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gabapentin and fibro

Jan 10, 2015 4:44 PM

I recall some of you discussing different meds and specifically gabapentin. Does this help for any of you with fibro pain?

Jan 10, 2015 5:27 PM

I got put on it last year to take care of the nerve pain I was having but unfortunately it made me too sleepy. I only got up to 300mg which made me more tired and sleepy during the day than I already was feeling. I still take it but only 100 mg at night and it helps me get back to sleep fairly quickly from my frequent wakings. I take tramadol ER and cymbalta daily which helps a fair amount for fibro and back pain. I still have some pain daily and a lot of pain some days when I take more tramadol and zanaflex but I think the regular meds help my serotonin level stay at a healthier level and keeps my spirits more positive than before.

Jan 10, 2015 5:47 PM

My dr brought up gabaPentin this week. I'll have to look into it.

Jan 10, 2015 5:52 PM

I was on cymbalta for a year when I started having bad side effects. But they were nothing compared to the withdrawals from it...so beware anyone coming off cymbalta. Of course it could be because I'm extremely sensitive to &/ or allergic to many pain meds. They think its because of the gene dfect of not metabolizing meds & vitamins. Now my doctors don't want to give me anything for pain except 50 mg tramadol every 6 hr. I'd like to know about the gabapentin & other possible alternatives.

Jan 10, 2015 6:24 PM

I take 600mg Gabapentin at night and after a really bad day 900mg. It helps me sleep more soundly and get back to sleep faster if I do wake up. It definitely helped with my nerve pain. I know it doesn't work for everyone but I'm happy with it.

Jan 10, 2015 6:39 PM

My Dr started me on a low dose too. 100mg up to 300/mg per night. New meds make me nervous but I need to sleep. So tired of the shooting pain every night waking me. I'll give it a try but am not very optimistic sorry to say.

Jan 10, 2015 8:10 PM

Hey blessed.... gab has not really helped me as much as Lyrica did, butttttt... Everyone is different! Let us know how it works for you!

Jan 10, 2015 9:16 PM

Hey jesswoo! I will definitely let you guys know.

Jan 11, 2015 4:58 AM

I take 1800mg over three doses for daily pain and then up to 2, 200mg doses for acute pain. It helps me and if it helps you pregabalin may help even more. I Have no diagnosis still

Jan 11, 2015 6:18 AM

Well I can see why my low dose 100/mg did absolutely nothing last night. And I mean nothing. The pain was intense last.night and I kept waking... As usual. I will try 200mg tonight. Reesebrown I was just at Dr and he said.nothing about pregabalin. I will have to look into that. Thanks.

Jan 11, 2015 8:52 AM

Is prgabalin the generic for gabapentin? I am taking next to the lowest dose in that which is 300mg/2xday.

Jan 11, 2015 2:19 PM

I take gabapentin 300, 300, 600 per day. It doesn't make me tired and has brought the pain down from crying and moaning in pain all day barely able to get up to more mobil. It hasn't taken away all the pain and I have to be careful with what I do or the pain goes up.

Jan 11, 2015 4:13 PM

I have been taking 100 mg of Gabapentin three times a day for about a month and a half. It took 3 weeks to get up to 3 times a day. I was warned it would take some time to see results. My pain has reduced. As anyone who has had Fibromyalgia for a while knows things sometimes seem helpful in the short term but do not realy do much in the long term. I am waiting before I get too excited. My Dr and I will review it next week. Wishing you all well.

Jan 11, 2015 4:45 PM

As fibronorth said it takes a long time to get on Gabapentin and to answer everyone's question "Pregabalin" is also known as "Lyrica" or "Nervalin" and blessed if Gabapentin works it would definitely be something to try. Pregabalin is a derivative of Gabapentin and works in an almost identical way. Pregabalin is considered to be stronger and give better relief but also have a higher risk of side effects so they try Gabapentin first. Blessed do you have kik or snapchat or WhatsApp, email anything? I'd love to help. They refused to give it to me though :(

Jan 11, 2015 5:40 PM

Hi,
I used to be on Gaberpentin, but my pain doctor changed it to pregablin, which works really well for me. On Gaberpentin, I just felt sort of 'spaced' out and not really with it, I didn't care about anything I felt so dosey. But on pregablin it helps my pain and also I actually feel awake! Which is a lovely feeling after feeling so not with it before.
Hope that helps. Good Luck.

