Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

For people who cant sleep or who are always fatigued

Feb 01, 2017 9:48 AM

I just shared this on my facebook and i think it is a good link to sgare what its like with theses illnesses that we are fighting to not consume us
https://m.facebook.com/story.php?story_fbid=1340870529268025&id=1048951861793228

I want everyone who knows me to see this!
This is literally my life. Please understand that some people with illnesses are not just living their lives like everyone else, they are trying to survive.
I did take this Monday off this week, I couldn't sleep for more than 3 hours a night sense Thursday night.
Monday I finally fell asleep at 7 am
I had 25 unread texts and 11 missed calls, so, I was woken up 25-36 times, and yes I ignored all of them. Why didn't I turn off my phone then you ask? Well, the last time I did the people closest to me exploded instead of trying to understand what this is doing to me, how much I as struggling.
I went to bed at 6am on Tuesday morning and went to work at 9am. I went to sleep at 11pm and woke up at 12:30am and I haven't slept yet. I can't afford 2 days off a week. This is how I sleep, this is how I am 'living'.
So please stop yelling at me and getting pissed off when I don't answer the phone I'm fighting for a basic human need.
I just want to sleep.

Feb 01, 2017 9:58 AM

I totally get it, as most here will. I'm having copy broken restless sleep, going on 3rd month. Post just the link portion.

Feb 01, 2017 10:36 AM

Oh yikes. That's one good thing I can brag about. I have awesome people in my life that get it. But yes, I have made them aware. That's huge.
My phone automatically goes silent from 11-7 every night. I turn it off during the day if I need sleep.
I'm so sorry to hear you have to work on top of all of that.
It really sounds like you need to set some boundaries. Even if you didn't have a chronic illness, you are not obligated to answer every email, phone call or text. People will take as much as you let them and part of being an emotionally healthy person is drawing boundary lines.
((Hugs)) hope you get some rest.

Ready to start relieving your pain?

Join Community