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Had my Rheumatology appointment

Dec 09, 2016 3:33 PM

So, I had my appointment with the rheumatologist today. Very personable guy. I felt like he listened and was sincere. He said I'm somewhere on the scale of chronic pain to fibromyalgia depending on the amount of pain I'm having. He said it's really all the same when it comes down to it. He suggested backing off on the amount of activity I do. I explained to him that I have to work and did he have any suggestions on how to handle that better. He said, "You can do whatever you want, but you're going to end up paying for it later." Also told me I have very hyperextended joints and to never do yoga lol He said he was mystified by the "muscle weakness" I was having bc my muscles seem to be strong. I then tried to explain better by telling him that my muscles tire extremely quickly causing them to burn and shake like I've been weight lifting but while doing simple activities, such as laundry. He said he would assume it comes from the muscles being in pain or under stress and needing a break. Thing is that I don't necessarily have pain in the areas that are tiring. Having a hard time following him on that piece of it but think I understand his correlation. Overall, a good visit with a doctor I like and I feel like I could come see him again without judgement if things get worse. He ordered blood work but they only do the specific labs he ordered Monday through Thursday so I'll have to come back on Monday. I am currently waiting for a neck x-ray to rule out arthritis.

Dec 09, 2016 4:07 PM

MeLiz, I understand what you're talking about in the muscle weakness, where they tire easily and tremble. Mine do the exact same thing. I'm under a rheumy doc for sjogrens & fibromyalgia. I get easily fatigued and at times have days or weeks that I fall asleep at the drop of a hat. I have to pace my activities so i don't overdo it and pay later, like your doctor said. Try gentle stretches throughout your day. If you sit at your job, stand stretch and walk a few minutes as much you can. If you stand on your job, try resting with your feet up. I wear gloves without fingertips (crafters gloves suggested by others on this site several years ago), which helps keep my fingers warm. I'm currently wearing winter gloves due to the cold blast from the north that's hit all the way to my state, GA. Brrr! I'm use to it not quite this frigid! Hugs love and prayers you get answers and can find a way to balance work and rest, so you won't have real brass days! 🙂💕🙏🌸

Dec 09, 2016 4:25 PM

Did you ask what blood work you're having? I'd get a copy of it and your results. It's great you have a doc who's listening!

Dec 10, 2016 4:32 AM

Gibber- Yes I did. One for lupus, which I don't think I have, and 3 more tests but I can't remember what they are. My appointment paperwork is in my room and my fiance is asleep. I have heartburn so I'm in the living room. I'll check tomorrow.
FlappysLady - Not that I'm glad you're having that symptom, but it is really nice to have someone who can relate to me on certain symptoms. I'm a RN and my days at work are either really mellow or super busy it seems. I care for a quadriplegic on a ventilator in her home. She's quite demanding and on her shower nights (she only likes me doing her showers), it is a 3 hours ordeal that I dread. Not sure what I'm going to do. I may try to find something closer to home where I can break up my work a little more. My current job is a 90 minute drive away, 12 hour night shifts.

Dec 10, 2016 5:19 AM

Sending good vibes your way!!! If I'm reading this right... weakess and shaking in muscle yet pain located elsewhere? Might your lactic acid buildup be happening very quickly due to compromised lymphatic drainage? This can be caused by multiple things like blocked nodes as I'm sure you know, but in my case it's the burned out fascia casing through which lymph fluid flows that is no longer spongy and soft, but gnarled and cracked like dried up rubber bands. As a result I have muscles weakness in one area because the fluid can't flush, while my nerves are pinched and pulled by the fascia around them and refer pain to completely different locations. It is a crazy making a symptom combo for sure. Myofascial trigger point release helps me. Also 90 minutes is a brutal commute, and I hope you find a way soon to relieve yourself of that drain on your life force.
I hope the answers you seek come soon, in a treatment plan eases your pain. {{{ tender hugs }}}

Dec 10, 2016 8:09 AM

MeLiz, I am glad the doc listened and ran blood work. Hopefully you'll get some answers. It's hard not knowing and then when you get the dx, it's hard knowing so it's six of one, half dozen of the other!! Either way, I am sure you'll get things sorted and since you have this community to help you through, you'll do just fine. Remember to breathe, take one step at a time and listen to your body. Take breaks and rest when you need to and try to stay positive and look for the gifts in each and every day. Sending positive vibes, good karma and well wishes your way!! {{{Hugs}}}😊💕

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