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CatchMyPain Community and Pain Diary App to manage chronic illness

Hello pain warriors

Aug 30, 2015 8:39 AM

Hi everyone I downloaded this app yesterday as I'm trying to keep an eye on my pain levels as I've just started drinking aloe Vera gel in the hope I can find a more natural way of pain relief.
So a bit about me I'm 30 still live my parents due to my conditions but hoping that will change soon.
I was diagnosed with Functional Neurological Disorder in January this year which can be as debilitating as MS and Parkinson's and the symptoms can be mistaken for MS or a stroke which happened with me.
February I was diagnosed with Fibromyalgia, March I was diagnosed with Non Epileptic attack disorder NEAD and its now possible I have Ménière's disease. So all in all its been a big learning curve for me this year.

Aug 30, 2015 10:53 AM

You've come to the right place. Everyone here has one disease or another and live in pain in their everyday lives. I have found more care & understanding here vs my family or friends. I don't blame or am not upset that they don't understand, not since stumbling into this community. There's so much information and support, you'll be amazed as to what relief will come to you just being able to share your pain and or your successes. I pray you find some joy within this community. Good luck

Aug 30, 2015 9:49 PM

Welcome VintageButterfly! I'm sorry to hear you've had so much happen this year. I don't know anything about functional neurological disorder, but I'll be looking it up.

I'm in the same boat, having sjogrens, hypothyroidism, dementia, tremors, and possible MS added this year. I've had fibro since seven years ago, along with 5 in 1 surgeries to remove a large benign mass in my pelvis. It resulted in more diagnosed issues. I had to quit work to recuperate but my health took a nosedive. Just five years ago I was healthy enough to work a mentally challenging and physically demanding job, lifting 30-50 lbs at any given time. Now it's all I can do to get my daily shower and dry my hair, of lift my 14 lb dog. This community has helped so much by offering advice, suggestions on pain relief or whatever, compassion, virtual hugs and prayers. Not that I like anyone else suffering but it's good to know everyone here understands. And when advice is given its from the heart and not in a condescending way. Good luck and Good bless. You'll be in my prayers.πŸ™πŸŒΌ

Aug 31, 2015 11:41 PM

Thank you for your well wishes! It's nice to speak to people that may not have the same conditions as me but can understand how debilitating chronic illnesses can be!
I started taking aloe Vera gel last week to try and help with my mobility as I'm generally stuck at home too exhausted and in too much pain to go out!
I have found a couple of new hobbies thought one being knitting and the other anti stress adult colouring.
Sending you both squishy hugs xxxxx

Sep 01, 2015 8:09 AM

Welcome VintageButterfly, I am sorry you have been deluged with all of these diagnosis this year. I understand how distressing it is. Each time I have tests done, I'm hearing another diagnosis. I'm currently waiting to find out if my blood work came back showing if I have Lyme's Disease or Lupus. I have so many autoimmune issues and so many symptoms overlap, sometimes I don't know what's bothering me at one specific time. This app has been a Godsend for me. The people here are wonderful. I call this my community family and have built bonds with several people here. (Especially Flappsy, she's a true gem). She and several others came toy aid the first time I posted and I always come here when I find myself retreating into myself. I'd rather be here and try to help others feel better (even if it's just a bit, it's still better and takes my focus off of myself and helps me to do for others). I have been in pain 24/7/365 for the last 22 years and have had 28 surgical procedures to try to "fix" some of the damage to my body. I have fibromyalgia, degenerative joint disease, degenerative disc disease, Grave's Disease (which is hyperthyroidism and they removed my thyroid and now I'm diagnosed with hypothyroidism). Scoliosis, lordosis, spinal stenosis, cervical spondalytic myelopathy, sciatica, TMJ, GERD, and possibly RA (waiting for blood panel to come back to find out if it was positive or not). I hope and pray for you that you are working with good doctors and that you get some much needed relief from your pain. Other natural things you can try are dark leafy greens (basil, sage, parsley, etc. are all good for inflammation). Also ginger, turmeric, magnesium with vitamin D. There are several things to eat that will help. There is a doctor who appears on the Rachel Ray Show and he has a book called "the shred diet" and it's not just about losing weight, it tells you how your fridge and pantry can actually be your pharmacy. There are many things in nature that can help with our situations. I hope that you find the help and support that you need being here with us. Make certain to be your own advocate and read up on whatever diagnosis you are given so that you can decide if you need a second opinion. I'm sending you well wishes and hugs and will keep you in my prayers. Remember, we're all here to help each other and there are no judgements here. There is only support, understanding and compassion. Know that we are but a keystroke away. I hope you have a peaceful day and a light pain load. πŸ’•πŸ™πŸ»πŸŒ»

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