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Help, has anyone else experienced this???

Dec 31, 2016 1:04 PM

I have had the absolute worst month+ (for me). So here goes the venting, excuse me. Im diagnosed with Ankylosing Spondylitis, Fibromyalgia, Wolff Parkinson White Syndrome, Borderline Personality, Bipolar II disorder, Anxiety, PTSD (so far lol). So in mid Nov, I got sick. Stupid sinus colds. It put me into a bipolar episode where I hid from the world and didn't talk or get up much. That in turn threw me into a flare. Each week something else. My entire body hurt so much I could barely get up. I tried so hard to do all the things I needed to do each day and I just couldn't. So due to that, my gf's mother decided she's evicting us because I didn't do anything for 2 wks and who was taking care of our son? I was!!! And my gf did everything when not at work. I did all I could and needed to do with our sons care, but sorry your dishes didn't get done... Anyways I got better, to then be thrown again into a severe cold/flu on my birthday (Christmas eve) that both my son and I were privileged to acquire. Gotta love autoimmune disorders.... Congested yet runny, headaches, fevers, cold sweats, full body weakness and pain, the works. On Christmas my gf took me to take a shower after all the fevers and sweating (no fever then), joining to help (thank god). As I was washing my hair I got very dizzy. Thinking it was my bp or my sugars, I kneeled down, nothing. Maybe I'm overheating, so I opened the shower door, usually the cold air fixes that right up, nothing. Felt more an more sick/weird, so I sat down in the tub, my gf asking if I'm ok and I said no! Everything then went black, I thought I passed out or closed my eyes for a min. Well what my gf witnessed was me, eyes wide open, deathly white, upper body tensed, back arching, limbs trembling, for about a minute or so. Not responsive and barely breathing, if at all. I don't remember anything, she was even shaking me for a response. I don't know if I had a seizure or if my heart slowed to much or what. When I came to, she said my face got color back, but once I stood up it went white again. I scared myself when I looked in the mirror. But then instantly was nauseous and ended up throwing up. I've had headaches since then, now day 6. Yet not like the headaches and migraines i get regularly. This is new and I don't know what, why, how, nothing. My family, myself included, are all in the medical field in some way. My mother said seizure. But due to my heart problem, I'm thinking maybe it slowed to much and my body couldn't work. Yes we should have gone to the ER and I'm writing this cause I'm debating on going today, but I'd like to hear from others. Anyone else have this happen to them or similar? Any diagnosis or possibilities?

Dec 31, 2016 2:17 PM

OMG! How the hell are you still standing and if your Mom is in the medical field (as you are) and you had a seizure, you need to go to the ER and not be here asking for an opinion at the possible risk of your health. I hope it wasn't anything bad and I hope your gf Mom doesn't throw you out. Sounds like a hell of a month. Well, the New Year is here and we can kick all the bad shit behind us and start again 😊🐫🤗

Dec 31, 2016 3:23 PM

Definitely go to the ER. Not something to mess around with. Sorry it's all happening.

Dec 31, 2016 3:58 PM

Sitting in the ER at this very moment. I just wanted to see if anyone else had experienced this before and what they found out. My mom is sadly 9 hrs away and can't do much other than give advice. As for myself, I hate hospitals. They rarely believe me and what I'm going through. The area and county (meth capital per capita) I've actually been told at my age I'm looked at like a drug seeker or put in the category as them, no matter my visit reason. Not to many late 20's in my area, let alone state, have the issues I have. Doctors can be cruel sometimes. So I only go when it's absolutely necessary. I know I should have already no matter what and that's why I'm here now, just in case. Thanks for your responses, I appreciate it! Luckily our town is tiny and the ER waits aren't bad, but our hospital is also one who's diagnosing is wrong often. Another reason I hate coming. But cross your fingers for an answer or a treatment. I need this headache and sudden tiredness to subside. As well as the anxiety of something bad being the cause.

Dec 31, 2016 4:15 PM

Here's hoping for a compassionate Dr. The medical suck everywhere unfortunately. It's sad.

Dec 31, 2016 4:20 PM

Am hoping it's something they can get to the bottom of. It sounds a lot like when I had my stroke. I was at my fiance's who was home bound. At the time I was a home health nurse. I told the doctor it was a stroke but he refused to believe me. Told me it was simply the flu. The next day I drive myself home, called my Dr. who met me at the ER. Turns out it was a strokewith a frontal lobe brain bleed.

So - it really is important to have things like this checked out.

Let us know what the doctor says. ((( hugs )))

Dec 31, 2016 4:46 PM

Yea my mother had a micro stroke at 40, they said she didn't because it didn't show on the scan. But after her blood clot in her leg they did more testing, more everything and a specialist figured out she did have a stroke. Waiting on the CT tech to come in from home to do my imaging, had the EEG already. So many possibilities, as simple as a harmless blackout, to serious health jeopardizing problems. Thank you all for your input and I will keep y'all updated.

Dec 31, 2016 7:07 PM

CT was fine, didn't discuss the EKG (not EEG) so I take it that was fine as well. Dr believes it was a seizure, but since its the 1st I've been seen for, the ER won't do anything for it and I'm to see my primary as soon as I find out who that is. Recommended an EEG to check for seizure activity and gave me compazine for the headaches and nausea, which I'll also take benedryll with it as well. So we shall see..... Thank you everyone again.

