Hey guys, Its been a while, but I needed to break away from pain sites for a bit. I still struggle with pain, but I am managing better on most days now. I was in a really bad place for a while and I'm not sure if this makes sense or not, but my heart was hurting so much for all of you that I couldn't focus on me. I hope that didn't come out wrong, but can anyone else relate or am just wierd? (lol.) Changes to many of my meds and a few new diagnosis that are being treated now have helped so much. Its so hard to not be angry at these ugly diseases, wouldn't you agree?
We all go thru it. There are times that I do not visit the site or post. I had to stop journaling my pain daily because it made very depressed. I felt like I was focused on just the pain and not trying to enjoy the good things. No worries we are really a great group and always here to help. Many of us have been on this site from the beginning and we all take a break from time to time. Take the time to do what you need to do for you.
I totally relate to what you said sleepingbeauty! I also stepped back for awhile. Not being able to help myself I didn't feel capable of being helpful to others. My psychologist recently told me I've changed from being upbeat and positive to a more negative and cynical attitude. And I realized she was right. So I'm purposely focusing on at least one thing positive every day now for a month, and it's helping me feel better, despite all I'm dealing with. Hugs love & prayers for strength to get through your pain filled days, one step at a time! 🙂❤🙏🌼
Hi guys. Sending love and hugs to all. So sleep seems to be such a big problem for so many of us
@flappyslady81. Surely your psychologist understands the complexities of pain and dependance. Unfortunately we all can’t be sliding down the rainbow and blowing shooting stars.
When your in agony it’s hard not to focus on that. It’s human nature. As for our behaviour and personalities.. those change too with experience and exposure. Even if that’s related to pain.
My friends describe me as fun loving, easy going and good natured (when my pain is stable.. so like a 6/10).... when it spikes I’m antisocial, withdrawn and agitated. Now imagine that cycle being repeated where the positive part of you drowns In the negative emotions.
Sakram, that was funny! If you find a rainbow like that if be willing to try it! Lol. I don't think she was being critical as much as she was making me aware of how much is changed emotionally. I've been stuck in a rut of helping manage care and overseeing finances of 2 elderly parents since mid 2016 that I wasn't taking care of myself, and I was beginning to feel irritable, tired and every resentful because no one else hardly ever helped out. Now I'm having to focus on myself because of the neck fusions not healing and my hip being messed up, others are stepping up...amazing!
Thanks warriors, FlappsyLady81 You have been such a wealth of help to me in the past. Its helpful to know that others are out there who relate. We all struggle with so much debilitating pain. I wouldn't wish on another person. Well....I might for just an hour with a few, lol! Sakram, I want one of those rainbows too please! 😁
Well guys I’ll be sure to pass on that rainbow when I come across it.😂
It’s so easy to take care of others and neglect yourself, I often think if I had been more selfish in the past I might have not had to endure this. Unfortunately or rather fortunately it is in my nature to help others but I have started to invest in myself a lot more.
You should think of yourself too without guilt or remorse.
Just one final line think happy thoughts and smile. Xxx❤️❤️❤️
We all can relate to your feelings at times. I’ve stepped back sometimes from the app or not documented my pain because I felt as though all I was thinking about was “MY” pain. Once out of that rut I always turn back to the app because of my friends here. We can really relate to what each of us are going through. I am usually very outgoing and friendly but when my pain starts to spike above 6.5 I regress and get quiet. My husband says he can tell right away. Lol I’m a bit of a chatter box but get very quiet. Don’t feel bad flappys we all get negative about life at times as Sakram noted it’s natural. Sleeping beauty your feelings are normal. We all need that rainbow 🌈 ! Love and 🤗 to everyone.
I'm fairly new to this part I normally don't share whole lot because I touch take everybody else's stuff on as well as my own and it just increases my pain. I have been on more recently and it just gives me a place to feel like I'm not alone in to connect with other people so if nothing else I hope this brings you hope that there is something better out there