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CatchMyPain Community and Pain Diary App to manage chronic illness

Hello all

Nov 01, 2017 7:13 AM

Hi all

I have been struggling with undiagnosed pain for the past decade. Finally the docs think it is endometriosis on my bowel, ovaries and general womb area plus fibro.

Despairing a little with how debilitated I am and how little help there is/ wait on NHS for op to remove endo. That has drawn me to this app, perhaps someone has had a similar experience.

My mum and sister have CFS too but not endo... so I wonder if anyone else shares fibro/cfs with family?

I hope you are all having an easy pain day!
L x

Nov 03, 2017 11:22 PM

My grandpa had and my dad has the same symptoms as my fibromyalgia. Mu dad was tested as a kid, but since fibro doesn't show up on tests and it was not well known mu dad was never offically diagnosed. I believe thay fibro and cfs in families can be a predisposition when you are born if not a true genetic link.

Nov 04, 2017 6:59 PM

That is so interesting but obviously a real shame and i am sorry you are also unwell.
It seems crazy how many people have these illnesses and yet there is so little that can be done, so little understood and no holistic diagnosis. I tell doctors about my family and they totally dismiss it like it is irrelevant...

Nov 04, 2017 7:22 PM

Yea told my doctors as well and they also totally dismissed it. I feel like doctors should not discredit the concept of it having a family connection.

Nov 06, 2017 4:40 AM

Hello and welcome to the group.

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