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CatchMyPain Community and Pain Diary App to manage chronic illness

Getting a diagnosis

Feb 22, 2017 9:30 PM

I never knew it could be so hard to get a diagnosis. It's been 3 hellish years of constant pain, muscle weakness, migraines, meds and tests, and still...no awnsers. Watching House gave me slighlty unreal expectations of how hard drs would work to help me.

Feb 22, 2017 10:05 PM

I completely get it. I've had chronic hip pain for 8 years and have been misdiagnosed with several things. Finally, after seeing multiple Drs, specialists, orthopedic surgeons, and having several tests and medical imaging done, I've been diagnosed with a labral tear in each of my hips (which I'll need two different surgeries to repair). Labral tears are fairly easy to find and diagnose so this probably could have been resolved years ago. The health care system is beyond frustrating and I completely empathize with where you're coming from. If you ever need to talk to rant I'm here to talk! Hang in there, I hope you'll find some relief soon.

Feb 22, 2017 10:06 PM

And I'm also a huge fan of House!

Feb 22, 2017 10:21 PM

Thanks emrose. So far all i know for sure is my migraines are "intractable" and a recent visit with the rheumotalgist led to him saying i have degenerative arthritis in my spine. But no idea why for the migraines or other pain. Add fighting with drs and disability to that and its frustrsting. It was nice to find this app though, i love that it connects people.

Feb 23, 2017 3:45 AM

Go to the Cleveland Clinic. They listen and get to the root cause. I found a neurologist that listened and observed me having migraines and l showed him where they were occuring. He starting injecting the nerve. He showed me on a 3D image of the brain the nerve. I am having 10 migraines an hour. The injections are working and my brain is calm.

Feb 23, 2017 10:33 AM

I totally get it. My pain started overnight and I done nothing. It started Nov 3, 2014. Soo many emergency rooms, doctor, specialist...its now hard to trust a doctor and being looked at as if ur lying to get pain meds. In May 2016 I finally was diagnosed with ms. But NOTHING touches the pain. Im so sorry. Praying for you!

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