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CatchMyPain Community and Pain Diary App to manage chronic illness

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Nov 04, 2015 5:36 PM

Sooooo... hi to everyone. I've been reading this forum since I found and downloaded this app a few days ago. It has taken me days to decide to actually attempt to post, as I've a mindset of "no one gets it; why try"😕
As I've read however, I've discovered several of you who actively participate in one another's question/statements, and I've yet to see even one person judge or use the suck-it-up lecture. Thank you for that. Sincerely.
By way of introduction, I am a 45 yr old Mom of two beautiful boys. The love of my life/Hubby is an OTR truck driver, gone 5 days out of seven. I believe it acceptable to say I'm a single Mom of twelve yrs. In addition to the many other "hats" I wear, as a class A, yes-woman, who is a care-giver in every sense of the word.☺
Dx'd at age twelve with RA, later to find that I also have FM, I began to really look at my life, which previously I'd attempted to avoid. I began to hear of the role that severe trauma could play in both RA and FM. At the tender age of 4yr old began a succession of sexual abuse in my life that lasted for 25 yrs. Threw back my shoulders, bore up and pushed thru, though with repercussions, naturally. I had my first child at 32; traumatic labor and delivery. Second child the same. This is when my Doc and I began to see a decline in my health, and an incline in the FM symptoms.
My question is this: is there truth to the finding of trauma being a prerequisite to this disease? Also, I'm unable to walk or stand very long without aid. Is there anything besides meds to help this?

Nov 04, 2015 6:12 PM

Oh my. I'm so glad you decided to post. My physical trauma began about 12 yrs old. Horses were my life for a long time. I ended up on my butt a lot. Gymnastics and dance was interspersed with the horses. So, I didn't suffer abuse but I did have trauma. I was told the same as you. Whether it's true or not, I don't know. For me, it seemed like the more things went wrong physically, like the degenerative disc disease, diabetes, premature labor etc the worse my fibromyalgia got. So, I understand your struggle. As far as weakness and not being able to walk or stand, I just got a wheelchair. I do have MS though. The symptoms seem to parallel each other somewhat. Anyway, I'm glad you found us and this is a safe place.

Nov 04, 2015 6:33 PM

I too have heard trauma can cause onset of fibromyalgia. Physical and emotional trauma. For me it was a bad hysterectomy at the same time my father was getting sick and everything was going wrong in my family. Siblings, parents, and my own children. I think it is a cause of fm and cfs.

Nov 04, 2015 6:37 PM

Latch welcome! I'm so glad u found the courage to post! I think most of us have had all suck-it-up-and-get-over-it lectures we will ever need. I too was sexually abused ages 3-15. Also have had several significant car accidents, but my symptoms started 15 years ago after a hysterectomy. It was interesting to me that the support group I attended 12 years ago was attended by all post menopausal women that began having symptoms after the onset of menopause both surgical and natural. I always thought a research study in that area would be interesting. Anyway, I have met a few people who couldn't identify a trauma before onset of fibro but most I have met or read about can. Before the fibro, my pain tolerance was so high I only knew I was really hurt or sick if I began feeling shocky. I had a fully "hot" appendix but just mild abdominal pain. My Dr. Took one look at me and said "are you having shock symptoms?" I was in surgery within 2 hours. Anyhow, the point of all that is to say we are all very different AND the same in so many ways😊. Welcome, God bless, and I impressed by your courage!

Nov 04, 2015 8:43 PM

Welcome to our community family LatchTina! I'm so glad you decided to join us, though not that we all have chronic pain. We do not judge because we know how that feels already. I pray for everyone as your needs are mentioned. It's just the way I was raised, and my faith is my strength. You mentioned trying to avoid looking at your illnesses. I think we've all done that at some point. I stopped working in 2010 for surgery but never returned due to my health. I finally accepted last year that I'll never work again. That was the actual moment of acceptance for me.

I do believe trauma plays a party in fibro, and i also believe trauma can come in many forms. I've had many surgeries in my 53 years, along with multiple auto accidents, and a fall from 15' height in grammar school. That was the fun injury because everybody got to sign my cast and it was "cool!" Lol. Fast forward to 2007 and I was exhibiting symptoms of fibro. My coworker told me one day she thought I had it and I laughed at her and said, "no way!". I was complaining of fatigue, aches & tenderness, pelvic issues and not feeling well. Turns out I had a tumor (10 cm) removed along with 4 other surgical procedures in the 1. My inflammation level was off the charts and had been for 2+ years. Fast forward now and I'm officially fibro, sjogrens, hypothyroidism, and many other dx. I do believe the tumor inflammation was the trauma that set off my fibro. I had a hysterectomy in 1995 & oophorectomy in 2003, so all the problems with the mass surgery amounted to pelvic floor dysfunction, pelvic congestion syndrome, bowel and bladder incontinence, etc. My health has continued to decline and I now use a cane, walker and electric cart in big stores. But I still feel I'm blessed because I can still feed myself, dress myself, bathe myself, and I can communicate with others.

I hope you settle in and offer as much experience and advice as you gain from us. We are always here for each other. (((Hugs) of welcome & a prayer for you! 🙏🌼

Nov 04, 2015 9:18 PM

Welcome to the family! As you have seen we are all supportive of each other, sometimes downright protective. There are a few really young ones that we all look out for. I am so very sorry for the horrible abuse that you suffered, there are not any real words to make that better. I am glad you found us and I hope we can all share and leatn from each other. Welcome :)

Nov 04, 2015 9:43 PM

Gosh, thank you seems quite inadequate, but wow, do I appreciate all the support and insight. I've never had the support and it means alot. I wish to say that through all that I mentioned, I persevered with God's help bc He IS my help. I too feel truly blessed, despite my past and present situations. I've always had a fierce drive to be what I believe women are called to be: strong. That being said, I realize my need for community and in that, I'm so siked to have found you all. 《Gentle Hugs》

Nov 08, 2015 10:24 AM

I have heard especially with chronic regional pain disorder, a trauma is usually involved on the onset. The Syndrome is very like that of fibro. I've been lucky enough I guess to be blessed with both..is the problem standing due to weakness or pain in feet? I've had both also, with frequent falls and legs giving out due to Neuropathy.

Nov 08, 2015 10:42 AM

It is pain, simular to neuropathy nerve pain, in my feet and legs. So was hoping against neuropathy tho😕
Do you take neurontin for it?

Nov 08, 2015 10:51 AM

I do. I have taken it for almost 15 yrs. The worst side effect of taking it long term is it leaches the calcium out of your bones. So far, it has affected my teeth at this point. I'm in the process of having what teeth I have left pulled and getting dentures at 51. Lyrica is another one that works for nerve pain. I couldn't take it, so I'm stuck with neurontin. I'm going to talk to my Dr about injections for my sciatic nerve. That's the reason I take neurontin. Although the peripheral neuropathy may require me to take it from now on. Way the pro's and con's of each med with your Dr if he/she wants to try it on you. Good luck. Feel better.

Nov 08, 2015 11:02 AM

Thank you much and same to you.

Nov 08, 2015 11:11 AM

You are very welcome.

Nov 08, 2015 11:48 AM

Welcome LatchTina. My chronic pain came from an accident with a Welsh pony and jumping out of a moving pony cart and getting my foot hung and dragged. Subsequently I have RSD in my right foot (currently recovering from a 2nd surgery on my ankle/foot) PTSD Depression, Anxiety, and Sensory Defensiveness. Along with raising three kids single-again with the help of my brother. I am 46.

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