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Had my EMG, more questions than answers

Aug 11, 2017 7:13 PM

Ok..so my EMG was longer and harder than the Dr expected. I'm used to a single shock or a series. But after these he apologized, and ground the tip in hard enough it removed layers of skin and let the electric charge run for almost a minute at 2 shocks a second. He told me he was sorry for the bruises I was going to have today, but he had to try and get the best reading he could and it was not going good.
Apparently (I have no idea, so I'm hoping some of you do.) A lot of the conditions, are from the sheath or mylene (?) being gone or wearing away or eaten by disease. That's what he was expecting with me. But he said it was hard to read because it wasn't the covering having problems, the nerve itself is dying off. He says if blood and EMG don't show what he needs to see to tell him what's wrong, his next tests will be on the neurons in my head.
Any ideas what might be going on or what he might be looking for? All I am now is scared and I can't figure out how to look this up on the net.

Aug 20, 2017 7:06 PM

Yyooouuuuchhh, whoa, I feel for you! The same might be happening to me due to diabetes type 2! Do you know what's going on, ask your doctor about Elavil, Lamictal, Neurontin and Topamax and those are the magic words and see a psychiatrist for help with depression related to your condition but everyone is different so it may work for some may not work for others and see an integrated pain management program provider which they really help big bunches at least go to an integrated pain clinic! I'd advise you to ask your neurologist if you could get integrated pain management! Thanks! Will pray for you!

Aug 21, 2017 8:41 PM

I had similar experiences to you and got my bloods done, turns out i have HNPP (this affects the nerve linings). Have you been tested for this? What are your symptoms? My advice would be to start eating a hell of a lot more ginger, tumeric and omega 3's to help maintain your nerves.

Aug 21, 2017 8:43 PM

I see where you're coming from!😎

Aug 22, 2017 4:20 AM

Apparently he's looking at neurodegenerative diseases. Wow was a little freaked out when I found out what they are. Most don't have a long life expectancy.
Between, EMG, brain MRI and stroke in April, it's put me in a bad spot. I went to the phychiatrist that they recommend for me and she sent me home with a 5 wishes for end of life treatment package to fill out.
Apparently none of the diseases he's narrowing it down to are very happy choices. They also recommended I go to a place called independent living to see about getting my home ready for wheelchair accessibility.
On a happy note, the psychologist says my service dog is very tuned into me. She said, "watch, every time you get upset, Lilly leans on your leg or puts her head in your hand. She's going to be a great help to you." So I have a good friend close. =)

Aug 22, 2017 4:51 AM

Dont let the tests get you down!
Ive also been in and out of hospital with all sorts of tests and i found out that i have a neurodegenerative disease, but it's not as bad as i had originally expected it to be. My mum has the same neurodegenerative disease as me and she still leads a happy and productive life and is in her mid 60s! 😊 i hope that everything goes well for you and that you get good news. In the meantime, keep your chin up! You're stronger than you think ☺

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