So, I guess I've developed a pattern. I fall away from all of the world when I'm in beyond words in pain. I just can't talk about it when I hurt in so many places and at such an incredible level that a 10 seems like a joke, really.
I did see a neuromuscular specialist yesterday, but it came with a huge (pain) price. Here's a small part of my last 48 hrs.
So I got a call late from the neuro-muscular specialist. They had an earlier than scheduled opening if we could be there this morning and we threw our stuff together and went. With the rush of the trip, very little sleep and forgetting my pain patch, I was in pain all over my body that was over the top. Every muscle, joint, my skin, my spine, neck....literally everything. Sweat was pouring off my body so bad and I was having spasms in my neck, back, legs and sides. *Sorry about all the details sounding so dramatic, it was just so bad. My husband had to bathe me, dress me, everything. And then push me in a wheelchair all day while there. I was so weak and in pain could hardly stand to get to the table of the office room.
We are very grateful to have gotten in two months before our appt. My Dr. had more tests run including a skin biopsy of the nerve tissues in 3 places. Since its a research hospital, they offer for my hubby to do the same test along with me as a placebo. He agreed to. Now that's love, right! 😊😍
She concluded my having nerve damage of the small nerve fibers. (She explained that when I'm in pain, instead of just sending a pain message, they are in hyper speed and send excessive signals) Although my body is already fighting pain with RA, cervical spinal stenosis, 3 bulging discs and fibromyalgia, the small fiber is causing most of my extreme fatigue? Wow, I was shocked to hear that! I am so confused over this extreme fatigue thing.
I'll get the other test information back in a couple weeks and we'll know more hopefully by then.
I hope that I can find some way to get back to living again.. Maybe tomorrow, right?
I really am not selfish, because my heart has each of you in my prayers as I read your struggles. I am realizing that I need to now ask you for help with your prayers now, as I need to find my new purpose.
God bless each one of you. I am always here, always. I just may be in the background praying. Love and many hugs to you each, as we all like those hugs! 😘 🙏💕