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Frigid Flare

Jun 11, 2015 3:48 PM

Today my right leg is having a CRPS flare up. My dad felt it, the temperature difference is incredible.
My teeth are acting strange again, one is coming in sideways.
I might have my dad just use pliers.
I don't know how, but at one point I had a tough that hung on by one piece if the root.
The dentists kept saying "don't worry, it'll come out on it's own" but it stayed in my mouth 3 years after they said that. My dad finally pulled it out, but if he hadn't I might still have the tooth.
I feel pretty nauseous, even bacon makes me gag. =(

Jun 11, 2015 7:06 PM

Ouch. Tha Mommie in me says 'oh honey' with a hug. I am so sorry you are dealing with so much crap. Really 3 years later you just cannot catch a break. I understand the bacon comment...usually everything is better with bacon lol. Take it easy little one. We are all here in your court.

Jun 11, 2015 7:16 PM

When my pain flares my body temp is different too. One limb will be totally different than the other. So far the medical world has no answers. I know that my blood pressure is always very close in any limb so it is not a co-arc in my aorta. A co-arc is when the aorta has a kink or twist. Fun to fix but I do not want it. So that being said check your blood pressure in all 4 limbs they should all be pretty close. Keep in mind if you cross your legs or have to pee it will increase your pressure.

Jun 11, 2015 8:11 PM

Ferretbandit, I'm sorry. Does extra heat help on the affected area? I don't know much about the CRPS. I've read some on it but don't feel like it for me so I didn't research further. If you do pull that tooth and it bleeds too much, moisten a few bag and put it on the gum area to help stop the bleeding. I'll be praying for you! 🙏🌼

Jun 12, 2015 9:47 PM

Ferret, I feel The same as lmb, I am a father. I am trying to imagine what it is like to have a daughter with your situation. I am a caregiver when one of my kids is not well. No matter how much I hurt, I will hurt more for my kids. I wait on them hand and foot. I would go out and buy whatever possible that would give them relief. I am sure your parents are giving you the loving support you need. That is what parents do. Your situation must be so hard. You are so young to be going through this. But it seems like a terrible thing for anyone at any age.

Just letting you know ferret, that i am thinking about you and hoping you get relief soon. I know you are not going to get better. When this happens, is there anything that you can do to give you relief or do you just have to wait for it to pass. Is there any pain management treatments available that can put these episodes in remission for a while. I was just wondering if there were any treatments for this problem. I hope there is some way to get some relief. I hope you get to feeling as well as you can as soon as you can.

Jun 13, 2015 12:17 AM

Thanks for all the suggestions.
LMB, my right side is usually pretty close to my left in blood pressure, but sometimes the nurses are shocked, now I know to ask them to check both sides, and the left usually goes into the records.

Flappy, crps is very similar to when you describe tingling and numbness, the main difference between it and fibro is that the pain is focused in the limbs. It eventually spreads so a late diagnosis might cause it to be diagnosed as fibro. Extra heat helps sometimes, but can make the flares worse.

Profiler, I do a lot to prevent/stop flares but sometimes the only option is to wait it out, or for the meds to kick in. There are a few treatments, PT, Ketamine infusion (my dad is interested in a coma version but it's not currently legal, only some studies), gabapentin and Pregabalin are common, but just cover the symptoms, LDN +DMSO +Kava root +Magnolia Bark + Benadryl work pretty well together.

The flare seems to be passing, thankfully.

Jun 13, 2015 12:40 AM

If you don't mind telling me, what is the ketamine infusion? That sounds interesting.. Don't post back if you don't want to comment. You probably are telling everyone about it so I can understand if you get tired of typing and talking about it. But I am very happy your flare up is passing. It makes me very happy to know that there are things that you can do to handle the flare ups. I would never imagine that Benadryl would help this condition. I don't understand why since it doesn't seem like an allergy. But I am glad it works along with your list of other things. It shows you didn't limit yourself to just regular medicine. But you were open minded to natural medicine. I am just now starting to do this. I am using it for treating parasites until I can get the doctors to treat it. But I am now using turmeric for inflammation. I am making sure I take a strong amount of vitamin D. I just read that 3 out of 4 people are deficient. I figured us who don't get out much are affected. Vitamin D controls inflammation. So I am trying to expand my use of natural things. It shows how wise you are for such a young lady. Take care. I hope you will feel as well as you possibly can tommorow.

Jun 13, 2015 8:33 AM

Ferret bandit, I'm sorry you're having a flare up. I've had BOTH diagnosis of Fibro and CRPS. I think they use that diagnosis when they don't know exactly what else you're dealing with. I just broke my hand on Wednesday afternoon and went to the doctor Thursday morning (ortho). I'm in a cast, In pain and now, this morning got up with a migraine and my spine is flaring up. It's a vicious cycle. I wish I could reach through the posts and give you a hug. You're so young and to suffer with all of this hurts my heart. It makes me sad to hear of anyone suffering but when I see posts from teens and twenties who have been in pain for years already, I want to scoop them all up and take care of all of you. Please feel better. Im praying for you and there are lots of us here for you as you can see. You're in my prayers. 💕🙏🏻🌺

Jun 13, 2015 8:55 AM

Oops... Few = tea bags. I hate auto correct. 🙏🌼

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