Hello! I'm new to this forum and using the app. I've been reading a lot of posts and have found useful and relatable info. Sometimes it's good to know I'm far from alone in this journey.
I've been having issues for about 8 years, pains come and go and vary in intensity and type. I don't care much for doctors, and mostly manage on my own. Was recently in the ER and have a persistent doc that finds me "fascinating" and wanted me to track my pain. So I ended up with the app and browsing the forums and thought I'd throw out a post instead of being a silent stalker, haha.
I have constant joint pains, knees hips wrists and hands are the worst and it varies with weather, activity level and randomness. My chest and side pains are more predictable, deep breaths, cold air temperatures or exercise creates unbearable sharp stabbing pains. I have headaches and muscle spasms that come and go and vary in type. And I'm constantly tired, exhausted and run down. I've been tested for Lyme, lupus and arthritis, vitamin deficiencies and a suite of other stuff. Some oddities in results here or there but nothing conclusive. I have frequent annoying infections (bladder, ear, strep throat) and this current doc suspects some sort of immune system something.
I read a book a few years ago "When We Hurt" and have often turned back to it when I'm feeling especially down and overwhelmed. The author talked about being thankful for the sensation of pain, which I first took offense to. But he explained his work with leprosy patients, and how people afflicted with leprosy cannot feel pain but do have a very real sense of suffering. I try to be thankful that I can feel pain, and try to "listen to my body".
Sometimes though, it's too much and I can't be thankful for the hurts and aches and pains that literally take my breath away.
I hope someday there won't be a need for an app or forum like this, but for now I'm grateful it's here and there are others sharing their experiences.