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Get one and another comes

Sep 15, 2015 3:20 AM

I've had juvenile rheumatoid arthritis since 2011, then I got something called mixed convective tissue disease, raynauds, calcinosis, and in April of this year I got avascular necrosis of my hips. It seems like I get one disease they all come gunning for me, but I'm still blessed so I'll try not to complain about the pain.

Sep 15, 2015 5:59 AM

Hiya Bri! Im on the rheumatoid arthritis/raynauds train with ya! Raynauds since i was 16 and RA since i was 27; currently 33.

Its very annoying and frustrating that often one auto immune disease comes along with others. From what I've read, there can't be many of us who have just one ailment in our medical shit storm.

I know people in my everyday life that have RA, many are family members and sometimes i feel like even they dont get it. They say they're ok when they are CLEARLY in pain from their movements. Anyone else ever notice how you can recognize pain in strangers just by looking at them??

Sorry, I got off track lol. I don't know if it helps them not to talk about it or if they think they're helping me, but because of they're lack of opening up it can make me feel alone. Im very open and try to be straightforward with my disease with people but not in your face.

My point ( there is one, I swear!) Is feel free to msg me anytime :)
I will never understand how much it must have SUCKED for you to go through high school and be around a bunch of self involved assholes (i am including my teenage self in that category as well) with such an awful disease, but I'll help you out in any other way I can. I need people that understand me too.

Hey, and sometimes complaining helps! You always have someone to listen in here.

Sep 15, 2015 8:58 AM

Adding another Aussie to the mix......Edge of the Mornington Peninsula, Victoria Australia

Sep 15, 2015 9:32 AM

SweetSassy, my raynauds get extremely bad in the winter. I've actually had 4 revision amputations of my fingers. It really hurts when they die, if u never went through it already I hope u never do.

Sep 15, 2015 9:43 PM

Frick Bri that's awful! Mine is definitely worse in the winter but has never gotten close to the point its done permanent damage.

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