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going though surgery alone

Sep 04, 2015 2:55 PM

Afternoon all.. Wondered if anyone has had to face the possibly of going through a surgery alone..in the since that your not gonna have anyone at the hospital with you.
The situation is I'm gonna be have multiple tumors to moved from my abdomen. 10 to be exact. Tumors are so large that I measure to be 8 months pregnant. But I'm not... So my family situation is one that my Dad and I r both very I'll he can't travel and now my sister is hurt and is handing to tske time off from her job now ans by the time my
surgery comes it won't be good for her to take more time off. My doctor is inba differnt city then i live. So im looking at being taken to the hospital but having to be left and have someone come.back to pick me up. Any tips

Sep 04, 2015 3:45 PM

Bring your phone ...do u have the app on it? we will ne here for you hun ..I've done a couple hospital stays like that where i felt completely alone cuz no one could be there but i brought my computer and talked to my friends and support groups .. it helped ...i know its hard and scary but you will get through it and i will be there for u as much as i can as im sure others will be as well! (((Hugs)))

Sep 04, 2015 3:47 PM

My heart goes out to you fibro!!!

Sep 05, 2015 3:25 AM

I am sorry fibro girl. I am sad for you. I can relate to how that must feel but I saw it through the eyes of a child. When I was ten, my parents dropped me off to have a surgery and told me to call when I needed a ride home. When the time came they sent someone to pick me up. The night before my surgery, I had my first panic attack. But maybe like most hospitals, they will have the Internet. Then you can connect to the group. And you will be able to talk to some people hear. That would help some. You could keep us posted and then we can encourage you. It is just a thought. I am sure everything will be fine. At least, instead of being like my terrible parents, I am sorry, they were, I am sure your family would like to be there for you. I hope all goes well. Best wishes. 😄😷

Sep 05, 2015 7:21 AM

Thanks everyone it makes me.feel good.to hear that I can come here for support. Yes it hurts even more. To know that strangers are more willing to endure with me them my own family. I don't fault them. I know its hard and all we do is talk about illness. For example my mom has asked me this morning if we could not talk about any of these issues today . she dies not want to deal with it. Of course I said sure. The funny thing is that not talking about it for me does not mean I'm not in pain. And on top of it. I'm bout to make her a big breakfast. Its ok.. I'll do it. Its my mom.. I sometimes wonder aboit myself .maybe I am just being a big baby. Maybe I'm focusing on the wrong thing. But oh well. Time to make breakfast. Have a safe and gentle day guys.

Sep 05, 2015 7:37 AM

Newfibrogirl, I'm so sorry you are facing this alone. I have had surgeries where I have been all alone at the hospital. I had 14 rumors in my abdomen and was going in to have them removed. My Father dropped me off and went home. My Mkm's theory was that I wasn't going to know they were there anyway and I said but what about while I'm waiting to go into the OR?? Since I already had over 20 surgeries at that hospital, several employees knew me and came to sit with me while I waited. It doesn't replace a friend or family member being with you. Actually, that morning, I drive myself to the hospital and then a neighbor was going to drop my Dad off to pick me up. If you have this app on your phone, have it with you. We will be here for you and try to bring you as much comfort as we possibly can. Hang in there. I'm sending you gentle hugs and praying that your experience is smooth and your recovery swift and complete. I wish you the best. 🌻🙏🏻

Sep 05, 2015 8:09 AM

I know how you're feeling. I will be going through an operation on my own in a few weeks myself. Good luck with everything & try to remain positive. 😊

Sep 05, 2015 8:18 AM

Alwayz - sometimes people rationalize things the wrong way to get out of something they dont want to or do or can't handle. When the people we love and need aren't there for us in situations like that we feel it .... especially when we are young.

Sep 05, 2015 8:25 AM

Linda, that is so very true!! I have to say that even at 50 years old, I still feel it and it hurts when I think back on it.

Sep 05, 2015 8:32 AM

I know what you mean alwayz! I like to believe its not thier intent when family and friends do dumb things like that but it doesn't lessen the hurt you feel and since they've already rationalized it they usually don't understand why you were hurt by it if you try to tell them it really hurt your feelings.

Sep 05, 2015 12:30 PM

Wow you really have your hands ful. The idea of having the group here for support is a good one. Let us know when your procedure is. I for one will be sure to be available. We are all in this together. We have your back. No one should have to be alone. Keep us posted so we can be on watch.

Sep 05, 2015 12:34 PM

Lmb..thank you ..I willkeop u guys in the loop.It means a lot to kniw I have a safe place to turn where I know ill be understood.
Alwayzinpain linda000 and everyone else ..thank u also. Thus groups is a blessing.

