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Jan 02, 2016 4:51 AM

I believe I did t his ro myself. Fibro started after my surgery, had Fusion in my neck also. So I feel awful, pl I s I struggle with Bipolar. Not feeling strong and empowered
I have a job , stressed out. Need to focus on feeling good and I have a terrible FI attitude. I take a lot of meds with minimal relief. Lyrica is helping but the edema is terrible. Anyone know of another med similar to Lyrica, but without side effects? .

Jan 02, 2016 4:28 PM

Hey, Newty! You can't do fibro to yourself sweetie, sorry it doesn't work like that. I don't have fibro but I do know a lot of my pain warriors that do. So hang in there and you will get a reply...love and blessings, Terri

Jan 02, 2016 9:33 PM

Welcome Newty! Fibromyalgia isn't something we do to ourselves. It's typically a response from our bodies to (1) genetic predisposition, (2) trauma or major illnesses or surgery, (3) because we have autoimmune issues already. There is a lot of info available such as
www.fmnetnews.com

www.living-smater-with-fibromyalgia.com

www.butyoudontlooksick.com

I have fibromyalgia, having symptoms as early as 2007, although I wasn't officially dx (diagnosed) until 2012. I went through sinus surgery, foot surgery, and a major 5 in 1 surgery of my abdominal/female/intestines in 2010. My bloodwork was high in inflammation and other signs of problems, from 2007-2008 until this year. The foot surgery I had in 2007 was not easy to get over, but the 2010 surgery has caused so many other problems that I'm unable to return to work. Originally I thought my fibro was likely in response to the stresses of surgeries so close together, and the large mass removed in 2010 that caused damage to other organs, requiring constant treatment and more surgery. It was simply too much stress on the body.
I also have a second factor in play for me. I was dx with hypothyroidism & Sjogrens last year, two more autoimmune diseases. Hypothyroidism runs in my family, predominately in the females. Then there is the genetic factor in play for me as well. On both sides of my family I have a first cousin who has been officially dx; one after a bad auto accident, the other after major surgery. They were both in their 30's at dx, I was 50, and we are all females. One of my older sisters may also have it, and the other sister is being tested for Sjogrens. In putting all these factors together, I'm guessing mine is most likely genetic predisposition, which was triggered by the surgeries.

I have DDD, OA, facet stenosis, and other spinal issues, following 2 neck surgeries. I have neuropathies in my hands and feet, and more damage to my spine, all the way down. They won't do surgery because the risk of paralyzation is worse than the benefit of gain. I have a pain specialist who provides some relief with epidural steroid injections (ESI's). I went through my last series of injections in Jan 2014, and I just started having symptoms bad enough to go back for more ESI's. If you don't have a pain specialist if suggest you get one. I also have a rheumatologist & endocrinologist. I have a psychiatrist who provides anxiety & antidepressant meds, along with a psychologist who is helping me come to terms of my "new normal life." It's a good idea to have a group of docs who listen and are supportive, wanting to help you; it's actually vital to your alp around health. If a doctor isn't helping you or has an "it's all in your head" attitude, then find a new doctor.

When I left work in 2010 for surgery I expected to eventually return to work, but instead my health has tumbled downward. It wasn't until Fall 2014 that I accepted I wasn't ever going back to work. Then in 2015 I had the sjogrens, hypothyroidism, memory loss/dementia, and tremors compound it, needing a cane, walker or electric cart to get around. It's been a very stressful 5 1/2 years to this point. That's why I started psych counseling in November.

And there are others on here that have it lots worse than me. But I think we all agree that it's not what we have wrong, but that we have a good support system to help us learn to cope. Being thrown, fast or slow progression, from a healthy body to constant chronic health issues is a shock to the body, mind, ,& soul. We must grieve for what we lost in the process of our health before we can come to a point of acceptance of our "new normal life," which then leads us to a direction of "Ok, so now what can I do and how do I accomplish it?"

Our community is filled with a variety of members with a variety of problems & treatments. We laugh, cry, vent, chat, express what needs to be, pray, and all without judging each other. We're a diverse group, and we all understand chronic pain, and that's why you'll find nothing but support here. You asked if there was an alternative to lyrica, and I was put on gabapentin. I haven't been on it long and I'm on a low dose of 200mg/day. I have terrible responses to a huge list of meds so they take any med changes slow with me. I also have 2 gene defects that play a role in that. I oppose you can find the support you need here, and I'm positive you will. We are all different, and handle things differently. My biggest help, to me, is my faith in God. I pray for everyone, and I'll add you to my list as well. Allow yourself to grieve your loss of your old self. And use this community. In many ways we are an extended family. (((Hugs))) & prayers! 😷🙏🌼

Jan 03, 2016 1:26 PM

Newty, I couldn't have given you more info than Flappsy did if I wanted to!!! Her and I have several of the same issues and we kid one another that we are twins separated at birth. The links that she provided are a wealth of information. I hope that you stick with us and keep us posted as to how you are doing. Hang in there!! Sending gentle {{Hugs}} and prayers that you get the answers you need to feel better.💕🙏🏻🌻

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