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Haven't commented lately

Apr 20, 2019 6:21 PM

Sorry y'all. I've been silent for a while. For the newbies, welcome. I have several dxs and I kinda quit going to the doctor until last week. Ummm, it took a fall, lol. For those who don't know me, I have Tarlov Csts Disease as my main issue. They added Fibro and MS. I refuse to add those. Anyway just so u will have a quick idea of these Cysts. They form on the spinal nerve roots. Mine are in my Assprin. They cause several issues. First it feels like you are sitting on brimstone, right in your crack. Then you have nerve issues down the legs to your toes. Your bladder and bowels can act up, and your private parts can feel like a swarm of bees got in. I chose surgery and was just praying for 50 percent relief from everything. I got that and more. After reading articles on the problems opioid can cause with increasing spinal pain, I got off them. I do have allergies to codeine but can barely tolerate true morphine. I get 14 lowest dose pills a year. So to survive I cleaned my food intake up, I use e oils for inflammation and e oil Copabia for my legs and the electric hum. I use an antidepressant on rare occasion for the PGAD when staying stationary does not work. Oh, I have an n-said patch and use it rarely due to stomach upset. To handle everyday I blog.

Apr 21, 2019 9:58 AM

Welcome back Zetarlov, we've missed you! I'm sorry to hear about your fall & pray it doesn't cause you worsening problems. You've been an inspiration to me here, about being able to function off of constant pain meds & dietary changes. I haven't gone totally gluten free but I've cut way back and do feel better, that and decreased sugar.

Out of curiosity my hubby and I did the 23&me dna test that includes medical issues. It came back that I do carry the gene for gluten intolerance. I was like WOW! So now I've been trying a little harder to get away from it.

Hugs love & prayers you & everyone has a good day today! 🙂❤🙏🌼

Apr 24, 2019 7:50 PM

Flapp.... I haven't been tested, lol but I know know no more little Debbie. The last time I ate one 30 mins later my body forgot to breathe. It felt like a horse was Pressing on my chest. Are you on FB? We need to get together sometime. Lol

Apr 25, 2019 4:28 PM

No I don't do FB. It would be good to meet up sometime. Maybe after my surgery we can plan something.

May 01, 2019 5:59 PM

Sorry,haven't cked in. But definitely we can meet. Would love it!

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