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Gabapentin ?

Sep 23, 2014 10:06 PM

I have fibromyalgia. I suffer with severe nerve pain!!! I stopped taking Gabapentin a couple of months ago because of side effects. I ended up in severe pain. I tried Lyrica, I gained 10 lbs in 1 month. Lyrica also didn't help my nerve pain. I am know back on Gabapentin. Nerve pain feels better, but side effects are so bad. My whole family says they don't know who I am, that I'm different. No one understands the pain that I suffer, the memory loss, the brain fog!!! It's all so bad.

Sep 24, 2014 6:33 AM

Did gabapentine make you gain weight just like lyrica? I'm currently on lyrica and im hating this certain side effect of it.

Sep 24, 2014 7:01 AM

I didn't notice an extreme weight gain with Gabapentin nothing like Lyrica! I'm just a moody stupid mess.

Sep 24, 2014 9:56 AM

I found the side effects with both those drugs wears off a lot in time. Six weeks or so after starting both those drugs and the brain fog and poor memory became a lesser side effect. However, with Lyrica I found the ringing in the ears and blurred vision remained. What does of Gabapentin are you on? I currently take 900mg 3x daily and don't have much side effects from that. I am soon to start taking 1200mg 3 times daily, which the doctor tells me is the maximum dosage permitted. I take that with 150mg of Lyrica twice daily and a bunch of narcotics too.

Sep 24, 2014 6:55 PM

I take 500 mg 3x daily. I'm tryingto go to try to lower it to 300. I tried it today bug found I needed more hydracodone. My Dr. will only prescribe me 5/325 100 for a 25 day script. I honestly have to take 10mg sometimes. So I have to carefully ration them. He is very cautious about prescribing narcotics, which I appreciate. He said he doesn't want me to go down a slippery slope. I have a brother who has ruined his life with pain meds. It's so sad. I also can't manage my pain though. Sometimes I feel like I have a piranha chewing inside my back My fibromyalgia is extreme! I also have carpul tunnel and osteo arthritus in my hands. Brain fog and short term memory!!!! OMG. I have ADHD....I take Gabapentin....and have fibromyalgia....All of which cause short term memory. The joke is I'm like Dory from Finding Nemo

Sep 24, 2014 11:18 PM

Hey! I've found a friend lol! I've bin taking anti-convulsants since I was eight for my epilepsy all, or most of which cause memory loss to some degree. Gabapentin falls into that category although it is used a lot for chronic pain. I also take 300mg x3 3x a day for pain, but I don't think I've experienced any side effects, that I can remember anyway!!! I also take Bu Trans morphine patches I have had side effects from them but very few considering. Just a few problem problems with my asthma at first and of course I'm even more dopey now than I was before! xx

Sep 25, 2014 10:06 PM

I've been on Gabapentin since July and don't have any side effect, but to be honest it isn't working at all for my nerve pain. If it works for you guys can you tell me what dosages you are on. Im on 300 3x daily so idk if it's just not enough or it really isn't working for me.

Sep 26, 2014 7:14 AM

300mg 3x times daily is a very light dose. I was told by my doctor that 1200mg 3x daily is the maximum amount. I am currently on 600mg 3x and working my way up to 1200mg 3x. Right now I combine the gabapentin with Lyrica but when I get up to the maximum dose of gabapentin I will be totally off the lyrica as I did not like the side effects of that drug

Sep 26, 2014 10:37 PM

I'm taking 500 mg 3xs daily still a little pain. Side effects are no short term memory! I mean none! I stumble a little and mix up of words!!!

Sep 28, 2014 8:08 PM

The gabapinton family drugs are bad for memory loss losing where you are or who you are where your going ect. I was on I th before but I would rather do the pain. Meds

Oct 13, 2014 12:06 AM

600mg 4 times a day for me...works to a point...bad brain fog tho wow

Oct 13, 2014 2:25 AM

I'm on gabapentin for my fibromyalgia. Does is cause blurry eyesight at all... My short term memory is gone too. Is this the fibro or the mess.?

