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Hello all. I've missed you. 😘

Jul 22, 2016 9:00 PM

So, I guess I've developed a pattern. I fall away from all of the world when I'm in beyond words in pain. I just can't talk about it when I hurt in so many places and at such an incredible level that a 10 seems like a joke, really.
I did see a neuromuscular specialist yesterday, but it came with a huge (pain) price. Here's a small part of my last 48 hrs.
So I got a call late from the neuro-muscular specialist. They had an earlier than scheduled opening if we could be there this morning and we threw our stuff together and went. With the rush of the trip, very little sleep and forgetting my pain patch, I was in pain all over my body that was over the top. Every muscle, joint, my skin, my spine, neck....literally everything. Sweat was pouring off my body so bad and I was having spasms in my neck, back, legs and sides. *Sorry about all the details sounding so dramatic, it was just so bad. My husband had to bathe me, dress me, everything. And then push me in a wheelchair all day while there. I was so weak and in pain could hardly stand to get to the table of the office room.
We are very grateful to have gotten in two months before our appt. My Dr. had more tests run including a skin biopsy of the nerve tissues in 3 places. Since its a research hospital, they offer for my hubby to do the same test along with me as a placebo. He agreed to. Now that's love, right! 😊😍
She concluded my having nerve damage of the small nerve fibers. (She explained that when I'm in pain, instead of just sending a pain message, they are in hyper speed and send excessive signals) Although my body is already fighting pain with RA, cervical spinal stenosis, 3 bulging discs and fibromyalgia, the small fiber is causing most of my extreme fatigue? Wow, I was shocked to hear that! I am so confused over this extreme fatigue thing.
I'll get the other test information back in a couple weeks and we'll know more hopefully by then.
I hope that I can find some way to get back to living again.. Maybe tomorrow, right?
I really am not selfish, because my heart has each of you in my prayers as I read your struggles. I am realizing that I need to now ask you for help with your prayers now, as I need to find my new purpose.
God bless each one of you. I am always here, always. I just may be in the background praying. Love and many hugs to you each, as we all like those hugs! 😘 πŸ™πŸ’•

Jul 23, 2016 2:05 AM

Hello sweetie... im here sending u much love and coping karma for the day ⚘...im a bit of a hermit too... as i hide away when things come ontop... but know that i am thinking of u today🌷 xxx

Jul 23, 2016 5:45 PM

Thanks Lulabel. I really appreciate the positive vibes. You hang in there too, love. 😊

Jul 23, 2016 7:23 PM

Thank you for the hug! I, too, disappear when the pain gets truly unbearable. Nasty creaming nerves make my life just go away. I don't pay the bills, all of the hundreds of things I take care of in a day go poofπŸ’₯because my pain has hit a 15. I will pray for you SBeauty. My heart just breaks for UπŸ’—

Jul 23, 2016 8:30 PM

Same to you silvrrry. Yep, I hear ya on big 15!!

Jul 23, 2016 11:20 PM

Hang in there! Be proud that you made it to the doctor!

Jul 24, 2016 8:42 PM

Oh, I am. It was a 5 hour trip one way. We jumped at the opportunity to get in sooner. We had wait a long, long time to get in with her, so if he had to haul me in on his back to get me there, we were going! πŸ˜“

Jul 25, 2016 4:09 PM

Sleepingbeauty I was wondering where you were. I'm so sorry that all this has happened to you. You will be in my thoughts and prayers and I hope that your pain levels go down and that you can function and join the world with the rest of us pain warriors. Sending you gentle {{{Hugs}}} and prayers for a better tomorrow πŸ’•πŸ’•πŸŒ»πŸ˜Š

Jul 25, 2016 11:01 PM

Thanks so much Always! From the beginning, you have been there for me. I'm sorry for all you've been through too, girl. You are in my prayers too!! πŸ’–

Jul 26, 2016 6:52 PM

Sleepingbeauty, I'm very glad you were able to get in earlier too. I hate that the rush caused extra pain though. I felt that way with my trip to Mayo last year, also a 4 1/2-5 hr one way trip for me. I'm glad you got some answers, and I know you'll be on pounds & needles (pardon the pun) while waiting for the remaining results. I'm praying this will be what brings you answers and treatment to reduce your pain drastically. We have shortly missed you, but totally understand. I also don't feel like socializing when I'm at my worst pain. Sending you lots of gentle (((hugs))), love & prayers! πŸ˜˜πŸ’•πŸ™πŸŒΈ

Jul 26, 2016 8:45 PM

That's so sweet for you to think of us when you are in so much pain... I'm so happy to hear that you got in early and are finally getting some answers! I hope you feel better soon! Hugs!
AndI its ok to take a break from posting when you're not up to it... I think we all understand

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