Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hello, new to site/ app

Nov 22, 2015 10:15 PM

Hello everyone, I just saw this app today, read through some of the posts on the forum and can completely relate. I finally feel as though I have found people who can understand what I am going through.
I have been suffering with migraines since an MA in 1993, but they have drastically increased to 25+ a month. In 2010 I was diagnosed with RMSF after a tick bite, followed by fibromyalgia, extremely low feretin, RLS, CFS, CPS, yet everyone seems to think that "you just to to rest a bit".
I have my MVC handicap placard, though I don't always use it. I am still too stubborn to take time off, which only makes me worse, makes my flare ups worse. The change of seasons, barometric pressures, humidity, rain, snow , living in NJ, stress all elevate my flare ups.

Nov 23, 2015 1:07 AM

Hi Annie, welcome. I'm sorry you are having so many migraines! 25+ a month is unimaginable to me, it sounds like you are a very strong and determined person to persevere like you have. I will be praying for you, and hopefully your doc can figure something out to get them under control. Take care.

Nov 23, 2015 2:10 AM

Hio, welcome to our community!
I also have migraines, although not very severe lately, because a year ago I had all my teeth collapsing to the center, and hard talk of pulling them all. Migraines are horrible, have you and your docs figured out the cause and also a treatment? Lately I've had migraines originating in my shoulder blades, and the menthol/aspirin cream or hemp/menthol cream help a lot.
It's always hard when other people don't understand, and encourage you to "just rest", and I'm pretty stubborn, and will sometimes push through pain then ask for another option. I'd say try to pace yourself, even if it feels like you're doing something wrong by doing nothing.
Anyway, welcome and feel free to vent or ask any question that comes up, we'll be here for you.

Nov 23, 2015 7:27 AM

Anniesgt, welcome to our family community. You have, indeed, found a wonderful group of people who totally understand what you are going through with your pain. It is never an easy road. I have been in pain for 22 years, have had 29 surgeries and have well over a dozen formally diagnosed diseases that cause pain. (Among them Fibro, CRPS/RSD, migraines, scoliosis, DDD/DJD, SI Joint disfunction with fractures, etc..) you get the idea. When you come here, know that you are safe to vent or rant with no needed apologies. This is a judgement free zone and you are never alone. We all "get it" because we all deal with pain on a daily basis. I've lost "friends" who have said to me, get off all that shit you're on, get off your ass and you'll feel better. I've also had others say, just rest a bit and it'll get better. Go out and do stuff and the pain will go away. Oh how sometimes I wish they could have walked a mile in my shoes!! (Even a block or two would suffice). We are here to support one another and help each other through the bad times and celebrate with you through the good. I have found this forum to be a Godsend and have formed many strong bonds here and have people that I am pleased to call friend. There is loads of understanding, prayers, hugs, questions answered, opinions given, shoulders to lean on, ears to listen and hands to hold yours when you need them. So, welcome aboard. I hope that you find the support and comforts that you need here with us. There will always be someone to come to your aid, day or night, when you need us. Sending welcoming {{{Hugs}}} and prayers that the docs can find something to help ease your suffering.🌻🙏🏻

Nov 23, 2015 7:20 PM

Hello everyone, what a welcoming and friendly group! :) I am definitely not accustomed to this, thank you all.

Iann, I am very determined, as my grandfathers would call me...their stubborn one. Partly coming from having to raise my children on my own since they were 7 & 14, and living in a violent marriage. If I could survive that, I could survive this.

Ferret, yes, the migraines are miserable and debilitating. I am on Toprimate at night, Cambia if they are so bad during the day that I cannot function. My last resort before surgical treatment was the botox, which didn't work for me; I did 1 year, 35 injections each time.

Alwayz, WOW you have nearly had one procedure a year! That is absolutely no way to live.
Thank you for letting me know this is a judgement free zone, you don't see any of those around.
I have said similar to you. "walk one day, even one hour in my shoes before you tell me how to proceed with my life".

I am so grateful to have found this site/app and look forward to talking with everyone.

Nov 23, 2015 7:33 PM

Hi Anne, and welcome. You will find out quickly that these zany loving, caring, wonderful, kind people will become your best friends, your family, and sometimes your lifeline. They have kept me going each day with just their supportive words to each other. I have come to love them all. I hope you find this place to be somewhere where you can come to whenever you need to.

Nov 23, 2015 8:17 PM

Cearea, I am beginning to realize that now. So, so happy to be a part of this new family.

Nov 27, 2015 9:02 PM

Welcome Anniesgt! I'm just seeing your post, as I've been away from technology on & of for 2 weeks. I agree with everything the others have said. In addition you will find knowledge and suggestions of things you may never have heard about. I have migraines (since 1995), but recently learned I have cervicogenic headaches, after another community member mentioned the dx (diagnosis) in regards to my symptoms. Not treating the cervicogenic headaches triggers migraines. I also have fibro, sjogrens, hypothyroidism, and many other issues. Being able to share experiences and learn new possible treatment methods has really been so helpful. I've also heard negative comments from people, and that helps no one. As you settle in, I'm sure we will all learn things from you too. I will add you to my prayers with everyone else. 🙏🌼

Nov 28, 2015 9:34 AM

Thank you FlappysLady, nice to meet you. It has been refreshing to be in a group that understands what is happening and what I can or cannot do. I have already gained some knowledge as I have read the various posts.
I am looking forward to meeting everyone and sharing what information I have from my experience working in a family practice, but more so from having lived with all of this.

Ready to start relieving your pain?

Join Community