Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Help.

Sep 17, 2018 3:41 PM

I have this chronic widespread pain. Sometimes it’s dull and constant; and at other times it’s throbbing and comes in waves. I’m gonna see a specialist but not before a month. But everyone I talk to doesn’t understand and this is messing up with my head, making me feel like a “drama queen” or so. Does this kind of pain ring a bell with anyone?

Sep 17, 2018 5:38 PM

Chronic widespread pain is often associated with Fibromyalgia.

Sep 17, 2018 6:12 PM

Hi Shaymaa,

Sounds like fibromyalgia to me. I have the condition and that's how I started off. Do you get confused sort of brain fog? Extreme tiredness despite sleeping?

Take care

Love Hayley x

Sep 17, 2018 7:03 PM

Hi Hayley :)
Yeah, fatigue is pretty persistent and I do feel confused a lot.
The specialist I’m gonna see is a neurologist..should I consider a physician of another speciality for my case?
Thank you.

Sep 17, 2018 7:20 PM

It's difficult to say. Fibromyalgia is so difficult to diagnose, you have to rule out other conditions such as rheumatoid arthritis, lupus etc before a diagnosis of fibromyalgia is made.

I saw a rheumatologist, after all the tests (blood tests, ultrasound scans and skin biopsies) he gave me the diagnosis of fibromyalgia syndrome. So maybe a rheumatologist might be better?

I hope you get some answers and some relief from your pain soon xx

Sep 17, 2018 11:08 PM

Thank you. :’))

Sep 21, 2018 9:48 AM

Shaymaa, I have multiple causes of constant widespread pain, most which were diagnosed after 2010. Chronic pain is real, but only to those like us who suffer from it...no joke! Even my hubby of 37 years thinks his 2 day pulled muscle pain is the same as my OA, fibromyalgia, Sjogrens, DDD, TMJ, migraines/cervicogenic headaches, and vein reflux pain. Only mine never goes away, I'm never pain free even for an hour. I've just learned to tolerate low pain (1-4), medicate with otc meds for moderate pain (5-7), and reserve my prescription meds for high pain (8+). So please don't let others make you feel like it's in your head. I'm sharing my experience so you can see how things different for me, and change all the time.

My main 4 pain causes (widespread) are the fibromyalgia that causes muscle pain & trigger point knots, the (decades of) OA/DDD in the joints of my spine, knees, hips, shoulders and hands, and my most recent (6 yr) Sjogrens that first was thought to be just dryness of eyes/mouth/nose/throat. It was a suspected diagnosis in 2012 and in 2014 was officially dx by an oral biopsy. By then we thought my fingers was off the chain uncontrolled pain. Within 3 weeks of being out on plaquenil for the Sjogrens, my all over muscle & joint pain decreased in half. Over the past 12-18 months I've begun to have random, erver changing joint pain in my fingers, wrists & elboes, and increased pain in my spine. They suspect the Sjogrens is now starting to attack my joints.


I've been under extreme stress for 2 years trying to help care for my dad & stepmom, losing my Dad this year. We ended up moving furniture for the 2 of them to & from 5 times in 12 months. They had to live separately for nearly a year, but we needed then closer to me, and then my stepmom was dx with Alzheimer's and ended up where my dad was only 5 weeks before he died. Honestly I cannot remember a day my pain has been less than a 5 for the past 8 months. So yes, stress increased my pain. But unfortunately I've not been able to decrease the stress.

Hugs love & prayers you can find the cause/causes of your pain, and find ways to help to help you cope better. Just remember to focus on one thing at a time: hour, day, week; activities etc. It's ok to say no and take care of yourself. It's ok to dismiss the naysayers, because their negativity is not going to help you. Find things you enjoy to make you relax or laugh. I've taken up coloring for stress relief, and it does help, as does reading. And sometimes when talking to family who is making my stress increased, I cut the call or visit short. If I don't take care of me no one else will, and I'll not be of any help to others. Hugs love & prayers you get answers and relief soon! 🙂❤🙏🌼

Sep 21, 2018 9:49 AM

PS, sorry for the book! Lol I tend to be long-worded😉

Sep 21, 2018 11:27 AM

Dear FlappysLady81,
Hugs, love, and prayers to you too ❤️❤️ Thank you so much for taking the time to write this; your support is quite great and appreciated. You’re inspiring and I do hope I find my way of healthcare and lifestyle to cope with this. Your condition is quite challenging but I do believe you’re handling it quite impressively.

😘😘

Ready to start relieving your pain?

Join Community