Jan 11, 2015 6:06 PM

I My Dr said I could take gabapentin on an "as need basis" for pain. Does anyone else take it this way? And does it work? I thought it was an rx that needed to get into your system in order for it to work. As I am typing this i feel kinda spacey cause to took 200 mg of gabapentin. But no relief from pain.
Thanks all for all of your input!

Jan 11, 2015 6:11 PM

OK, just saw your post fibronorth. Looks like gabapentin took some time for you to see some relief. So I think its strange that my Dr said I could take it in an "as need basis"....

Jan 11, 2015 6:27 PM

Yeah, I definitely don't think this is one of those as needed drugs. And I'm certainly better off with it than without it. It took about two weeks for me to see a difference.

Jan 12, 2015 12:12 PM

It is nor a PRN (doctor word for as needed drug) in fact it is usually spread over 3 doses a day and slowly invading dose often to 2.2g total but to a maximum of 3.6g

Jan 12, 2015 5:22 PM

I have found some relief with gabapentin. I read that company pamphlet to the doctors. It said that the maximum dose is 2400 mg over three Times a day. They have gone significantly higher. But they saw no indication that it help any better. I found that it is not a drug that can be used as an as needed drug. It definitely has to build up in your system. I feel it has no effect on me if I take it just when I'm in pain. I hope this helps.

Jan 12, 2015 5:54 PM

Thanks all for your experiences and input. Who knows what my Dr is thinking. I am bummed though as I was looking for something that.I could take on as needed basis. I also see that people have had problems with their hair falling out. ( due to gabapentin) I definitely do not need that as my hair is already having its problems of its own.

Jan 13, 2015 8:59 AM

The maximum rise us 3.6g or 3600mg profiler. I've quadruple checked now lol. I have access to BNF (British National Formulary) the thing doctors use in the UK. Hope this helps :)

Jan 14, 2015 9:46 PM

I take gabapentin I dont think it help for any type of pain but my doctor want me to keep taking it why I dont know

Jan 15, 2015 7:56 AM

I take gabapentin, 1200mg 3x a day so 3600/day for nerve pain related to a pinched nerve at L5/S1. At first I did not feel any relief, however after increasing slowly to this dose I finally think it has started to help. Each time I increased the dose I did feel drowsy for a few days, but my body has acclimated to it alright over time, though I still have pretty low energy.

I recently had surgery, however I am still getting symptoms. I am thinking about slowly backing off the gabapentin to see if it is actually helping or not... maybe I will gain back some of my energy. I thought I was still on a low dose, the doctor that prescribed me said he has patients taking upwards of 20,000mg/day or more, I don't remember exactly what he said, but it was a lot. Sounds like that may not be a good idea!

Jan 15, 2015 5:14 PM

Sounds like your Dr is trying to use it as a placebo.. Expecting you to go back and say that taking it as and when is working when in actual fact, it won't. Confront him about it, say you've read it's a repetitive drug and why would he not prescribe it correctly?! Waste of medication and time, not to mention improperly used drugs floating round your system. I'd be afraid of a Dr like that! Mucking about with nerve drugs.. Irresponsible

Jan 19, 2015 1:47 PM

I take Gabapentin 600 mg 3 xs a day. I just had to up it. Due to increase in nerve pain!!! My Dr. Said 1800 a day is the dose people find most relief at. 1200 a day worked well for me for a while. They like to up it slowly. It does take a while to work. It is something that builds up or works over time, not as taken. Something that helped me greatly was Cymbalta, think I mentioned a long time ago about the central nervous system and depression being similar signal, therefore certain anti depressants really work well in helping with pain. One benefit is they are neither addictive! :)

Jan 19, 2015 1:49 PM

I use a roll on like Icy Hot also but it's called Stop Pain best I've found yet. I use Icy Hot patches and a tens machine also! It's a lot to manage but, we have no choice.

