Today was my 2nd time seeing my Rheumotologist. 1st visit she said I had Fibro and I do agree with that. My problem is this, I have suffered fir the past 2 yeara with pain so severe that I can't work, can't stand for more then a few minutes, simply washing dishes had me leaned over the sink crying in pain. I went from super single mom kicking ass working and managing home and feeling great to feeling like I can't even get out of bed. My oldest daughter age 20 is now working to support my youngest daughter and myself because I can't work. Trust me I've tried. 5 months ago i tried Just working part time at home depot. On my 1st day standing at a register I was a couple hours inn and Iin. so much pain I was crying and had to leave. I was so stiff I had to force my body to bend enough to get in my car to come home. I had mris done 1 yr ago on my neck and back. My pcp never once gave me the results. I finally 2 days ago went and ask the imaging center for a copy and it shows cultivation to my spine, moderate spurring in several places from neck down, prominence of the neurohypophysis? And many other things i really don't understand. So I'm thinking obviously there is more then Judy fibro going on. Today the Rheumotologist dismisses it when i show it to her aling with all other complaints. Says it's just fibro which hey theres no cure for, I'll give you lyrica hopefully it'll help. Informs me that my liver blood work is elevated and vit d is low ( I have been in meds for low vit d for 2 yrs with no improvement). I'm sitting there crying asking her to please help me. I need to support my kids and do something in order to go back to work and all I get is I'm sorry you're so frustrated, I'll see you in 6 months and you should talk with your pcp about any concerns you have.
I just don't know what too do anymore. The doctors don't listen, my pcp never stays on top of anything and acts surprised that I'm complaining of pain every time i see her like it's the first time she's heard about it. I'm giving up. I'm worn on both physically and mentally and don't have a clue what to do next to be heard or understood.