Oct 13, 2014 2:43 AM

Or the meds I ment lol

Oct 13, 2014 6:52 AM

I too take gababentin 800 mg four times for my back pain hip pain it makes my brain fog and I am a sob to be around for hours after I take it but my real question is the narco 10/325 don't seem to work anymore when I go to my doctor what should I tell him i need to take or that seems to help I don't want to go backwards and be in a lot of pain till we find something that works come on I need some in put here from non family members who judge me as a addict to pain meds

Oct 13, 2014 10:45 AM

ugh how family judges!

Oct 13, 2014 11:25 AM

yes family members realy judge like what are you takeing that for are you loaded and if they go to the docs it's like doc he don't need that he just gets high with them he can get by with Motrin and then they take all the Motrin and then lie about it lol but I got to love em.

Oct 13, 2014 1:25 PM

I am on gralise which is an extended release form of gabapentin. I take 1800 mg 1x a day at dinner. I increased the dosage slowly over about 30 days. I've been on it now for about 2 months and the brain fog is gone. I've also lost a couple of pounds.

Oct 13, 2014 7:17 PM

Nana- is it helpful?

Oct 14, 2014 5:13 AM

Tramadol hydrochloride 100mg 3x a day with the gabapentin and a small dose of amatripterline I find works well in completely dulling the pain but makes me so tired and sleepy.

Oct 14, 2014 8:57 AM

I've been on gabapentin for a year now and side effects just keep getting worse. Brain fog something terrible. Medication induced ADHD (at least that describes it most accurately). Weight gain. Jittery. Rapid eye movement. Blood sugar drops severely within an hour of taking it. It just keeps getting worse but my Dr keeps me on it even though I'm still having horrible nerve pain and weird sensations in my leg. My mother constantly asks me "What are you on?" because of the way it makes me 'bounce of the walls', lose my train of thought mid sentence, and everything else it does. Dr says it will go away.... I've been on it a year and it's getting worse... So when does it go away?!?!

Oct 14, 2014 11:24 AM

jesswoo76 it seems to be a little. I have 2 herniated discs with one degenerating. I haven't had a day free of pain in over 20 years. it does seem to help me sleep a bit more soundly. sometimes that alone is good enough.

Oct 16, 2014 3:11 PM

Does Gabapentin make anyone else feel like their on a roller coaster at night in bed? even 300 mg made me feel that way. Last night was my second dose....600 mg, I was still a little spinning this morning. Tonight is my third dose, 900 mg...wow

Oct 19, 2014 6:20 PM

I've been told that Pregabalin might be a good way to help reduce pain.

Oct 19, 2014 7:44 PM

I'll definitely remember that, thanks!

Oct 20, 2014 2:10 AM

I don't know how it will be tomorrow but this is the second day on it. It will not last for more than 3-5hoursbut when it doe's it's taken away my pain

Oct 29, 2014 7:06 PM

I was on Lyrica for 2 weeks and had to stop because it gave my attitude quite a release! I am now on Gabapentin, and for these 3 weeks find myself in a bigger fog than ever (I take 90 mg of Aderall a day for ADD). I teach 8th grade, and love it, but have found myself not getting grades finished and am losing my temper which is something I normally don't do. I plan to talk to my Dr. about taking me off of it, even though I get some relief with it. Just not worth it!

Oct 29, 2014 9:08 PM

I'll definitely keep an eye on that. I just started on Gabapentin yesterday and had the best night sleep in 3 1/2 months. I felt like a new person this morning. But like you, I can't afford to loose my temper at work. I hope I will be spared from that side effect. I hope your doctor can help you with that!

Oct 29, 2014 11:24 PM

Since taking Gabapentin which I began on Oct 14, I have slept all night! Something I didn't do before because of the pain. Problem is it works, but I feel moody, angry at nothing during the day. I contain it but its hard. Terrible to have a med that actually helps me and this.

