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Help Please x

Jan 09, 2017 6:03 PM

My Fibromyalgia has got loads worse and really dont know what to do . Finding myself getting really frustrated. Im exhausted after a short while of waking and in worse deep achy pain than normal any advice please . Thanks x

Jan 09, 2017 6:53 PM

Have you called your doctor to see if they can suggest anything? I know several that suggest warm bath with Epson salts. Or alternating between heat and cold. If you don't have heat or cold packs I posted elsewhere recipes to make both. I can find them.again for you.

Do you have favorite hobbies you can do to help take your mind off things - such as reading or coloring. (there are some free coloring apps I often use when my pains bad). I also listen to music, watch TV or come here to talk with others. Anything to keep my mind on something else.

Am sure others will have more suggestions but I would certainly talk to your medical team and see if you need to make any adjustments. Are you on any muscle relaxers or pain meds? I find Tylenol Arthritis often helps me when I have breakthrough pain.

Jan 09, 2017 9:14 PM

As Mimikay said a warm bath with 1-2 cups of Epsom Salts, do you have a heat pad or an electric blanket? Lots of people say that helps....I'm looking at getting one when money's more available....again as Mimikay said do you have any hobbies or in erects that could help keep your mind occupied? I like colouring and doing crafty things like making cards with my 10 year old daughter.
Are you taking any vitamins, minerals or supplements?
I'm taking vitamin D from as doctor RX as I'm borderline Vitamin D deficient, a vitamin B mixture, magnesium supplement, a vitamin and mineral mixture and I'm looking into a gental iron supplement as I can't take iron tablets as they're too hard on my stomach. I'm also borderline anemic. All of these are meant to help fight fatigue, the magnesium also helps maintain normal bone and nerve function as well as help reduce fatigue and calm muscle twitches and calm the nervous system (I'm not sure I've explained that fully but I'm sure others will be able to explain better). I also take evening primrose oil capsule to help with my mood and pms....even tho I have the implant and haven't had a period since I still get the cycle of moods and stomach cramps and if I'm having a moody day my daughter asks if I've had my evening primrose oil capsule and 8 out of 10 times I haven't had it yet.....never realised it was that obvious that the evening primrose oil helped with my moods soo much!
I also take an odourless garlic capsules as not only are they good for the heart and many more things but they also seem to ward off the knats, mosquitos and many more blood sucking insects.....I know this works as I'm always the one to get bit without fail throughout the year, always have been but last year I hardly ever got bit and the times I did were times I'd forgotten to take them!!!

Sorry digressing a little now!!!

A tens machine can help, for lots of people it helps but some don't find it helps at all....with me it's hit and miss, sometimes it's a miracle worker and other times it doesn't help at all.....in fact it can make it worse,

Sorry to go on for soo long but I do hope a few of these suggestions help you.

Sending you positive vibes and warm healing hugs xx

Jan 10, 2017 2:37 AM

Thanks both :) X I got diagnosed in 2011 and it the worst i have been broke downbin tears a few times x my doctors useless im only on co codeine and amitrypyline on the night so think i need a medical review x forgot to mention ive had a few patches come up both sides of my neck not sure if its a rash of some kind there like circles :/ x

Jan 10, 2017 2:20 PM

My fibro is exploding lately, too. Doc told me all of his fibro patients are suffering. We are having an unusually cold and dry (low humidity) winter. I've read it's a terrible climate for fibro, and my personal experience agrees.

Moist heat helps. I'm prepping to eliminate sugar and gluten from my diet. I already don't eat dairy or meat and those changes helped a ton. Also gentle yoga seems to help a little.

Good luck!

Jan 10, 2017 2:36 PM

How long have you been on Amytriptaline

Jan 10, 2017 2:53 PM

Thanks all & since i got dianosed 2011 x

Jan 10, 2017 2:59 PM

Ok. I can't take it, it caused some major troubles so was curious if that could be it.

Also - at least with me - after being in a pain med for 1 to 2 years I seem to build up.a tolerance and need to change meds or taper off for a med vacation for a month or two. All under a doctors supervision of course. :)

Jan 10, 2017 3:24 PM

Amitriptyline is my godsend, it seems to be the only thing that has helped my neuralgia pain backed up by morphine mst.

What Amitriptyline dose are you on? And has the dose been changed since you was put on it?

I've been put up to a high dose of 110mg at night. My pain nurse wants me to reduce my morphine and maybe lower the amitriptyline.....the morphine yes I'm going to try at my next pain clinic once I've got a bit more advice on how to do it. The amitriptyline I'm a little more reserved about.
I have known people to be on 100mg three times a day, those people have been in the progressive stages of MS who've had very little movement left.

Sorry I've digressed, I'm good at that!!!! 😉

If your meds haven't changed since 2011 and your pain is getting worse then you definitely need to have a med review. Is it just you're GP who's seeing you or are you with a specialist?

Jan 10, 2017 3:27 PM

Im just seeing gp and im on 10- 20 mg of amitryptyline night and co codeine was on 15/500mg x went down today and hes gave me codeine phosphate 30mg and told me to exercise !! Im struggling to do daily chores at the minute full stop x

Jan 10, 2017 3:28 PM

I havent had a medical review since i got diagnosed they basically " want me to deal with it " x

Jan 10, 2017 3:30 PM

The pains been riduculous for say the past year but now im struggling all the time no good days really exhausted dont eveb want to eat and shower x

Jan 10, 2017 3:35 PM

Am wondering if you also are dealing with depression? Anytime someone lives with a Chronic condition depression can and does enter into the picture. But to live with a Chronic pain condition and not have any support from family and friends (or doctors) it just makes it harder. Am so.sorry.

Jan 10, 2017 3:37 PM

I have got depression in supposed to have fluoxotine in the morning but new dr wont put them on repeat so had to cope without x

Jan 10, 2017 3:39 PM

My mums a god send x i had an op in november ..laparoscopy and had to have helica treatment for endrometriosis x ive also had treatment consistenr for precancerous cells in cervix loop diarthermy x just wonderiing if my bodies tramatised x

Jan 10, 2017 4:18 PM

Oh wow that's just completely crazy. If there not changing anything and leaving to it is soo bad, I agree with Mimikay you sound like you've definitely got depression as well.
I think you need to write a list of things you need to talk to your GP about.....that dose of amitriptyline is really low for the pain you have. Have you ever been on pregabline, carbamezapine or gabapentine? They may help you more (I'm a weird one that none of them work for me), codine isn't the best for nerve pain.
It sounds like your doctor doesn't know much about fibro and recommended treatments and doesn't want to research it either.

I think you need to do a little research into different treatments and write down a list of them, write down your concerns and most importantly keep a jurnal of your pain, where it is and the intensity....my doctor likes the layout of this app but you could keep a handwritten jurnal or a different app all depends on what you find easier....also jurnal your feelings and thoughts so the doctor has an insight into how your doing. If you struggle with talking to the doctor you could hand them your list and your pain jurnal.

Jan 10, 2017 4:25 PM

Over here they won't put most antidepressants on repeat, you need to see the doctor every month for them especially if you have a new doctor.
If you need the antidepressants you need to book an appointment for every month.
With this doctor do you have much of a relationship with....are you able to talk to them openly?
It sounds like you need to book an appointment with them to go over all medications, all treatments and to have a good conversation with them about how everything is affecting you

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