Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

hello, my wonderful pain family, I am back!

Nov 27, 2015 12:04 PM

Hey everyone. I know I have been gone for a bit, but I'm back.
Long story short, I am very sick now. My CRPS got to a point where my doctors did not know what to do with me anymore, I some how caught strep throat, along with a few other small things. The problem is, when I get strep, bad things happen. I was sent into the ICU, I was unable to have my phone with me, for obvious reasons. I was sent to the ICU in the middle of the night. I am now back in a normal room but things are ALOT worse.
I am "celebrating" Thanksgiving today, just my mom and sister are aloud to come though, they don't want me having much contact with people from the outside. My immune system is basically shot. I am now on more IV meds and I have a tube in my stomach that gives me food (can't think of the proper term atm lol) due to me still being swollen in my throat and other stomach problems. Right now, they aren't planning on doing too many tests that involving me going to different places in the hospital, they want me staying in my private room.
I'm sorry for dissapearing out of no where. I wish I could say things are better, but things are much worse.

I also want to say I read all of those wonderful messages you guys put out, and it brought me to tears. I wish I could hug you all and thank you personally, but sadly that's the problem with having a pain family all over the world haha.
Well I'm exhausted from typing this out, I usually use voice to text, but I'm not aloud to speak often, I have to write everything I want to tell the doctors. Crazy right?
Well I love you all so much, thank you so much for worrying about me <3

Nov 27, 2015 12:32 PM

Jenna girl I am so glad to hear from you! I was very worried about you and never stopped praying for you. I was hoping you were getting rest and getting better but no such luck. I'm sorry you are much worse and landed in ICU. it's time you caught a break already! Try to rest sweetie, when you feel up to it, I'm here to chat. I am sending you gentle (and sterile πŸ™ƒ hugs) and as always I am praying for you!

Nov 27, 2015 1:03 PM

So glad you were able to update us all. We were worried about you and you were missed and in our prayers. πŸŽ†πŸŒΉπŸŒΈπŸŒ»

Nov 27, 2015 1:29 PM

We were so worried about you. Please don't try to respond to our posts, and wear yourself out. We just want you to know how much we love you and we are glad to hear from you. Keep us updated when you can. πŸ’•πŸ’•πŸ’•

Nov 27, 2015 1:55 PM

Oh Jenna!!! I am thrilled to tears just to read your post that you are here. I am so sorry that all these things have happened to you and that you are worse than before. I sure can understand limited outside contact because of germs everywhere. But, I'm glad your Mom and Sister are allowed to be with you. I'm sorry you have so many IV's and a feeding tube. What a nightmare, I've had both but thank God they can get nutrition into you. I am sending you several (but I promise, gentle) {{{{Hugs}}}} because I was just so excited to see your name!! Know you have all the love, support and prayers from your pain family. We were very worried about you and praying daily. Welcome back, Sweetheart and I pray the doctors can help to find something to make you feel better. Love, hugs, prayers, more hugs and prayers and positive vibes of starshine and rainbows to brighten your lovely spirit. Hang in, Jenna, we're all standing by.πŸ’•πŸ™πŸ»πŸŒ»πŸ˜˜

Nov 27, 2015 3:01 PM

So glad to hear from you Jenna and brought to to tears by your post. I'm so sorry that things have gotten so awful for you and hope with all my heart that you will one day be pain free and happy. I'll be thinking about you and sending positive thoughts your way πŸ’™πŸ’œπŸ’™πŸ’œ

Nov 27, 2015 3:26 PM

Super glad you are here and able to communicate . I know it bars Jenni but stay strong . I believe you will be connected to the right professional who can help you with your health. You were truly missed. Just rest up and have a happy thanksgiving.

Nov 27, 2015 6:31 PM

Jenna, sorry you are going through this. This I'd definitely a test. You will come through this fine. Your body may be weak right now but your spirit will be strong with the support of family and friends. I guess I shouldn't assume that, feels yucky can bring down our spirit, but you know what I mean. I hope you don't have to be on a feeding tube very long. I remember a long time ago getting a rare form of strep and I waited for days to see the doctor. My throat was completely covered with white. They had to put me in the hospital to treat it. I was wishing at that time I didn't have to even swallow, it burned so much. So I have empathy for you. I am not sure if it is like that but it must hurt a lot if you need a feeding tube. I feel really bad for you. I hope you make a speedy recovery. I am also glad that your family is there with you. We all want someone to care for us especially when we are sick. They may not do it when we are in pain but it is nice when we are sick. Take care Jenna. My thoughts will be with you.