Oct 29, 2014 11:34 PM

I sated gabapentin in august, i take 300 mg in the morning and at noon then 600 at bedtime. I still only sleep a few hours at a time and run between a 7 and 9 for pain. I haven't noticed attitude problems. The brain fog seems to lessen the longer I am on it but then again fibromyalgia causes brain fog so hard to tell which one it is from. They increased my antidepressant when I went on gabapentin maybe that is why I don't have the temper flares.

Oct 30, 2014 7:19 AM

I take Gralise which is a long lasting form of gabapentin. I take 1800 mg (worked up to that dose over 2 weeks) after dinner and that's it. The fog lifts after a few days and now I have no probs at all with it.

Jan 21, 2015 3:57 PM

Anyone that had brain fog/ memory lots dye to Gabapentin just incase you don't know why. Gabapentin works by stopping the brain from making new pathways, to put it simply. Just came across this and thought I'd say

Jan 21, 2015 9:06 PM

Reece where did you find that info? My doctor just wrote an Rx for gabapentin for me today, 300 mg, 3x day. But the fog & losing your thoughts midstream has been going on with me for years. My husband now has to fill in my "blanks" when it happens in front of others.

Jan 22, 2015 1:08 AM

I've been on gabapentin 3600 mg a day for years and now my doc just took me off that and put me on Gralise, which is gabapentin ER basically. Like NanaC, I'm still working up to the highest dose of that.

Jan 22, 2015 1:27 AM

I tried taking Gab one time during the day and i was grouchy too. I just wanted the feeling to go away. Cant tolerate it while im awake. I do however take it just before bed and it does help with sleep.

Jan 22, 2015 9:22 AM

I slept pretty good last night (1 st dose) but I'm dragging today after sleeping 1 1/2 hour longer than normal. I have pain for sure, but I don't know if I want to sleep my life away.

Jan 24, 2015 9:21 AM

Hi guys, sorry I've been having a bad flare up again! 😵😭 I got this info from my own research and from interpreting clinical trials (ooooh don't don't i sound smart XD ). Simply put both Gabapentin and Pregabalin work by attempting to prevent the creation of new pathways in the brain. It's because the brain has to work much harder to create these pathways (which allow you to remember things long term) that some people get memory side effects

They are very interesting and intricate medications. If you want more info on any medicine (including this one of course) just let me know and I'll do what I can.

Jan 26, 2015 12:25 PM

I have had great results with Gabapentin for fibro and chronic neck and shoulder pain for disc degeneration/removal and fusion. 300 mg 2-3 times daily. Keeps my skin from crawling and eliminates my muscle spasms..I have been taking for about 2 years off and on..if i quit taking it, I can tell the diff within 2-3 days.
Lyrica made me sick and made me feel like I was in space. Couldn't take it and function.
Its certainly worth a try, maybe start on a lower dose first.

Feb 03, 2015 1:57 PM

Got ddd (digenerative disc disease) 3 degenerate discs causing daily pain and trouble with bowel movements causing fissure and hemerrhoids.
Put me on gabapentin 3x100 to build up to 3x300 etc
But my brain keeps stalling, trying to learn forex so I can work from home but I keep failing causing more depression. One big mess

I don't know if being on the meds helps really especially if I am trying to learn stuff.
Should I come off them to learn things?

Feb 11, 2015 3:59 AM

I recently asked to up my Gabapentin because I tried coming of my afternoon dose (to make sure it was working) and discovered it was more helpful than thought and may improve my QOL if i up it. So i asked and got meet by a resounding and strong "No, I strongly disagree and we aren't upping it adding any meds ever ". Oh yay

Feb 12, 2015 9:43 AM

I've been taking my gabapentin for just a week now. I got up at 8:30 and its now10:40. I feel like my head is floating around above my body. And when I'm walking and turn a corner, or turn my head to the side I get dizzy. Is that normal? I'm suppose to take 300 mg, 3x a day, but because of how I'm feeling I've only taken it at bedtime.

