May 12, 2015 3:27 PM
I hope everyone is doing as well as they can. I'm not doing as well as I wish but I'm surviving. I saw my rheumatologist yesterday to follow up on the sjogrens test. I have to have a complete eye exam to make sure the back of my eyes aren't damaged, then I'll be starting on plaquenil. My husband and I were impressed at the time the doctor took to explain all the really bad things that we now have to watch for. Because Sjogrens is an autoimmune disease, I'll be followed yearly by the cardiologist, pulmonologist, urologist, optometrist, endocrinologist, and rheumy. I've been napping a lot due to exhaustion.
I was trying to use my tablet to continue tracking my pain but as mentioned below (letter sent to CMP) it takes to long and eats my battery. And my back pain won't tolerate sitting at the desk with my arms up & out for typing. The laptop is extremely too heavy for my lap! I've started using a different app to track my pain. I will come on now and then to read others posts and make sure no one is in a crisis. I will be praying for each of your needs that I come across in your posts. As I've often said, "When the going gets tough let go and let God have control to lead the way!" Good luck & God bless you all!
The following is part of a letter sent to CMP/Sanovation techs, who were trying to help get my phone app back operating properly...
"I still cannot use the app from my phone, and I refuse to burn my battery up using my tablet (costs 2-3x timespan), nor will I be booting up my computer just to track my pain, as it causes pain to sit in the chair with my arms up & out. Coincidence or not, as far as the CMP app not operating the very same day I began using the test app, I personally now believe its more than just a coincidence. This has now gone beyond frustrating."
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