Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hello - new to this forum

Aug 26, 2015 9:19 PM

Hello! I'm new to this forum and using the app. I've been reading a lot of posts and have found useful and relatable info. Sometimes it's good to know I'm far from alone in this journey.

I've been having issues for about 8 years, pains come and go and vary in intensity and type. I don't care much for doctors, and mostly manage on my own. Was recently in the ER and have a persistent doc that finds me "fascinating" and wanted me to track my pain. So I ended up with the app and browsing the forums and thought I'd throw out a post instead of being a silent stalker, haha.
I have constant joint pains, knees hips wrists and hands are the worst and it varies with weather, activity level and randomness. My chest and side pains are more predictable, deep breaths, cold air temperatures or exercise creates unbearable sharp stabbing pains. I have headaches and muscle spasms that come and go and vary in type. And I'm constantly tired, exhausted and run down. I've been tested for Lyme, lupus and arthritis, vitamin deficiencies and a suite of other stuff. Some oddities in results here or there but nothing conclusive. I have frequent annoying infections (bladder, ear, strep throat) and this current doc suspects some sort of immune system something.
I read a book a few years ago "When We Hurt" and have often turned back to it when I'm feeling especially down and overwhelmed. The author talked about being thankful for the sensation of pain, which I first took offense to. But he explained his work with leprosy patients, and how people afflicted with leprosy cannot feel pain but do have a very real sense of suffering. I try to be thankful that I can feel pain, and try to "listen to my body".
Sometimes though, it's too much and I can't be thankful for the hurts and aches and pains that literally take my breath away.
I hope someday there won't be a need for an app or forum like this, but for now I'm grateful it's here and there are others sharing their experiences.

Aug 27, 2015 7:41 AM

Welcome to catch my pain app you will find a lot of wonderful and caring people. I wish you the best I was reluctant to do this at first it's nice to know you're not alone out there.

Aug 29, 2015 10:09 PM

Welcome, though I wish pain wasn't our common ground. SuWyMa, I began with osteoarthritis decades ago in my thirties. Then following a major surgery I got fibromyalgia, for which I'm convinced the undiagnosed cyst that grew 2+years and caused a lot of pain, problems, and inflammation are to blame. I continue having problem after problem, symptoms added, and this year was diagnosed with Hypothyroidism & sjogrens, both autoimmune diseases. The fatigue and general all over aches are bad when they flare. I was surprised to see they share many common symptoms with each other, fibromyalgia, and other autoimmune issues. Don't give up trying to find the cause, and this community is full of great info. I know I have OA but I'm beginning to wonder if I'm also getting RA. My hands and fingers are stiff all the time. But recently my finger joints are starting to sell and be painful, unlike my OA knees. With so many things sharing common symptoms it's no wonder our docs play guessing games. I've learned things from others here that my docs didn't tell me. I hope you will be able to figure out what's at the root of your pain. Good luck 🙏🌼

Aug 29, 2015 10:28 PM

Thank you both!

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