Jan 19, 2015 5:11 PM

I do not have much better relief with Cymbalta. I am going to try and go up on GABA- only at 300mg 2xday. Lyrica was the best. It is interesting how we are all different with what works! Someone had mentioned 2 goats cream- that does nothing for mr, but tiger balm is helpful. Weird

Jan 19, 2015 5:31 PM

I tried 2 Goats too. Did nothing. At least it smells good! Jess you mentioned tiger balm helped. Did you use patch or ointment? Wondering cause as you mentioned we get relief in different ways. my shoulders are the most painful for me so a patch would be hard to apply.

Jan 19, 2015 7:35 PM

Dear all!
Hope you're all coping with the pain.
I've just been prescribed Lyrica for my condition (thought to be fibromyalgia).
I heard from many people and even from the doctors that I am too young to have that.
I'd like to know your ages if you don't mind.
I am 27 and suffer from these chronic pain for the last 6 years.

Jan 19, 2015 7:38 PM

I am 54 and was 51 at diagnosis, but 48 when symptoms started. My cousin was much younger when hers started after an accident, 32.

Jan 19, 2015 9:35 PM

I was young-25 diagnosed and I am 38 now. Always was a "sick" kid- more and more pain as I past the age of 22. Blessed- do the balm. I also by a salve from an all natural company. It is comparable to the price of tiger balm and I really like the smell and feel of it.

Jan 19, 2015 11:42 PM

Blessed, my shoulder blades feel like someone is branding me, sticking me with pins, and my muscles feel like rubberbands ready to snap. When you feel the relief of patches girl, you work it out. I will slap them on my back and rub it against the wall. I'm sure it looks really funny! I use icy hot xtra lrg. I put 2 to 3 they cover most of my back. My sides have bad nerve pain also I have actually had 5 at a time on. Be creative :).

I'm up this late because I'm trying so hard to clean my living room. It will probably take me 5 xs the normal time, I will pay greatly tomorrow at work. I will do it though, I hope! I'm hurting pretty bad!!!!

Jan 20, 2015 1:05 PM

Hey all! Jess I actually had a large tiger balm patch in the drawer and put it on last night...maybe a little relief, when I get home I am going to try again. So thanks for the idea! I am all into natural (@ this point anyway) so any natural stuff I am interested in. Cspinelli, you had me cracking up with the visual of "slapping it on and rubbing against the wall'! I will laugh again tonight as I slap that baby on! Thanks for the smile, you don't know how bad I needed a smile...
Nayvan, to answer you question. I am 47. Pain started when I was 45. So yes you are very young, but unfortunately fibro doesn't care how old or young you are. Hopefully you can get some help from a caring and knowledgeable Dr. Sure will be thinking bout cha....

Jan 20, 2015 2:43 PM

Blessed, I have tried Traumeel gel/ointment with good results. Have found it in health food stores and Whole Foods

Jan 20, 2015 4:20 PM

Either on the NIH or National Rheumatollogy website they have an article about juvenile fibromyalgia.

Jan 20, 2015 5:55 PM

Sandibeach, thanks! I found the traumeel ointment/gel online. I will try it...

Jan 20, 2015 10:49 PM

Welcome, hope it helps you some!

Jan 21, 2015 8:30 AM

Nayvan, I have not been diagnosed with anything yet (1y 6m down the line) but I've had this pain since I was 14y 4m. I am now 15y 10m and only getting worse, unfortunately you're never to young for pain, depression even death. I have pain from a very bad car crash and problems all my life (Autism and mental health problems)

Stay strong and never give up.
I hope for you it will soon end

Jan 21, 2015 8:46 AM

Look up fibromyalgia in adolescents and young adults. No one is too young! My neuropsychologist said fibromyalgia is a major neurological disorder.

Jan 09, 2016 3:46 PM

I was on cymbalta and it did nothing for me. Then they gave me gabapentin which helped some at first but after being on it for a year it dose almost nothing for me. And my doc said he can't up the mg any more.

Jan 09, 2016 5:18 PM

Gabapentin is the generic for neurontin, it did nothing for me except cause my weight to shoot up fifty pounds in four months. Scary fast.

Jan 10, 2016 12:53 PM

Crazy it did the opposite for me I'm losing weight on it

Jan 10, 2016 2:15 PM

I take 2400mg, I need it to stop my muscles cramping and seizing up. Also helps with my epilepsy. Bringing the amount down at the moment, but if it gets as bad again, I'll have to go back up

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