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Frustration!

Jul 24, 2015 7:19 PM

Ugh! I'm so frustrated right now! I feel like every muscle is stuck on tight! I feel like I just stretched every muscle but now they won't relax back. I get this constantly and it drives me crazy! Nothing I take really helps. It leaves me feeling exhausted and restless at the same time. I've learned to deal with it most times, but tonight it's pis sing me off...

Jul 24, 2015 8:55 PM

Have you tried trigger point injections? I get them in my neck and shoukders; when I go get them they work. It's been a few months since I went last.

Jul 24, 2015 10:17 PM

I press on tender points and hold it to a count of 15, release, wait, repeat 5x, on each tight area. It doesn't totally relieve the muscles, at least not immediately, but it helps some. 🙏🌼

Jul 24, 2015 10:17 PM

Oh, after doing the pressing, I rub voltaren gel in.

Jul 24, 2015 11:14 PM

I've been flaring for few days now, I feel you. You need rest but your body won't let you. Im thinking about going to ER soon. Im not sure I can handle it much longer and I know it's not going anywhere.

Jul 24, 2015 11:26 PM

That is what's been happening to me!! I thought about going to the ER but figured they would think I was drug seeking even though I have a signed and notorized contract that I wouldn't get meds from anywhere else. The whole thing is beyond my comprehension. Hope you get the help that you need.

Jul 24, 2015 11:43 PM

Alwayz, wow....that's what I was thinking too about how they might see me.....I have enough drugs in me but right now it ain't doing nothing for me. What more can they do for me...😞

Jul 24, 2015 11:47 PM

I would like to add if someone told me that the toilet water can heal me, I'll drink it without a second thought!

Jul 25, 2015 12:24 AM

Octobot, believe me, if someone told me that if I drank toilet water and that i'd be guaranteed that it would take away my pain, I would drink it within a NY minute with no hesitation. I get it, you get to the point of desperation that is so bad that if anyone said, pop this pill, it will make you feel better, you'll pop the pill and ask afterwards what it was you just took. I have the same situation, I certainly have enough of my own medication that has been prescribed to me by pain management and the problem is that my body has gotten used to them and the pain has gotten worse, so they don't do much but take the edge off enough that I can somewhat function as a normal person. It's really a total nightmare. However, I guess we can't worry so much what others are thinking because WE are the ones who are suffering. I wouldn't care if I went to the ER and they called my pain management doctor in and then THAT doctor gave me a shot of whatever he could and send me home with whoever I could get to drive me there so I could rest. I hope that you are able to get through this flare without any major bullshit and that it is short lived and you get back to a level you can cope with and feel better. I know that we aren't going to feel so good that we'll be dancing in the street but at least being able to get up and go out and run errands is normal enough for me at this point. Best of luck and I will keep you in my prayers.

Jul 25, 2015 12:37 AM

I hear you alwayz, I'm not sure why I'm contemplating to go or not, it's just that I'm so sore It's not funny. I can't lift myself to the car and whether it's worth all that effort only to be sent home with no shots or anything. It had happened one too many times before.

Jul 25, 2015 2:08 AM

I have s similar full body muscle spasm. It's not exactly full body, but a ton of little tiny super painful spasms. It sucks. Usually I curl up into a ball and my dad has to pull me apart. I'll be sobbing by then, and not much helps.

So far as meds go, there's always that option of getting off them so that someday you can use them again. It's just hard to weigh the potential future relief against what is happening now.

Jul 25, 2015 2:41 PM

Heidistach , I did try trigger shots years ago. It didn't help at all and left me bruised and still in pain. These feeling eventually go away it's just exhausting. The only pain medication I'm on is ibuprofen 800. I take Cymbalta which is supposed to help, but I really use it as an antdepressant. I used to take Lyrica which helped limit it, but it's too expensive. I don't want pain meds or narcotics because my pain isn't always sharp or shooting. It's mostly a deep ache or tightening. I just get so frustrated because It just comes out of nowhere.

Thanks everyone for your suggestions and good thoughts. What is that Voltaren gel? I've never heard of it. Will it help a deep ache?

Jul 25, 2015 5:47 PM

Voltaren Gel is an anti-inflammatory rub. It seems to help I have used it in the past. Not really sure why or when I stopped lol

Jul 25, 2015 5:49 PM

Where can I get it? Is it a prescription?

Jul 25, 2015 5:49 PM

Yes, it is prescription.

Jul 27, 2015 3:50 PM

I use Voltaren gel too. I am a medical transcriptionist and it really does help my hands and fingers or my elbows when I have tendinitis or my skin when it hurts... I could go on and on... Lol

Jul 27, 2015 3:54 PM

Capsaicin cream can be bought o.t.c. , my Dr gave hubby and I both lidocaine cream to use, the Dr gave him tagaderm patches to put over the cream to help it absorb.

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