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Full of pain

May 20, 2016 1:10 PM

Well today is a day of full pain all my joints everytime i move, i have no idea how people cope and im still trying to get my head round the fact i have this thing that totaly affects your life and the people around you. Me and my husband have being going through a very bad patch when we found out and a few harsh words was said between us and things we never thought we would ever say to each other but hopefully all settled between us. This FM has a lot to answer for and i will keep going to try make my life easier to live with but dnt know if will happen as i am so down but i am a fighter and thats all i know just fed up and want to sleep with out turning or moving and have to get up because of pain. I feel sorry for the partners of the people who have this as they have to deal with alot and especially not being able to help there partners out this pain but all they can do is support it seriously but be painful for them in there own way.
I heart goes out to all those whom have FM & their partners

May 20, 2016 3:35 PM

Smurf45, it's totally normal to be depressed after getting diagnosed with a chronic life altering issue. You are not alone, and many of us are on antidepressants, and anxiety meds. My hubby wasn't that supportive for the first 3-4 years. When I took him to a rheumy doc appt, and he commented, "I'll be glad when she can come off all this med," the doctor whirled around on him in anger and stated he apparently had no idea of what I was struggling with, nor understood I'd be on the meds my whole life just to be as pain free as possible. After that he became my best supporter, learning everything he could, and helping to educate others. You need to go through a grieving process for the loss of your old life, and then learn new ways to cope with your new normal life. It took me 4 years to come to terms my old life was gone. But I refuse to lay down and emotionally die. I enjoy every gold day, hour, or moment I get, and when I'm having a bad time I rest and listen to my body. And I do not feel guilty for doing whatever I needed to do in order to survive the best I can. I refuse to be shamed or embarrassed by judgemental people. I do the best I can. I've been in this fight since 2007, but didn't stop working until 2010, due to unrelated surgery that was the downhill snowball. Lol! Try and be as open as you can with your hubby, family, & friends. Some will come to support& understand while others turn away. It comes with the territory. I'll share some websites with you. Hopefully they'll help you & your loved ones. Feel free to ask questions, vent, cry, pray/ask for prayers, etc. You'll find lots of support here, with ideas and suggestions to try. Hugs & prayers as you find the best coping method for you! 🙂💕🙏🌼


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