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Jun 14, 2017 9:22 AM

I know I've not been very active here lately but I really need supper as we all do. I'm not sure if what is happening to me. I know we all have this experience I just need to know what to do. I need to know I'm not alone. My symotoms are all over place. My weight is go if higher snd higher as is My stress.ive had my first sleepless night in a while and the oain came in full force. One side or foot is very swollen. Chest pressuee is suoer heavy and my Bones feel hollow and painful with any pressure. I've taken tramadol and my regular morning meds lyrica carvidoil plis tyneol arthritis. It fels as if I've got fever also.
Emotionally I'm done..i fell heavy foggy and irritated.
Please what do I do.how do I deal with. Thia

Jun 14, 2017 1:51 PM

Aloha Thia

I have been diagnosed with fibro and one thing I can tell you is while we all have similar pain points and issues...the truth is fibro effects everyone differently...if you feel like you need to go to ER please do...the chest issue has me concerned...I tried best to read your post...some of it is confusing and I think that's because of autocorrect on your phone maybe? I personally think Lyrica is poison and awful and I also don't like Tramadol...but that's me...for me I usually take Savella for fibro (I'm on a break off it right now) I take opana er for pain and I take a really good multi vitamin...EmergenC...and I take curamin which helps alot for pain...I also take an oral probiotic to get my gut healthy....I would suggest those for natural stuff to take...try to take it easy on yourself and limit your activity...drink some tea and do something that helps redirect your thoughts (I pray) I hope this helped sweetie

Jun 16, 2017 9:10 PM

Hello NewFibrogirl2, I am so sorry you are feeling this way. We all need support through our pain. Fibro is especially confusing because it can manifest in so many different ways.

I agree with Pulelehua888 that lyrica is poisonous and can be habit forming. Diet changes, heat soaks, but! B supplements have really helped me. Most helpful for my fibro has been the Guaifenesin protocol.

Did you look intothe Guaifenesin protocol? I remember mentioning here how helpful it has been for me. Are you on facebook? There is a lovely and informative, private (closed) group that can help you navigate your way around it.

Jun 16, 2017 9:17 PM

Yes I've looked it up but havent spoken to my Dr about it yet. Right now I don't know what to say I'm on as fsr as system prediction. It seems I'm so far behind most of you all. I'm in an especially hard place since nsaids and other anti-inflammatory meds I csnt take due a previous procedure I had years ago. And with me not working or having my own income source I'm at tge mercy of my family. So we all know how that is.

Jun 16, 2017 9:19 PM

Also, what type of doctor /specialist are you seeing?

Jun 16, 2017 9:30 PM

I definitely do know what it is like to be dependent on family and to be incapacitated by fibro. I recognize the symptoms you describe, including the chest heaviness and low-grade fever.

If you live in California or can get there somehow, it might be worth a visit to Dr StAmand in Los Angeles or to Dr Congdon in the Bay Area. Dr StAmand developed the protocol and has been treating fibro successfully for 50years. http://www.fibromyalgiatreatment.com

know it can be expensive and tedious. I had to find a way to visit all the way from East Africa, but it was worth it. Even of you can't make it there, the facebook support group from my post above is great for information and for coping strategies specific to fibro.

Jun 17, 2017 10:37 AM

I see a wide variety of Dr. I have gynecologist and a gyno specialist ( to treat and monitor tumors) I've had multiple surgeries including removal of a 20lb tumor that destroyed my uterus and damaged my pelvis and bladder.
I have a rheumotology Dr a general practice Dr a thyroid specialist as well as a hemotogly dr for my chronic anemia . A counselor for mental health ..several physical therapist and dermatologist .

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