Sep 05, 2015 12:43 PM

Newfibrogirl, you're more than
Welcome!! I'm glad that you feel you have a safe place to turn when you're scared or mkt feeling well. We'll all be here to help you through this. With all of us, you'll never, ever be alone!!

Sep 05, 2015 1:23 PM

That really sucks. At my job I help arranges rides go people in similar situations. At least the ride will be with people who care

Sep 06, 2015 8:44 PM

Newfibrogirl, I know what you are feeling. Five years ago when I went in for surgery I only had my hubby with me I was terrified because there were two docs involved, a colon surgeon and a gyn surgeon; there was thoughts the tumor would be cancer. All of my family was on vacation, a big family gathering. My stepmom asked me to delay my surgery so we could go with them. I told her no because I was surviving on one yoplait a day. My hubby asked her to reschedule the vacation and she said no. The only family member to call my hubby to check on me was my oldest sister. It turned out to be benign but I also ended up five in one different procedures done to repair damage from the tumor. I wish I'd had this community back then! You will be in my thoughts and prayers, and we'll all be here for you! 🙏🌼

Sep 06, 2015 8:53 PM

Thanknyou flappys my mom has actually told me to push my schedule down pass my sister birthday. Which is next week mom.says I've been suffering for over a year one more week won't hurt... Ha...yeah..I'm.gonna leave it there.... But yes I'm really getting to a scary place with my emotions toward this whole thing but I'm still believing my family will come through foe me. But I'm certainly gonna have u guys with me. This groups is awsome.

Sep 06, 2015 11:02 PM

Fibro girl if u don't mind what city are you going to be in, if around me i would come visit

Sep 07, 2015 12:37 AM

Newfibrogirl, that is one thing you can definitely count on, that we WILL all be here for you. You'll have many people praying for you and also will be watching this post to check up on you. 💕🙏🏻🌻

Sep 07, 2015 11:39 AM

I went to surgery alone. Scary as hell because it wasn't a major surgery or anything. I didn't want my wife to wait for hours for nothing. Just be brave. I said a few prayer words before I'd actually passed out lol. Really weird waking up though.

Sep 07, 2015 11:53 AM

I go into the OR crying and afraid and wake up like gangbusters and am ready to jump off the gourney and pee so I can get the hell out of there. I had an 8 hour procedure done in NYC where they cut my chest muscle in half, took muscle and tendon from my left leg (so I was slit from my knee to my hip) and they grafted it and pulled it through incisions under my arm and then grafted it down my back to hold my shoulder in. Well, I went in on Tuesday and had surgery from 12:00p until 7:50p and was admitted to be there for 6 days. I left Thursday afternoon!! (Not my best decision but the hospital was horrible. After that experience all my surgeries have been ambulatory. The longest one taking over 4 hours to cut bones and re-route ligaments and tendons. I went home the same day.

Sep 07, 2015 12:26 PM

Newfibrogirl, I understand what you going through. I went 2 surgeries completely alone.see I was married once before to my kids father for 12 years and he cheated and I left but that was not before he moved me and the kids to another state away from my family. Anyway I was having major pains in my left abdomen and I had to drive myself to the emergency room they did their tests and transported me by ambulance an hour away to another hospital who take out my appendix the old fashion way. No family or friends I didn't even know about this community then. I had to call the ex the day day they were releasing me to pick me up. When I went in for my post op check up a week later I had to a second surgery to fix a hernia so went and had that one done the ex dropped me off to the hospital an hour away and went home. Keep your phone with you and keep us updated, I'll be praying for you and know that we'll be here for you!

Sep 07, 2015 12:28 PM

Not left abdomen but right abdomen

Sep 07, 2015 1:55 PM

Absolutely praying. We've got your back. You're not doing this alone.

Sep 07, 2015 4:28 PM

Thinking of you. Big hugs!

Sep 07, 2015 5:07 PM

Wow..thanks you all so much for your support . really it means a lot. I've taken a lot of the advice I've gotten here and even the good that did into fit perfectly found a place that was helpful to me. I'm thankful that my uncle encouraged me to find a group like this. It's great. I'll be sure to keep everyone in the loop.

Sep 07, 2015 9:57 PM

Whether I'm alone or not, I always recite "The Lord's Prayer," as I'm being put under. It keeps me calm. 🙏🌼

Sep 07, 2015 10:07 PM

Agreed. I like the Serenity Prayer, too.

Sep 08, 2015 1:13 PM

Flappys I just got my daughter a ring that has the Lords prayer on it Saturday! The woman's ministry was out at our local store selling them! Coolest thing ever!

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