Feb 12, 2015 10:08 AM

Personally I have adjusted to gabapentin really well, I am tired and drowsy for 2-3 days every time I up my dosage, but then I adjust and feel normal. I would definitely recommend trying a new (or first) dosage for at least a few days or even a week or two before giving up on it - give your body some time to adjust. It will be worth it if it helps the pain! I have never had mood swings or any memory loss, trouble thinking, etc. I think the very first time I took it (one 100mg pill at bedtime) I felt dizzy the following morning, but only for an hour or two. Since then (that was almost 2 years ago) I have worked up to 3600mg/day and have no noticeable side effects.

@reecebrown1 - How much are you taking? There seems to be some very different opinions amongst doctors as to how much the "max" dosage is. Up until very recently I was taking 3600mg/day and the doctor that originally prescribed me said he had some patients on 3x that much. My PCP however acted shocked that I was on so much, but ultimately deferred to the prescribing doctor. I have also had a few nurses say the dosage I was on was considered the max. It is supposed to be a very safe drug, so if you are tolerating the side effects, I would get a second opinion from a different doctor, especially if you think it's helping your pain!

Feb 12, 2015 1:39 PM

Thanks Amailia, that's reassuring. I actually planned on giving it a 2 week or longer on just the 1 pill before adding the second, and eventually the third dose. I react really strange with many meds; allergic to 15+. Thanks again!

Feb 12, 2015 5:04 PM

@Flappys I felt strange when I started on the gabapentin also. I was originally @ 300mg 3xday now on 400mg 4xday. My pain Dr had me start with one @ bedtime for a few days then add the morning dose then the afternoon dose... All several days apart so my body could adjust.

Feb 12, 2015 5:12 PM

Thanks Hornsholdmyhalo, that's what I figured I would do, except I was planning 2 weeks between additions.

Feb 12, 2015 7:31 PM

Flappyslady are you sure you aren't another version of me? We seem to have a lot of similar things going on. :)
I've been on the gabapentin for a week and noticed something you might be interested in: I'm on 300mg 3x/day. I get really super dizzy from it too. But it seems that taking it before it wears off (closer doses) keeps me from getting as dizzy. When it has been a long 12 hour night between doses is when I get most dizzy and loopy. It's still a theory here. But it's an idea you might try.

Feb 12, 2015 9:41 PM

I'll keep that in mind. There's an old saying "everybody has a twin somewhere," so maybe! Lol

Feb 12, 2015 10:49 PM

With my increased GABA Flappy I got dizzy. I'm on my 3wk of increase and its subsiding. Interested if you feel more relief.

Feb 13, 2015 8:10 AM

I sleep better, without tossing & turning as much. Coincidentally my psych doc ran blood tests and said my antidepressant was too low, so he increased it to 50 mg (old school Pamelor). He actually said because it works for me he doesn't want to change to something else. During the day my usual morning pain isn't as intense, except this am (temps dropped). I am having real bad cramping/drawing up of my hands & feet, but that's been going on for the past year. I'm only in my first week, taking it at bedtime. Next Thursday I'll be adding a second dose.

Feb 13, 2015 11:12 AM

What about tramadol?

Feb 13, 2015 12:12 PM

My PCP doc kept increasing my Tramadol until he had me to 300mg extended release. That backfired with multiple side effects so he dropped me all the way down to 50 mg, 3x day. I can't really tell it helps any pain...just causes worse fibro-fog.

Feb 14, 2015 10:52 AM

I did ask for a second opinion but was turned down because "we don't have a service for adolescents or the expertise to treat this patient" in the letter they also recommended a hospital in bath, uk which is 2hrs 15 mins + traffic to a patat barely manages 20 mins of travel. Does anyone know about pain management up there is it really good? If it's that good I'll risk the pain induced shock and passing out

Feb 15, 2015 8:32 PM

Reece, I'm not from the UK, but sometimes I've had to travel 3-6 hr for expert treatment. Do your research and it may be well worth the time effort & travel. Good luck!

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