It's been a week of one frustrating doctors appt after another. Tuesdays PT session included increased weights and counts in exercises. Just as happened last Friday with changes then, I came home and spent 3 days trying to walk with my walker because my hip socket hurt so bad (to put full weight on the leg) that I couldn't sleep and couldn't use just a cane; 3 day setback both times. So today I went in and told her I could not and would not do the 8" step box because I'm positive it was the cause along with too much increase too soon. She backed off on some and even allowed me to skip a few exercises to see if it helps. I've been home from PT 3 hours and I'm already having hip socket pain. I'm using my hubby's Tiger Balm because lately it's been the only pain ointment to help with my joints pains, arthritis or otherwise. I'm frustrated because today was my 20th visit to PT (along with exercises at home) and I still can't walk without my walker (cane only) longer than 2 hours around my house. My surgery was in May for crying out loud!
Wednesday I found out I need an EGD to check the status of my barretts esophagus (precancer), but I expected that since he's done one yearly for 3 years. What I didn't expect to hear him say was there isn't anything we can do to help the bladder/bowel control/loss problems, due to damage in my pelvic floor muscles related to the 2010 pelvic mass surgery. After multiple treatments and testing it's concluded that I have non-reversible nerve damage (not spine related at all). Not only are bladder & bowel symptoms going to worsen with incontinence issues, but now I also have to watch for infections due to retention from inability to "go".
At another appt yesterday I found out the MRI on my low back shows no disc/nerve issues, but I do have bad OA in my lumbar-sacral spine & hip. But he can't explain the sciatica cause. Ok, I can deal with that just like I have been. Then thankfully (about time) I found out my 2016 C3-4 cervical fusion is healing, slowly 2/3rds. But the 2017 fusions at C7-T1 isn't healing at all; zero-zip-zilch. He said some long description diagnosis but all I caught was "atrophic" & "pseudoarthrosis," meaning (per the doctor) worse than just "failed healing" in a nutshell. It looks like I'm facing surgery again on my neck and thoracic in 6-12 mos bc not healing means the screws can come out and either go into my esophagus, or worse go into the chest cavity near the heart (life threatening). He wants to now do a MRI on my full thoracic area, due to what shows in the cervical MRI. He says I'm going to need rods placed to keep my spine from curving & collapsing forward abnormally. Ugh! Will it never stop?
BTW... if anyone who has had the rods put in their spine can share their experience I'd really appreciate it!
After seeing him I had an appointment with my psych doc. He flat out said, "No more surgery that isn't life threatening for at least 6-12 months, and I'd prefer you to be off the walker. You've had too much mental, physical & emotional stress over the past 4 years, from yours & your spouse & all y'all's parent's needs. You need a break and I'm ordering it!" I love that doc! He got me under my rheumatologist and my endocrine docs when my PCP wouldn't listen.
I'm praying God starts my spine healing & stops any further deterioration of my spine, or rather my whole body. The arthritis flare that hit in June with the Sjogrens-Fibro flare has not stopped in my left hand, it's worsening slowly. It's hard to stay positive under so much stress but I sure don't want to become negative, grumpy & bitter. When my hubby starts gripping about having peeing accidents I tell him "I'll trade you any day of the week...I'll pee & you can 💩 yourself accidentally!" Lol he stops complaining.
Ok, enough ranting. I'm going to find something funny to watch, or maybe even take a nap (since this weeks lack of sleep has me tired). Thanks for listening! Everyone have a blessed weekend with hugs love & prayers! 🙂❤🙏🌼