Nov 27, 2015 8:01 PM

So glad to hear from you! I'm so sorry you got strep, I'm thinking of you and hoping something will be better soon, even if it doesn't seem possible right now. We're all rooting for you!

Nov 27, 2015 8:03 PM

Jenna I am so sorry that you have been going through so much. I will be praying that you get well soon. Sending lots of hugs your way.

Nov 27, 2015 11:34 PM

Jenna, so very glad to hear from you! I'm am so sorry things have gotten worse, I'll be praying for! πŸ™πŸ˜˜πŸ’•

Nov 28, 2015 3:17 AM

Jenna, it's fab to see that you are well enough to post again. Sorry to hear how unwell you have been. I hope each day gets alittle easier and that you feel better soon, best wishes and sunshine to you from me in New Zealand... Which is a tiny island at the bottom of the world!!! β˜€οΈ

Nov 28, 2015 10:22 AM

Every time I read your guys messages it makes me so happy. I got a bit of sleep last night which was nice. And my throat is healing well the doctors say. But they want to limit the amount of "unsteril" things that come around me still. So that's not fun I guess. But I'm getting some spinal shots today to see if it can help the pain. Then I have a surgery console with a pain pyschatrist (is that the right term idk) but thank you all so much for caring about me. I don't think I've ever had this much support before <3

Nov 28, 2015 10:30 AM

Jenna, you will ALWAYS have the love and support and prayers of your pain family. We are all standing by and waiting for you to let us know that you're headed back home so that we can do the happy dance!! I'm glad that your throat is better and the doctors are being careful about germs. You need to build your strength, you don't need someone coming in with a cold and setting you back. Hopefully the shots will ease your pain and you'll be able to get more sleep (which by the way, I'm very happy that you were able to get). Keep strong, Jenna. We love you!! Gentle {{Hugs}} and prayers.πŸ’•πŸ™πŸ»πŸŒ»β€οΈ

Nov 28, 2015 11:56 AM

I'm glad you got some sleep last night, sleeping can be do hard, especially with extra pain. Good luck with the shots, and I'm hoping you'll find some pain relief after everything you've gone through. β€πŸ™‡πŸ˜„

Nov 28, 2015 1:57 PM

Shots are done, doctors have me back in bed, no relief yet, they hoped I would feel relief immeditly after the shots, but no luck. They are worried about my strep again for some reason. So they put me on more medicine for that. Ugh. I just want this to end

Nov 28, 2015 2:19 PM

Praying for you... πŸ™πŸ»
I'm pretty new here so you don't know me; but from what I've read you are an amazingly strong young lady!
Maybe this would be a good time to start writing something pain free... (I know it's difficult to physically write at the moment; but you could start planning) A story for children about a beautiful place that you dream of going, or a love story or a fantasy - whatever or wherever your imagination takes you. Maybe even the next Disney princess! πŸ‘ΈπŸ»
Let your imagination be your guide and fill it with flowers and sunshine and laughter and happy things... and before you know it you'll be back in your own bed!

Nov 28, 2015 3:25 PM

Jenna I know you're tired of all this but it's going to take time for your body to heal. You've been thru quite the ordeal, you need rest, quiet and sleep. I'm glad to hear your throat is getting better, strep can be miserable. You remain in my prayers.

Nov 28, 2015 4:42 PM

Jenna don't give up it just takes time for the Step to completely heal. I hope the spinal inj. kick in soon and you can have more sleep tonight with less pain. Prayers and hugs sent your way.

Nov 29, 2015 5:27 PM

Welcome back online Jenna! I was praying and trusting for God to watch over you. I'm very glad you're out of ICU, but I hate hearing you are still so sick! You take it easy and rest so you can hopefully go home soon. (((Hugs))) & prayers! πŸ™πŸŒΌ

Nov 30, 2015 1:31 AM

Chin up girl, maybe they will give you something good for your pain finally! !!

Ready to start relieving your pain?

Join Community