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Help me diagnose

Dec 09, 2014 12:08 AM

Im a 13 year old female. I have had pains although my body for 2 years. I would rate the pain 7/10. I believe I have chronic muscle and joint pain. The pains are in my joints and muscles. The pains are all over my body. They mostly occurred in my feet and legs, but also my arms and back. The pains have slowly got worse. They occur everyday. Everything about them is random. They always change. It's so random that sometimes it hurts to touch and other times it doesn't, the pain moves, the type of pain changes, the intensity and where it is. It's a combination of these things at once but it changes. Pains happen when walking, running, jumping etc but also sometimes when sitting down, or not moving. It's rare that I can walk without anything hurting. Lately I feel like my left arm is very weak, (I'm right handed) and hurts when I use the muscle. I also find that roughly where my large intestine is and under my ribs gets pain sometimes. I have glasses for things at school like reading or on my iPad or looking for desk to board because my eyes have trouble focusing, don't know if related. I sit out on most pe lessons because I just can't join in. Mostly I just try to deal with it. Sometimes I have to limp. The doctor has given me supplements because I have some vitamin deficients. I also have orthotics because I have flat feet. I have been wearing them for 4 months and these is no improvement at all. I have been taking the supplements for 2 months and still no improvements. I have had blood tests, and they only show iron deficient and nothing for anything else. They don't show anything for arthritis either. I don't know how to describe the sort pain but I would say aching but the type of pain all ways changes. I get cramps when running sometimes as well. I also get a lot of cracking which is sometimes painful. It happens almost everything I move in an awkward position. Sometimes I also get tingling fingers and sometimes toes. My fingers get numb when easily. They go white then after about 10 mins they go purple then back to normal. In the shower sometimes my skin gets these weird red blotches. They don't hurt or itch. My shower is quite hot, and they only appear a my lower back and left side of my stomach. Sometimes randomly I get this weird thing where my skin feels really sensitive. It hurts to touch, even just the lightest bit. I find it hard to concentrate a lot sometimes. I just can't. I also get memory loss, just after I've thought of something or am about to do something and I can't remember it. This happens a lot, like all the time. I also get random really small muscle twitches. I normally get a small headache at the end of the day. I used to do netball and diving but have stopped because of pain. I have seen many doctors, specialists and no one knows anything. I have seen a peditrition, foot specialist, eye place for glasses, nutritionist and local doctors loads of times and nothing has helped.

Recently I've noticed lumps inside my nose. They don't hurt, but make it a little harder to breathe. I've also noticed that I feel like I've pulled all my muscles. Like I'm bruised all over. They hurt a lot doing simple things. E.g getting out of the car. And I've noticed the I have been getting bruises from doing nothing, they just appear. Or either I'm bruising really easily. They sometimes hurt and sometimes don't. On the 3/11 my hands were tingling for 6 hours. And afterwards in bed I felt like I had a dead arm. This wasn't caused anything. I've been getting lost of headaches as well. I get pulsing points randomly, recently.

I have been taking supplements and wearing orthotics for 3-4 months and I've noticed no difference. It even be getting worse.

I have all symptoms for fibromyalgia apart from fatigue, a might have it a bit, but not a lot. I also don't know if u have tender points. Please tell me if you think I might have fibromyalgia. If it's not fibromyalgia then I think it might be nerve pain.

Dec 10, 2014 8:48 AM

I don't know enough about fibromyalgia to know if someone your age is known to have it but it sounds very uncommon. Have you not been to a doctor for a diagnosis?

I knew a teen when I was young who had similar issues and it turned out to be Chronic Fatigue Syndrome, ME. The lumps in your nose could just be simple polyps or something just as benign but you really should have it looked at as soon as possible. Get to a doctor.

Dec 10, 2014 2:56 PM

You sound very similar to many of the aches & pains all over the body my daughter started with at about 10. She was later diagnosed as having growing pains, and some arthritis in her knees due to extreme fall injuries. When she hit puberty her joints took off in growth causing pain. She has since continued with some arthritis pain, even her spine. The coloration changes of your hands sound like Raynaud's. Take pictures to show your doctors, because its helpful in diagnosing if it is. I have it, and my fingers stay very cold. The bruising is likely the anemia. Your all over pains could be affected by a vitamin B &/or D deficiency, if you are low on them. My body doesn't metabolize B vitamins due to a defective gene, MTHFR, which apparently is very common & rarely diagnosed. I also have fibromyalgia, and although I ache all over, the pain does not move around (except for the occasional "& additional" bursitic joint flare up). Whatever is going on could be body growth pains, and yes they were very painful for my daughter for about 3 years. But stress is pain's worst enemy... It feeds the pain, so try to relax with deep breathing when you feel your worst. Good luck and God bless you on finding the right doctor, diagnosis, & compassionate friends.

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