I wondered if anyone else has been frustrated with the lack of treatments. I am newly diagnosed with ME CFS and I am so upset with the length of time it will take for me to receive any treatments. For the last 3 months my doctor and I have been discussing pain management clinics and she has been eager to refer me, but had to woit for the letter from the Rheumatologist before she could. The letter took over 2 months to be sent! The doctor has made the referral and now I have to wait 3 months before my first treatment.
I have been suffering from the condition since January this year, so my the time I see anyone in the pain management clinic it will be January next year! I am on so much medication each month when I go and get it the pharamcy give it to me in a massive carrier bag!
I am a cup half full kind of guy, and try and be as optomistic as possible, but this is really testing me. I have not been able to work for the last 4 months and have been signed off work until the end of the year. All my hopes have been on the appointment with the pain management clinic, but that is now such a long way off.
Sorry for ranting, but I am so FRUSTRATED. As I am not working I can not afford to have any private treatments done. I have previously tried Acupuncture, physiotherapy and seen a chiropractor, all very expensive with little improvement. I do stretching exercises and have various instruments to massage my legs, neck and shoulders, so I feel I am doing all that I can for myself.
Does anyone have any suggestions af how I can speed up the time it is to see someone in the pain management clinic or is there anyone in a similar situation?
I hope you are all as well as you can be and hope by sharing we can help each other.