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Help! Vent/ Advice for Fibromyalgia

Apr 12, 2017 10:59 PM

Hi!
So this is my first post on here. I have yet to be diagnosed but my physician's assistant and family believe I have fibromyalgia. But, I have to go back and see my doctor again (who believes I'm too young and happy to have it which is a whole other story) to get sent to rhumetology and eventually get diagnosed. And my appointment is still a ways off!
Anyway, I've been experencing chronic pain for about a year now. Before it began I was a pretty happy and active person. I'm trying my hardest to stay positive but I have suffered from depression in the past and I feel it creeping up again as the pain continues with no relief. I have an incredible boyfriend who is loving and kind and so understanding of my pain. His mom has fibromyalgia so he goes to her a lot for advice when it comes to me. I love both of them but I don't want him to compare her experiences to mine because while there are similarities, each person is different! There are mornings I need him to help sit me up because my body is so stiff and hurting I can barely move. I cry all the time and get anxious about the stupidest things. Like cooking food when my roommates are in the room too. I know it worries him and upsets him and I'm just so afraid that someday I'm going to be too much of a burden. He recently got in a car accident and I'm trying to be supportive and as helpful as I can. Helping him look for cars, selling my art for money donations, trying to keep the apartment clean for when he comes home (I feel a decluttered space helps when life is cluttered and stressful!), cook dinner and be positive. But ugh! I'm having such bad flair ups lately and just feeling super depressed. And I feel like that's stressing him out and I don't want to be stressing him, especially now. I just started my junior year and my dream university but because of my pain, I feel I'm missing out on everything I wanted to do. I haven't made any friends yet, I wanted to join a sorority and cheer and the school's art club but I barely have energy to get to work and school. I want to cry because I can barely draw now and if I try to dance on a good day, which I've been doing since I was 3, my body gets its revenge pretty quickly on me. I feel I'm no where near as active as I was and I feel miserable. I used to fence which I can no longer do and overall, I don't feel like I'm me anymore.

So I guess I'm asking, does anyone have advice? Thinking of how my appointment is still far off just to see my doctor who doesn't believe me again is really getting me down and I'm afraid I'm going to become an unbearable burden to my boyfriend. I'm taking a ton of vitamins, have essential oils going in my bedroom all the time and have even started using CBD lotion which does take the edge off. Any advice is welcome! Mental, medical, moral support. I just want to make some friends who might feel my pain (pun intended) too!
Thanks in advance :)

Apr 13, 2017 4:41 AM

Try soaking in tub with 1-2 cups Epsom salt. Heating pad, blanket.

Apr 13, 2017 7:00 AM

I was diagnosed at 17 I was a dancer for my high school dance team and had a seemingly normal high school experience. Once I got to college is when my flare ups started happening unbearably. It really depends on where you are because some doctors are more understanding than others . See a specialist because although the tests suck at least you will have a diagnosis. You have to build thick skin when it comes to chronic illness because there will always be a stigma around pain management and medicine . When your in pain the best thing to do is get as comfortable as possible . Heat helps , gotta utilize that bath tub

Apr 13, 2017 7:05 AM

Sounds like you have a full life. I go to the chiropractor, get massages, soak in Epsom salts, use heat and ice, biofreeze, and rest when I can. Mornings are bad and evenings I'm out of gas. The doctor has given me pain meds but I only use them when it's really bad cuz they make me tired. Muscle relaxers and aleve help some. It's a difficult disease that causes a lot of trouble. Many times people think you don't look sick so it's hard for them to understand. It's hard for us to function and it's also hard for those who live with us. I hope your doctor will help you. All you can do is treat the symptoms. When I get really down I try to think at least Fibro isn't fatal and I just do what I can. Good luck to you honey. It's quite a challenge. ❤️

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