so i had a awful day on tuesday. managed to push myself though the pain and had a breakdown when i got to my car. doctor signed me off straight away when i went to see them. going a bit stir crazy. taken myself for short walks and ended up been exhausted. im wondering if i would get into trouble been seen out and about when been signed off? i physically couldn't work but short journeys out help and get me out instead of been stuck at home. (mental well-being and no good sat in pain the whole time) . i haven't actually been diagnosed yet.. but on my sick note it states fibromyalgia.
I'm so sorry to hear your going through all this. I too have fibro and it sucks. Moving around does help then you stop cuz your exhausted and the pain comes running back. I swear it's a no win situation. Try to stay calm breathe and focus on you. If someone sees you, so what who cares. Maybe they'll take the time to learn about fibro and understand. Movement is better that sitting at work all day. I'll be thinking of you on my walk today. Hugs 🤗 and positive thoughts and prayers coming your way!!🙏🏼😇👣👣👣👣
thank you for your reply :) stress is very high at the moment so I'm not suprised iv had a flare up. work does not understand which makes me feel worse, as they cant see it they dont believe it. yes i feel better with movement and going at my own speed. sitting does actually makes it worse! my dog, aria, gets me out and about else i would be severely depressed. been advised to get a new job or cut my hours x
Hi Leanne, I was meant to reply earlier but had to pick up my daughter and her friend and when I came everything disappeared (you'll find that happens if you leave it too long before coming back!) Well anyway..... What you need to ask your doctor is have they definitely diagnosed you with it? If they have then you need to get your doctor to put in a special measures letter to your work who will need to put it in place and/or involve Occupational Health. If they haven't officially diagnosed it then you need to ask them to or ask for a referral to rheumatology for them to diagnose it....My GP wouldn't dx it as she didn't want to give me the "label" but she had to refer me to rheumatology because of inflammation in my blood work and the rheumatologist dx fibro within 5 minutes before even doing an assessment! Go figure!!! Most places have to put in special measures with doctors advice and occasional health have to take notice as well but they'll want to do their own assessments and stuff but they have to follow the doctors advice.... Especially if you have a diagnosis
thanks sezzy for your reply. i have no definite diagnosis. im currently under a rheumatologist (for 2yrs now). my bloods came back as vitamin d deficient and inflammation. my vit d is back to normal (but im still super tired) and i still have inflammation. added problem with fluid on one of my sacroiliac joint. mentions spondyloarthritis. im due my appointment in april but i gonna need to ring them as i dont have my appointment yet! but they need to repeat mri and x-ray on my hips and spine. but it says iv only some symptoms of fibromyalgia. so before i get Occupational health i need this diagnosis. (in an ideal world i want nothing wrong with me... i don't want to have this.. i just want be healthy and be able to work fine 😔) they diagnosis me with depression aswell.. the pain finally grounded me down xx
Leanne the pain grinds us all down then we get back up and carry on until the next time it grinds us down!!! It's like being on a merry-go-round.....🎠 I hope you do get the dx just for the work front and yes I'm with you on the part of I want to be back to my fit, no pain mostly well self again but life has dealt us this so now we need to get on the best way we can without over doing it....Hahaha I do make myself laugh, as if I'll ever learn not to over do it!!!!
Problem is without rheumatology giving you a definite diagnosis your work won't really help unless they're a very understanding company and they will help you anyway they can (don't hold your breath tho!!!)
At my first rheumatology appointment a couple of weeks ago my rheumatologist gave a definite fibromyalgia dx and said that I most definitely have gallstones and if I don't it's a miracle! He also said my pain meds for trigeminal neuralgia are covering the symptoms of the gallstones and IBS and I have wear and tear in my knees especially my left and most of the other pain I get is the fibromyalgia but he couldn't understand why I have trigeminal neuralgia even after I told him I've had it 2 years now and it was triggered by a very stressful time. I don't think he fully understood what trigeminal neuralgia is, I'm not sure but he was dismissive about and not happy with the industrial amounts of pain meds I'm on. This bit I didn't like....He said fibromyalgia is a psychological condition caused by trauma especially in childhood and I need to see a proper psychologist to go all the way back to my childhood to talk it all out and that my mental health nurse isn't good enough to help me....Even tho she helps me immensely with my anxiety and depression, she won't be happy to hear that!
I think most fibro warriors suffer with low vit D, my GP prescribes me vit D capsules, I also take a vit B complex and magnesium supplements along with evening primrose oil caps (those are for my pmt, it's that bad that my kids know when I haven't taken it!!!). The vit D, B complex are to try and help the fatigue, that is one of the hardest things for me, that and the fog, and the magnesium is to help with nerve function but also relax your muscles. I've found that the magnesium supplements has helped with my muscle twitches, they're not as severe as they used to be but it takes time to get into your system. It took me about 4 or 5 weeks before I noticed the twiches weren't as bad. The dose that works for me is 100mg am and 200mg pm altho the label says 100mg 3 x a day. We're each different so our bodies will react to meds and supplements differently.
Sorry I'm doing this a bit disjointed but my daughter has a friend over for a sleepover and they keep interrupting me so I'm sending as they come so I don't lose what I'm saying!!!!
@sezzy Your rheumatologist actually said that fibro is a psychological condition question mark question mark question mark caused by childhood trauma! That's such a load of BS. Fibromyalgia is not a psychological issue I didn't have any childhood trauma. And I've had fibro 4 more than a few years but all-in-all if it was related to a childhood traumatic life shouldn't have got it all when we were children or teens or twenties or thirties?
Sorry to vent but with all the research that's been done with the neuromuscular connection and the huge fibro knots that most of us have how can he even begin to think that fibro is caused buy some mythical childhood trauma?
It's doctors like that that make the rest of us look like major drug Seekers😲😲😤😑😑😑😑
@PaisleyKaat I know and when I tried to question it he started going off on a rant so I dropped it, he'd already said I had another 3 things on top of the fibro that was going thro my head and couldn't cope with an argument about fibro being psychological! He said he didn't care what the guidelines say about fibro in his opinion it's a psychological condition.....He also said at another point that he doesn't have to read all the medical textbooks anymore which was good because they are boring!
He didn't discredit my pain, he said that the pain was real but would go away once I had talked everything thro with a psychologist....Which he said could take years and years and years!!!!
iv had loads of crap go on in my life. main one was i lost my brother when i was 13 (i never got over this). but i cant blame that. i was fine until 3yrs ago i got shingles then i fell down a flight of stairs (the fall could of damaged my si joint as i have fluid on 1). at first they thought i had postherpetic neuralgia as the pain was on the site i had shingles. they said all my pain could of possible been triggered by this but they dont know for sure. all i know that i was fit and healthy till i got shingles (i had major stress at the time i had shingles). after been off work my stress levels have dropped and my pain is no where near as bad still have my moments though and im still extremely tired. huge stress at work is my main cause of these pain flares :(