I'm not sure how many of you may remember me but hello again. I'm sorry I've been MIA for a few months but I have taken some time out to re-evaluate my life and deal with new disgnosises.
I've been in and out of hospital the past few months with numerous problems. It started with incontinence issues and back pain - severe pain - with tingling and numbness around my bottom and down through my legs. While in hospital it was discovered I have degenerative disc disease in my lumbar spine. Since then I have been experiencing retention issues - as I said to my Dr first I couldn't stop it now it won't come out! Gotta laugh right or I'll cry.
So now I have been told I have cauda equina and I have to self catheterise throughout the day to prevent me going into retention again, because that means hospital stay 😣. Anybody out there with fibromyalgia Syndrome or back related pain will know trying to bend down is not easy! So trying to catheterise is a comedy of errors daily! Lol.
As you can imagine this has affected my mental health quite significantly. Further so when my rheumatologist advised me I'm probably going to end up in a wheelchair by the time I'm 40. I'm now 31. So I have decided to crame as much as possible into that time just in case. I have three beautiful girls and I will keep going for them.
I hope you're all well and life is treating you good. Sorry for the essay, I felt a need to release everything and I know everyone here can understand better than my family and friends, my husband is fantastic but he can never understand life with chronic pain.
If I can help anyone, or offer a few laughs and a chat please message me anytime.
Love and positivity 🌈