a quick turnaround in my head and started asking questions. The answers I got from her were somewhat encouraging. I think the Drs don't know what to do so they are trying to find another hospital. They are talking to Mayo and about going ahead with the induced coma. I am sorry I can't be on here much, but I'm having a really hard time right now. I will keep everyone updated on Jenna though. Blessings, hugs and 😍

Dec 10, 2015 6:15 PM

Jenna, am praying for you, with God nothing is impossible, everyone let's hold hands and pray for Jenna

Dec 10, 2015 6:27 PM

Praying

Dec 10, 2015 8:15 PM

Power and prayers to Jenna may God guide you!

Dec 11, 2015 1:39 PM

Continuing to pray

Dec 11, 2015 1:41 PM

Saying daily prayers for you Jenna. I'm sending gentle {{Hugs}} and positive vibes to give you strength. We're all here by your side and I know that God will see you through this.πŸ˜˜πŸ’•β€οΈ

Dec 11, 2015 8:32 PM

Update on Jenna : The Drs started her on I've nutrition, vitamins and minerals. They are doing this every few hours as well as checking her blood work to make sure the levels of those are correct. She is not doing well according to her mom. She is having many more pain induced hallucinations and more often. Her stomach is much worse and the Drs are worried that her CRPS is continuing to spread to her other internal organs. They checked her spleen and pancreas and they are OK. She is becoming malnourished though. The Drs have started the paperwork to transfer her to the Mayor Clinic by lifeflight. It may take up to 2 weeks to get her transferred. They asked the Drs about the drug induced coma, but they don't want to do it because they don't know enough about CRPS. That's why the transfer to the Mayo. Her mom said she is breaking. She cries and can't stop. The meds aren't working and she is fading away before their eyes. I have just one wish this Christmas, and that is that God places his hand on her head and heart and brings her peace. I am so sorry to have to be the one to bring y'all this news, but I'm hoping the next update will be better.

Dec 11, 2015 8:44 PM

Prayers to you all..

Dec 11, 2015 9:04 PM

God bless this poor girl and heal her in his loving arms ...god bless the drs to help her feel no pain or suffering!

Dec 11, 2015 9:48 PM

I haven't been around lately due to issues I'm going through; my prayers, thoughts & blessings for Jenna.. hugs

Dec 12, 2015 12:01 AM

Jenna I ask in Jesus name that you be healed, the Bible says where one or two are gathered in his name he will answer prayers. Don't give up baby it is going to get better. Hang in there and cling to Jesus ' s hand he is there beside you .never leaving you.I know they frown on giving out phone numbers on hear but I want you to have mine .it is (936)632-9193. Anyone else that would like to call me and chat are also welcome to. I WISH I could be there with you and your mom while you are going thru this. Sending love prayers and lots of hugs .

Dec 12, 2015 2:08 AM

How far is Mayo from the current hospital?
Right now, I may want to help bit in far away, and I gave ideas but they are useless if docs don't know CRPS, and be willing to treat it. I really wasn't Jenna to be okay, if I could, I'd grab Kyra, Caela, and Erica to come visit. Kyra and I both had CRPS, the others a are also teenage spoonies.

Jenna, I don't know if you'll see/hear this, but I'm really hoping you'll somehow get better. I was thinking about you all through Confluence, and you (plus family weirdness) inspired a short fiction.

Kyra and I are both survivors now, having gone bad, worse, then eventually better. I know you've had it for longer and damn, I'm so sorry you have this disease. I know I'm far away, but I feel like I know you better than the random death people in middle school, and hearing updates about you has helped me keep going.

I haven't been in the hospital long term, partially because my family doesn't trust docs, and also because I usually will be in bed for several solid weeks before going to a doc. I don't know, maybe I'm just lucky, I just want you to be okay!

Dec 12, 2015 3:54 AM

Creator, keep and protect your daughter jenna, she needs your healing grace.

Dec 13, 2015 11:19 PM

You are missed - He will sustain you, He will rescue you and bring you peace.

Dec 14, 2015 7:57 AM

I am sorry I have been away so long and I am just now seeing this, Jenna, know that I am praying for you and will try and keep track of this thread. Sending you lots of prayers and love and support! πŸ˜˜πŸ™πŸ’•

Dec 14, 2015 8:58 AM

Heavenly Father, please surround your Daughter, Jenna in the light of your love and protection. Ease get pain and protect her from further harm. With your healing grace, bring her to her family and always shine the light of your love in her heart and soul. Through Him, all things are possible. AmenπŸ™πŸ»πŸŒ»

Dec 15, 2015 11:04 AM

Cerea, anything new? Did you find out how far Mayo is for her?

Jenna, your a good distraction from our own pain but we really would like to hear your voice thru words. Be made whole, perfectly free wo pain. Gentle hugs.

Dec 16, 2015 7:32 PM

Hi Everyone, my prayers goes out to Jenna hope she bill her strength to overcome her sickness.

Dec 16, 2015 9:22 PM

I've been away much too long and I'm heartbroken to learn Jenna is back in ICU.

Lord, please hear the requests of each of us, and bring relief to Jenna. Get her under the right doctors so that her health turns around and improves. Lord, help Jenna to have the strength and desire to fight and beat this. In Jesus's name we ask of thee. Amen! πŸ™πŸŒΌ

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