Some might wonder just what those of us with EDS are talking about when we say our fingers or other joints bend backwards. This is just a few examples. Feel free to add your own pics so that others can have an idea on what we mean by hyper-mobile. My fingers are just a start. My elbows, knees, toes, spine, wrists, shoulders, and even my hips are involved. I just don't know what would show most of those.
It's extremely interesting to see all the comobilities (?sp) that go with EDS. Some of the ones I've been diagnosed with are: asthma, osteoarthritis, anxiety attacks, social phobia, GERD, heart attack, tendentious in multiple joints, and many more that I simply can't think of right now.
The ring splints I made. This isn't all of them, but these are the ones I wear the most often. Bethany, I didn't even thonk of the one you call shrimp fingers. That's why I am happy you posted that one. I also used to bend my thumbs back so they touched the tops of my forearm, and forward to touch the bottom as well.
@ bethanylayne, we all did that with the fingers and called it the finger basket. I can no longer do that. We thought it was just a fun thing to do. And it's likely why m my joints are so stiff today. 😉
I can bend my wrists like that, and almost the back-prayer hands. I just don't have anyone to take the pics.
ScaryAnn, I love your ring splints! I have some silver splints I got a couple years ago, but they don't fit properly. I can do the same thing with my thumbs, but I can't take pictures of it since it takes both hands! As far as hands going back past 70 degrees, I actually read it online in an EDS article somewhere!
FlappysLady81, Oh really?? I was the only person I knew that could do it so I came up with the name shrimp fingers!
I have to laugh, my entire family would have contests to see who could do the weirdest things with their body. To this day I'm not sure which one of us "won". I have a sister and two brothers, all older than me. My sister and I would sit crosslegged on the floor and put our feet on top of the opposite knee and "walk" across the floor that way.
I think I may have gotten my hEDS from both of my parents, but most certainly from my Dad. His ankles have gotten so bad that he walks on his ankle bones instead of his feet. My feet are so flat that when I walk barefoot on a hard floor my feet sound like suction cups. As a teenager I could bend backwards and touch the floor, I can't even think about it now in my mid 40s. Now walking across the floor can sublux a knee or ankle.
That's one thing I love about this forum is that we learn so much from each other. :)
Lol, yep me & my sibs did the knee-walking too! 😁 Though it's not funny nowadays, as we all suffer joint pain. I'm sorry about your dad's ankles; sounds very painful. I'm sorry you all have this condition to deal with. 😢
I wanted to thank you for this post, I've been trying and fighting for answers for years and you post this and I researched and called my doctors and begged them to read 1 article. They all agree and said yes this sounds like my issues. Now we're gonna try and do further testing. Finally after almost 7 years of craziness and being used as a human test subject. Thank you thank you thank you!!! I have 3 kids too that have this A LOT of hyper extensions all over. This info will help them too.
Ok this is totally new information to me and I'm going to have to research it. I was told by my Mom that our family is "double jointed" I have sprained my ankles I don't know how many times. I was in gymnastics as a child and always afraid to run very hard to the vault because both my ankles and knees would turn. My knees to bend backward some times - like they "give" - if going down stairs. My uncles fingers so easily bend in a crooked way like that then he used to teach deaf education and the students thought his hands were creepy when he was signing. Do any of you have extra digits? (Fingers. .. toes?)
HealingHands, research is always good!! My knees give out on me all the time too 😓 but no, I don't have any extra digits and I haven't heard of that being associated with hEDS, but I can't be sure! I hope you find help where needed!!
Blabla, so glad we could help! I fought for 43 years to find out what was wrong with me, so I can understand your struggle.
HealingHands, one of the worst knee sprains I've ever had was from putting cinnamon rolls in the oven! Just this past Friday I sprained my knee by standing up from a seated position. I don't have any extra digets, nor does anyone in my family. hEDS is usually inherited, but can also happen spontaneously.
Whoa. This post was really eye opening. I used to dance in high school, so I always prized my flexibility. I remember I always used to be on the bottom of lifts and more than once, I dislocated a shoulder and dropped who I was lifting. I was also taught to reset my own elbows at the tender age of 3 after going to the emergency room for the second time for a dislocation. And I can also sublux my shoulder and thumbs on command. Does anybody know what a good way to broach this subject with my doctor? I'm worried they already think I'm kind of crazy...
2sweet, I'e never been a gymnastics person, but I used to think it was so cool to put my thumb back behind the knuckle at the base of my index finger. I could do it with both thumbs. I loved it even more when I could "gross out" my classmates in high school. Now my thumbs sublux every single time I move them. It's no longer fun. :(
Bexipode, my cousin's son was diagnosed before I was. When the geneticist that he saw learned that other people in his family were also loose jointed, he suggested that they all be examined. I asked my doctor at the time to give me a referral. She wasn't happy about the request, but finally ageed. When it was confirmed that I do indeed have Ehlers Danlos Hyper-mobility type, she fired me as a patient. Best thing she ever did for me! The geneticist thet diagnosed me has since retired. :( I don't know where you are, but do some research and try to find a geneticist near you that is familiar with EDS, then ask your doctor for a refferal to that geneticist. It's unbelivable how much of the body is affected by EDS other than just joints. EDS is defective collagen and our bodies are 80% collagen. That's 80% of our bodies that can be affected.
Bexipode, I think the best thing I did for my health was just be frank with my doctor! I just went in and said, hey, I've been dealing with these problems, I read an article about this (EDS) and I wanted to know your thoughts!!