Dec 31, 2016 7:24 PM

They won't keep you for seizure? My son was going to school in Canada when he had his first seizure. He was kept for a day as they did all the tests and observed to make sure he was stable.

I hope you are able to get in to see a primary doctor soon and they are able to figure out whats causing these issues.

If you are anything like me - I always forget to bring up things at the doctor appointments. That is why I keep a small note book handy to write questions etc.in. when it's time for my appointment I get my notebook out and organize my thoughts/questions so I am ready to present them to my doctor.

Best wishes for you and your girlfriend. May 2017 bring with it pain free days and hope.

Dec 31, 2016 7:37 PM

Too bad they sent you home. I have epilepsy and I wish they would at least watch you for the night. I hope you can get some rest.

Jan 01, 2017 6:11 AM

Mo29 I am so glad that you went to the ER to get checked out... I'm glad your CT Scan came back clean. It had to be a scary experience. I have to apologize for the way I answered you when you first posted. I was abrupt and rude and was not considerate to your situation.
I have to say, that just last night I am guilty of having some kind of "episode" and not seeking medical attention. It started with my eyes getting fuzzy. Then they felt weird. After that I got a strange numb feeling in my scalp and hard tingling, then down my face and my top lip went numb. Few moments later the back of my throat and parts of my tongue were numb as well)..…

Jan 01, 2017 6:21 AM

Oops, hit post too soon. So, I stumbled downstairs and told my family and they got my neighbor who is a doctor and she came and fever me benedryl and said for a moment I had a dead stare and I wasn't responding to her voice or her touching me or waving her fingers in front of my eyes. I don't remember ANY of that part. So, I didn't go to the ER, I stayed home and did some breathing and distraction, mindfulness, etc.. I'm good today (in pain but otherwise good). I just glad to hear you got checked out. I hope you get in to see your pcp quickly to see what they can do to help you. Sending well wishes

Jan 01, 2017 6:42 AM

Mimikay, I had wished to know more. They didn't even do any blood work, which I found interesting since I've been poked a million tines since I was six, for basically any reason. I had the CT, which the tech had to come in from home cause its so small of a hospital and a holiday, the techs are on call instead of staffed. For the first time ever a CNA II (what I am) took care of me, a nurse was in an out with a rushed disposition while getting info. The doctor of course asked questions and sat with that blank stare nodding his head over and over. Our town has 3000 people and the main, large hospital is 28 miles away. Good care isn't easy to come by. I have to go to Portland to see any specialist pretty much, cause if it isn't common, they aren't local. Yet its a retirement aged area, you'd think there's be plenty of specialist haha. Anyways I do know what you mean. I have small notepad with all the meds I've taken and dosage, my symotoms (which has been updated a lot these last 2 years), my allergies, diagnosed conditions and meds that don't work. I'll know my new PCP soon, but then there's the 1-3 month wait for a new patient appointment. Then another wait about 2-5 months to get into the specialists I require; neuro, rheumatology, ENT, pain management, psych and more I can't think of with this fog I have. So the next 6 months shall be interesting and slow going, but my medical team will get back in order again. Have any of you been placed on Remicade infusions? My previous rheummy here suggested Embrel or Humara, but my last one in FL wanted to go for Remicade for my AS. popped in my head and had to ask cause I've been doing a lot of research and it'd be nice to have some sort of remmision. As for this new seizure issue, it did scare the crap out I'd me, we have a 6 year old and what if I hadn't coke back from that black out? I hate to even think of it. So the neuro is a top priority and when I make my first appt I'll make sure to include that info and hopefully it'll push up my appt date. I thank you for the wishes and I do hope for and amazing 2017 for you and yours.

Jan 01, 2017 6:44 AM

Gibber, I wish they had too. The compazine they gave me, with the benedryll was supposed to help me sleep. Ice now been up 25 hours, I took the meds right after midnight (didn't want to miss the new year) and I'm still sitting here.... Thank you Hotel Hell for your entertainment hahaha.

Jan 01, 2017 6:52 AM

Alwayzinpain, no worries. You can never truly judge a text form of communication. An trust me, I get snippy too :) I blame the pain.
Sometimes we want the weird things that happen to be just something that happens. Not something new or possibly serious. Like me chalking it up to being a drop in bp or blood sugars. When prior to Christmas day, it was probably subtle seizures as well. But I walk out of the room, so no one sees me. I'm strong, I don't need help and I can do anything you can do. Or so I tell myself til my body begs to differ.... So in a moment of weakness, its hard to let others see it. So to be checked and possibly confirm something worse, it comes down to pride. I have a lot of it.... I'm a Capricorn who hates being looked at as weak, even though I know my health is more important than my pride. I don't know if that's how you think or feel, but if so, seeking help can be a touch one to swallow sometimes. It usually take a big push or a lot if research that gets my anxiety going and I have to find out. I hope that you're ok! I thank you and I wish you much happiness and best health for 2017.

Jan 01, 2017 9:59 AM

I hope that you can get some rest today.

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