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Frustrated

Sep 13, 2016 1:53 PM

I am over the moon frustrated with my family Dr. Just had an appointment today with him, a follow up to see how I made out at the reumatoligist in July, (his office had cancelled my last appointment and life popped up until today when I cleared the calendar for this appointment) the last time I seen him he told me to research fibromyalgia and when we met again we would discuss, well that got brushed under the rug, can't be that he says.....like WTF! So we discuss my appointment with the reumatoligist, and he agrees with the reumatoligist that I am in pain because I'm overweight. He also says that age has a significant factor in it.....I'm 48 and guessing in his eyes that's old. Now I am the first person to tell you I'm heavy, and I agree exercise is a necessity, but I am barely surviving keeping my house tidy, working two very minimal part-time jobs and feeding the family on a daily basis. I have tried various medications, and none of them relieve it enough to make it easier to move more. The more I do in a day, significantally influences my next day.
My day starts of with waking in agonizing pain from the centre of my back (bra area) surrounding my ribs like I'm being crushed in a bear hug. My right arm and hand can barely move and the rest of my joints are tense and stiff. Some mornings my husband has to assist me in removing my cpap mask and getting me into a sitting position.....I try very hard to do it myself, because I'm a stubborn woman. When I stand my hips feel weak, and I am dizzy. I get to the bathroom, grab my synthyroid pills and sit on the couch with my heating pad. My husband is a great guy and gets me my coffee and sometimes breakfast if it is a super terrible morning.
The pain in my back and ribs is with me all day, right and hand arm are always stiff and sore, but I take Tylenol and try to get through my day. I have tried going gluten free, but our financial situation wouldn't allow me to continue.
The start of this pain was just over a year ago. The only thing that changed in my life was getting my cpap machine.

Thanks for letting me vent.....

Sep 13, 2016 2:31 PM

Don't give up with finding answers. Sorry you're going through this. I saw many docs/specialists all telling me nothing autoimmune was going on. All the while getting sicker. Then one day my fingers turned blue in front of my GP with Raynaud's. He finally offered to send me to the Internist I'd ask to be referred to 8 months prior. The Internist took one look at me and knew something was very wrong. All I had been told was normal he said was anything but normal. I was diagnosed with lupus that day and they suspect scleroderma. There was a sense of urgency in getting me on the proper medications immediately. Docs think I've had this for many years, hence seizures and the loss of my bladder many years ago. It took 2.5 years of actively pursuing answers when I knew something was very wrong. Joint pain that was spreading and getting worse all the time being the biggest issue. Have you been tested for lupus and RA?

Sep 13, 2016 8:15 PM

Thanks for the reply Gibber. My blood work shows no markers for RA. Lupus has been mentioned, but never tested. I'm thinking its time for a new family doctor, who is a little more active in patient care, not just throwing pills at the problem.

Sep 13, 2016 8:44 PM

Spidey I'm so sorry that you are being misunderstood๐Ÿ˜
This pain you speak of (around your rib cage)
I too get this pain ...... . I have had testing done ( chest x-ray,ultrasound,and a CT scan) and guess what??? All normal!!!! It can get really frustrating. I was diagnosed with fibro 2 years ago,this pain only started happening about a year ago and nothing seems to help it other than heat and rest.

Sep 13, 2016 8:45 PM

I am so sorry you have been through this..the good news is it might not be Fibromyalgia!! The bad news is that you still need to find out what's wrong with you! They always say to exercise and it's good for our overall health but they don't understand it hurts to stand walk bend do anything so exercising is so fucking difficult!! Losing weight would help your health but it won't fix all your health problems ! So rude!! Keep fighting till you have answers it took me two years and several specialists and MRI(3) catscans(6) lots of blood work and guinea pig drug testing until I met the right Rheumatologist who knew I had ifirbromyalgia +! Don't give up If changing doctors is an option for you than do it! Keep fighting you know your body and you know there is something wrong! Sending my thoughts your way!๐Ÿ’•

Sep 13, 2016 8:55 PM

Thanks Anna....I keep pushing, but it just happens to be a brick wall I'm pushing at. I'm not giving up, because I know my body is trying to tell me something. Funny thing is before this journey began, my daughter had twins and I was there night and day for almost a month. No issues, no exhaustion, no pain. It started after they were about 3 months. I could never have helped her if I felt the way I feel now.....I'm actually dreading the birth of my next grand baby....because I am worried I can't be as helpful.

Sep 13, 2016 9:05 PM

You can test negative for both RA and lupus but still have it. The tests aren't definitive. I was ANA positive but all my other tests came back negative. I have enough of the other criteria to be diagnosed. You only need 4 of the 11 criteria. If you're able to look into lupus I suggest it. It sounds like you have a lot of the symptoms.

Sep 13, 2016 10:24 PM

I feel as if we share the same life. I'm sorry your going through this. And I wish there was a quick a easy.w at to acreoos to the drs.
I was thinking and listening tona conversation my mom was having a relatively your woman who worked in medical coding is now on RA meds and her weight has tripled. But thr thought is u ha e a pain or issue they give u a pill it go n swell u up they are u bothered. But the use the weight that there meds our on you.and the way u to loss. wweight it a crazy system. I hope I made so. Sense I'm writing this why the amnbein is looking in..best of lick

Sep 14, 2016 4:31 AM

Flexoril .25 mg at night. Get into pain clinic. Get MRI of each pain area you can. Get referral to neurologist. If women weigh under 150 it becomes much easier to exercise. I roll the ball with my feet on the sofa. Start moving ten minutes of fun.

Sep 14, 2016 7:38 AM

Spidey, I am so sorry to hear that your GP is such an idiot! I was blessed with an amazing GP, he kept doing blood work till we found an answer to my problem, I tested negative for RA but positive on the ANA blood work and Sjogrens and Lupus were the winners. I'm glad you are getting a new GP no sense in staying with one isn't going to do his/her job. My prayers are going out to you for a lighter pain day and better day's to come!๐Ÿ™๐ŸŒž๐Ÿ’–๐ŸŒน๐Ÿ’

Sep 14, 2016 7:42 AM

Thanks everyone. I'm a little less frustrated. Today is a new day and finding a new doctor will be my priority tomorrow.

Sep 19, 2016 10:31 AM

I hope you're feeling much better today. I'm just seeing this post. Have you researched costochondritis? I have this and several others do too. It sometimes makes it very hard to breathe in. Hugs love and prayers you get answer soon.

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