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Hashimoto's thyroid...sounds like FMS

Nov 30, 2015 9:45 PM

I didn't write this but wanted to share

My name is Hashimoto's. I'm an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many other places around the world.
I'm so sneaky--I don't always show up in your blood work.
Others around you can't see me or hear me, but YOUR body feels me.
I can attack you anywhere and any way I please.
I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.
Remember when you and energy ran around together and had fun?
I took energy from you, and gave you exhaustion. Try to have fun now.
I can take good sleep from you and in its place, give you brain fog and lack of concentration.
I can make you want to sleep 24/7, and I can also cause insomnia.
I can make you tremble internally or make you feel cold or hot when everyone else feels normal.
I can also give you swollen hands and feet, swollen face and eyelids, swollen everything.
I can make you feel very anxious with panic attacks or very depressed. I can also cause other mental health problems. You know crazy mood swings? That's me. Crying for no reason? Angry for no reason? That's probably me too.
I can make your hair fall out, become dry and brittle, cause acne, cause dry skin, the sky is the limit with me.
I can make you gain weight and no matter what you eat or how much you exercise, I can keep that weight on you. I can also make you lose weight. I don't discriminate.
Some of my other autoimmune disease friends often join me, giving you even more to deal with.
If you have something planned, or are looking forward to a great day, I can take that away from you. You didn't ask for me. I chose you for various reasons:
That virus or viruses you had that you never really recovered from, or that car accident, or maybe it was the years of abuse and trauma (I thrive on stress.) You may have a family history of me. Whatever the cause, I'm here to stay.
I hear you're going to see a doctor to try and get rid of me. That makes me laugh. Just try. You will have to go to many, many doctors until you find one who can help you effectively.
You will be put on the wrong medication for you, pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given anti-anxiety pills and antidepressants.
There are so many other ways I can make you sick and miserable, the list is endless - that high cholesterol, gall bladder issue, blood pressure issue, blood sugar issue, heart issue among others? That's probably me.
Can't get pregnant, or have had a miscarriage?
That's probably me too.
Shortness of breath or "air hunger?" Yep, probably me.
Liver enzymes elevated? Yep, probably me.
Teeth and gum problems? TMJ?
Hives? Yep, probably me.
I told you the list was endless.
You may be given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away.
You'll be told to think positively, you'll be poked, prodded, and MOST OF ALL, not taken seriously when you try to explain to the endless number of doctors you've seen, just how debilitating I am and how ill and exhausted you really feel. In all probability you will get a referral from these 'understanding' (clueless) doctors, to see a psychiatrist.
Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and just how debilitating I can be.
Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago.
They'll also say things like, "if you just get up and move, get outside and do things, you'll feel better." They won't understand that I take away the 'gas' that powers your body and mind to ENABLE you to do those things.
Some will start talking behind your back, they'll call you a hypochondriac, while you slowly feel that you are losing your dignity trying to make them understand, especially if you are in the middle of a conversation with a "normal" person, and can't remember what you were going to say next. You'll be told things like, "Oh, my grandmother had that, and she's fine on her medication" when you desperately want to explain that I don't impose myself upon everyone in the exact same way, and just because that grandmother is fine on the medication SHE'S taking, doesn't mean it will work for you.
They will not understand that having this disease impacts your body from the top of your head to the tip of your toes, and that every cell and every body system and organ requires the proper amount and the right kind of of thyroid hormone medication for YOU.
Not what works for someone else.
The only place you will get the kind of support and understanding in dealing with me is with other people that have me. They are really the only ones who can truly understand

Nov 30, 2015 10:23 PM

Is this what u have been diagnosis with?

Dec 01, 2015 9:52 AM

Shammagren, thank you for sharing. When they dx me with Sjogrens and I started researching it, I found out it also shares many of the same symptoms as fibromyalgia & hypothyroidism; all which I have. When I have a flare now, I call it my triple-whammy (autoimmune) attack! ๐Ÿ™๐ŸŒผ

Dec 01, 2015 9:54 AM

Meant to ask where it came from...

Dec 01, 2015 10:21 AM

I got this from a thyroid group I belong to on facebook. There are so many places that letter is found now I can't recall which one.

I was diagnosed hypothyroid, then Hashimoto's, then fibromyalgia, cronic pain syndrome and more but those 3 seem to be summed up in that letter alone.

My favorite facebook thyroid group


Dec 01, 2015 3:58 PM

Thank you for sharing this - it is how I feel I live my life! One endo said she thought I had that and put me on 100 mg Synthroid. She said my sugar was borderline diabetic and that I needed to change how I eat and start exercising more. I worked so hard and really started to feel GOOD; but after three month when I went back back she cut my dosage in half because I lost weight from my previous visit! I went right back down hill with my symptoms! I still worked hard to keep the weight off but I felt like crap. I still do ten years later, only worse. :(

Dec 01, 2015 8:02 PM

Well explained. I got this after the birth of my son.

Dec 05, 2015 4:16 PM

Guide to thyroid drugs/manufacturers


Dec 06, 2015 5:01 AM

That you for sharing that letter, it truly revealed a lot of what I've been going through since I was DX in 2004. First the DX was Lupus E after further lab work MD DX Sjogerns, Hashmoto's, Fibromy, Environmental Asthma , DJD lower back , anxiety depression & more . 4 surgeries from above DX and body deteration and the joke is I hurt daily and can't identity " my Flare upTime " I tried using a journal and got frustrated vvv Advise anyone? I was seeing 5 drifferent doctors @ one time with the frustration I cut it back to two , I just couldn't deal and I'm tired of taking medication๐Ÿ˜’

Dec 06, 2015 7:13 PM

I can relate to daily pain making flares hard to identify. Where some have big gaps between better days and flares others have only slight. I am learning small differences like a better day is exhaustion a flare day is I fall asleep during conversations, better day moaning in pain flare the pain is so bad tears run down my face in a silent cry. Stay with the journal it took almost a year of hand written calendar notes just listing each symptom for me to start seeing a pattern. Unfortunately one of my biggest triggers is hormones which I have no control over.

I have Reactive airway disease I wonder if this is similar to what you call environmental asthma. Any smell can set it off until I am coughing and gasping. Some perfumes set it off horribly well that and the horrid combination of smoke stink and perfume.

I see multiple doctors but trust and believe in my primary doctor. so any specialist or other doctor I see I have them send everything to my primary who I tell them manages my medications and medical plan. So far it is working great they send my PCP recommendations and then she manages it so I don't have to keep running back to all the other doctors for med changes, issues and so forth. I am not sure if the other doctors like or dislike it but I love it. It is especially helpful because of my insurance I see doctors in at least 5 different medical systems.

I am glad the letter is helping. It can also be a great tool to give to those who don't understand.

Some days it is easier for me to share information than talk about how I really feel.

Dec 07, 2015 9:46 AM

More great hypothyroid site all sorts of good information. Including trying to link hypo and fibro


Dec 08, 2015 8:49 PM

Shammagren, thanks for sharing all this info. ๐Ÿ™๐ŸŒผ

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