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Gah a 22 year old shouldn't be in this much pain

Apr 21, 2017 12:22 AM

I feel like every move I make just makes my fibromyalgia worse. When the weather gets cold outside I can barely walk without bursting out into tears. The constant migraines and stiffness are definitely getting on my nerves today.

Apr 21, 2017 2:02 AM

Chin up I'm only double your age an I feel At times it's not fair but this is what life has dealt us all on this site pain pain an more pain just take each day as it comes an do what you can An remember tomorrow is another day πŸ™‚πŸ™‚

Apr 21, 2017 2:26 AM

Awe thank you!

Apr 21, 2017 7:49 AM

I get this frustration a lot. I've had body aches since I was about 10. My mom has fibromyalgia and I have a lot of the other symptoms. We're working on a diagnosis. Everyone tells me my back hurts because I need to lose weight or I need to exercise or something but I gained weight after I started having aches. I also have asthma which makes it harder.

Apr 21, 2017 7:51 AM

Yeah it's really hard. I unfortunately used drugs to help the pain and that made it ten times worse.

Apr 21, 2017 7:57 AM

I've used painkillers to soften the blow when it gets bad. The lady at the clinic in my high school gives me weird looks when I go down there because I do often. I think she thinks I'm an addict or something.

Apr 21, 2017 8:17 AM

Yeah my ex told me meth and heroine would numb everything yes it's true but it ruins your ammune system and I I was originally 174 pounds and went to 102 pounds in two months. Yeah you can't feel the pain but you can see the pain on the outside. When you don't eat or anything like that once you quit your fibromyalgia is ten times worse. There's days where I can't even hold down any food. I constantly am dizzy. And the migraines are unbarable that's why you shouldn't use and drugs to help opiates that are percribed is one thing but never abuse them even if it hurts because addiction is even worse.

Apr 21, 2017 9:36 AM

Yeah I was thinking of just taking painkillers regularly every day but I didn't for the same reason.

Apr 21, 2017 12:39 PM

Routine pain killers when you have pain is not an addiction. When you use it to alter a mood or recreation that's addiction. Using legal drugs for your pain is acceptable until you've added other modalities to your pain program. Sometimes it takes a while to transition off the opiate pain killers but all this is normal & I don't recommend suffering with pain when you have meds available. Just saying😊

Apr 21, 2017 2:08 PM

That is true :)

Apr 21, 2017 2:29 PM

I am 22 myself and I struggle to get my head around the fact that I'm practically immobile somedays. What will I be like when I'm older? It is very depressing, I can relate.
Much love πŸ€—

Apr 21, 2017 4:30 PM

It's awful adding epilepsy doesn't help my situation either.

Apr 21, 2017 4:54 PM

Im 22 as well and I feel you! It so sucks. Some days I feel like I have the life stolen from within me. I had to miss my dance class and work yesterday because I could barely get out of bed and just kept crying because I was so sad. We'll get through! We're young so hey maybe that means they'll come really far in helping those of us with chronic pain in our lifetime :)

Apr 21, 2017 5:22 PM

I feel the same way. Like my life was stolen right out from under me. I don't even feel like myself anymore. I'm a bit older than you, 31, but I feel like I should have so much life left. I'm finding it really hard to have any hope about the future since my symptoms seem to catch up with anything new thing that I try. I wonder if I will ever be a whole person again, or do I have to settle for this new, useless version of myself. Sigh.

Apr 21, 2017 7:26 PM

How did yours start I fell down stairs and it set my fibromyalgia off

Apr 21, 2017 11:33 PM

I think it was all of the trauma coming to a head that sent it on overdrive. Three back-to-back traumas in 18 weeks. And then lots of crap in my childhood.

Apr 22, 2017 1:01 AM

I think mine was a car accident followed by a roommate bailing 3 days before the move, my ex cheating on me and subsequently having to move back home all within two and a half weeks that set it off for me. Does anyone else feel like their fibro gets 100x worse during/before their period?

Apr 22, 2017 3:09 AM

Hi everyone! I've posted about this on other threads, but I want to make sure everyone has a chance to see my message about the Facebook support group that I am admin of. It's a support group for anyone who lives with chronic illness or chronic pain of any kind, or for those who love someone who does. The group is called "Coping with Chronic Illness/Pain", and the url/link is: https://www.facebook.com/groups/880299938751016/

Apr 22, 2017 5:55 AM

My pain started getting bad when I was 13, I'm 28 now and it only gets worse. Genetic lottery. It's hard to explain a pain scale to people who don't have chronic pain. I get to a 10 and start throwing up or blacking out, most People never go threw pain that bad so they just don't get it is hard. Find yourself a good pain doctor, a bad one can ruin your life but a good can save it. The meds are hard, but so is the pain. I never used Heroine or Meth but I know many friends who have and it fries your nerves which is why your pain got so much worse. I've been on narcotics for over a decade now and the trick is to alway take as prescribed and take it as needed. Find a doctor you can trust and take the meds exactly as he tells you. The right medication combination makes such a difference. Taking a slow release and having a fast acting helps me. My slow release is Nucynta and I really recommend it, honestly changed my life. It's a synthetic opioid so if you accidentally run out you don't go threw withdraws, it really helps the pain but you don't feel the same high feeling. It's hard and sometime feels hopeless but stay strong!

Apr 22, 2017 8:32 AM

I started with the pain at age 12. Back then they labeled it growing pains. I am 57 (or is it 58... I forget) now. If it's growing pains I should be a giant if Goliath proportions by now. Lol. Over the many years of dealing with this I have gone through different stages. Sometimes it felt as if I was steadily getting worse and hope was hard to find through the despair. Other times it felt I was in remission and I would think that perhaps I was misdiagnosed. Most of the time though I am somewhere in the middle until something sends me into a flair. For about 2 years I was pretty much holding my own. The pain clinic had me where I was pretty much keeping pain manageable. Back in September I was rear ended by a hit and run driver and while I wasn't really injured (in a normal persons reality) I was knocked off course and starting over with trying to find my new middle ground.

All that to say Hang in there. I know some days it looks pretty bleak. Take time each day to count your blessings. You may be surprised how many you have. I also try to do random acts of kindness. May be something as simple as sharing a smile. Or holding a door open for someone.. or even just taking a moment to compliment the person at the store who is ringing up your purchases. They don't hear thank you often enough. Or compliment someone on - well, anything. :) it not only helps to lift my spirits but hopefully it helped others to have a better day as well.

Apr 22, 2017 8:44 AM

Shea.. not sure if you have a migraine tracker or not. I use my migraine buddy. It has helped me to not only track my migraines but through charting it's helped me identify things that could be triggers as well as things that could be warning signs. I often get that feeling like I walked into a spider web all over my face. Didn't realize that could be a pre-curser to an onset of a migraine until I joined the migraine app.and started paying attention to those things. My pain clinic just started me on Vapamil. (Not sure if that's the right spelling) for a preventative. I still wake up every morning with a migraine but they aren't as intense and don't last as long. (Although I am never without a headache).

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