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Handy tips 😊😊

Apr 21, 2017 10:27 AM

I saw this on a Facebook page and thought it would apply and help an awful lot of us on here 😊

1. “Shower chairs are an incredible invention. Use them!”

2. “I plan the next day every night before I go to bed with a notebook… what to wear, what to take for lunch, what kind of schedule I have for work, pack any essential items I may need, and etc. It makes the mornings so much easier to have a plan because if I am stressed or anxious it all just gets worse, and if I don’t have a plan and my mind gets all fuzzy then I am just a frantic, confused mess.”

3. “Have stools in the kitchen. Sitting and cooking or washing up is so much easier!”

4. “My slow cooker! I have a family of four to feed so almost every day I slow cook! I put it on in the morning when I still have a few spoons because by 5 p.m. I’m all out of spoons. I also like to precut and have organized foods in the fridge for my boys — that way if I’m not feeling well after I pick them up from school they have food they can just grab.”

5. “If I have four things to do in a day, I only do two, maybe three — that way I feel in control when I stop, rather than letting the pain and/or exhaustion dictate when I stop and make me frustrated.”

6. “I also have baskets under the coffee table with extra meds and things to keep me busy like knitting and coloring when I am stuck on the couch all day. Don’t worry, no kids around to get into the med basket. They’re fabric, nice-looking baskets, too, so people often don’t notice what’s in them. I also do the same for my meds in my closet. A nice pretty basket organized by specific meds so my husband can just grab the whole thing for me instead of rifling around looking for something.”

7. “I order from Amazon on a program called Subscribe and Save. The same time each month I get an automatic shipment of things I buy regularly, like dog food, vitamins, personal care items. This saves me time and money. Leaving the house is always a pain day for me so these shipments keep me from having to go out. It really is very helpful to me.”

8. “The CareZone app has spots to write your symptoms, a medication scanner so you can have all of them in your phone and a calendar to track appointments and it even sends reminders. There’s also an option to get your prescriptions delivered to your door which is nice, but [I] have never tried.”

9. “I suffer from short-term memory problems, or brain fog. When I think of something for later, I often record a video of myself explaining my thoughts. That way, I can reference it later when I struggle to think, ‘What was I supposed to remember?’”

Apr 21, 2017 11:26 AM

I really love your post!! Thank you 😊

Apr 21, 2017 11:29 AM

You're welcome. I know it's a long read but so very worth it. I will definitely be incorporating a good few of these into my day

Apr 21, 2017 5:28 PM

One and two I already do. I wish I could be as organized as u are in the others I've never got the energy to line things up like that. I seem to get distracted. Thanks for posting

Apr 22, 2017 6:48 AM

I didn't have room for shower chair so used a milk crate (washcloth or hand towel over ridges)

And since I'm retired now, and time just isn't the same for me...but I use post it notes in bathroom and post it on mirror (one of last places before going out)

I have trouble with my keys..I try to keep them in same place, but ya know...so I find them first and put the house key in lock before I go out and then finish getting ready.
Some surroundings that won't work.

We have to be more creative than most people
So it appears we are organized..yep, I'm using that lie "giggles"

Apr 22, 2017 7:58 AM

What great advice. I bet others here can add their own "discoveries" they have found to help them. If I could think I would add to it now. Lol

Apr 22, 2017 8:01 AM

When I was traveling with my son back in January he locked his keys in the car. I learned to get one of those clips I can put on my belt loop and attach a spare key to it. I then can tuck it into my pocket just in case.

Apr 22, 2017 2:28 PM

I have to chuckle at the idea of a milk crate in the shower, something that I never would have thought of 😊.
I'm liking the postit in the bathroom, that's a good one for me, I always go before I leave lol.
I thing we are ingenious in ways we don't realise.
I wonder if there is way we could have a file or something on here with the ability to add for people to add to as you say Mimikay 😊.

Apr 23, 2017 11:28 AM

I don't see where there's a way to add a link to anywhere other in posts. Would be great to have a start page that lists the group's purpose.. It's rules and a list of books and online links etc. where one could find useful information. Need to put that on a forum wish list.

Apr 23, 2017 3:19 PM

Cinders49, how long have you had fibromyalgia?

Apr 23, 2017 9:42 PM

EPSOM SALTS/Genuine himilayan salts are brilliant. It's takes a long time but soak for 45 mins the first 20 your body absorbs the nutrients in which the body can't make then the next 20 mins your body releases all the toxins within the body. This in turn reduces pain and inflammation . Scientifically proven. Also a full body detox helps. No chemicals. No non organic food no processed food. I'd advise the paleo diet! Love to you all xx

Apr 24, 2017 4:44 AM

Tigerlilly, I was officially diagnosed about 18 months ago, but, my consultant says I've had it about 10 years

Apr 24, 2017 7:02 PM

Patches. I used to love soaking in a tub. Its hard now to get in and out. Plus i have chronic kidney and uti's. Soaking in a tub can make it worse. I miss soaking in the tub though.

Apr 25, 2017 6:25 AM

I love a bath its my go to place to think and work things out. Other than the fact that the getting in and out is a mammoth task on its own, the water pressure is so bad in my house that it's takes what feels like three weeks to fill and it's blinking cold too.
Patches my friend who has lupus swears by Epsom salts.

May 23, 2017 3:24 AM

I too swear by genuine Himalayan bath salts. You have to use a lot and it's expensive but worth it for the reduction in pain. There is a fab one called DR Salts. You can get Epsom salts very cheap but you can't beat the proper stuff. Also a Himalayan salt lamp beside your bed at night realeases positive ions which help mentally and physically. Much love x

May 23, 2017 4:47 AM

I have a heavy duty white platic chair I use in my shower. Has a high back and arm rests. Easter to stop and rest with. Showers take a lot out of me.

For my keys I have 2 spots for them to be. 1 out hanging by the door (which means there ready to go) or. 2. In my room gaming in my medicine armoire. (yea all my meds Take up a lot of room. Lol) which means there not ready to go.

Not ready to go means the pill bobs I have on them for my sizure meds needs refilling because I used them while out. So I need to refill before I leave next time.

I too have poor memories and need things in there place every time or I freak out. We got to do what we got to do to survive and make it through each day. More power to us!!!

Dec 24, 2017 3:54 PM

Has anyone updated “tricks” to help?

Dec 24, 2017 9:57 PM

I make a simple week schedule so i write down what i would like to get done during the week, then i can split up the tasks among the days and fit it in with other activities fx i swim once a week to help with muscle soreness but it wil wipe me out completly after, so i make room that day for only a slowcooker meal and no other chores.
It helps me get things done, but without overdoing it and without guilt over what needs doing since i allready know it's planned for another day. It also makes it easier for my boyfriend to know when it's something for him to help with.
And that is another advice, ask for help! You need to tell people what they can do for you and tell them to do the things that is hard for you.

Dec 24, 2017 10:01 PM

Also make sure to have easy options for dinner at hand for those bad days, it can be freezer meals or just an easy go to recipy that's quick and easy for you to prepare.

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