Well, it's another gorgeous Thursday morning and here I am, at the doctors office again, waiting to see if this IV is still good or if it needs to be changed again. Then it's off to wait a bit longer and go to the surgeons office this afternoon. I'm really beginning to loose my patience already with the lot of it. I don't know if it's just the anxiety catching up with me about everything, but I'm tired and irritable right now.
Well just let it out and then do some relaxation. I know you are tired because you've had this stuff way too many times over the past year. Hugs, love, & prayers that it will all go smoothly for you! 🙂💕🙏🌼
Well, sorry about the wait. My tablet died. That IV did NOT hold overnight as suspected. Took 2 people 4 tries and 30 minutes to get another one in. I will be speaking up on Monday. I am NOT a damn pincushion and that will NOT happen again. Abscess drained this afternoon. Just now beginning to feel it. Going to take some Advil right now and crash. No spoons left and emotionally worn out.
You are so strong! And apparently we like to use the same topic titles! Lol! I just said here we go... Again! Then immediately saw that I had 5 posts! Nope. They were this thread not mine. Lol! It's the little things these days that make me smile. 😊
Flappys, I really hate to say this right now. I haven't even gotten my infusion for today but it feels like the IV went south overnight, simply because it's starting to burn without anything even going through it. If anything is today like yesterday, I hope this convinces them that some other form of access is needed. The nurse asked me yesterday, "What's going on?" I said, "Perhaps my body is letting you guys know it's time for a port like I've been advocating for since December." And no, was up at 1 and didn't go back to sleep, perhaps because I was emotionally traumatized by that experience. Oh hell, who am I kidding? I still am traumatized by it, enough so that when I have my cystoscopy next Friday, I'm going to specifically request that anesthesia does the IV start. He usually gets it on the first try and it works. Sorry for rambling. Just not having a good morning.
So sorry you have to go thru all that, I now take me a activity bag when going on these long wait and stressful appointments, yes coloring ,pens ect puzzle books .. why not build my brain, some chewy and crunch snacks lots of water and nuts... so I don't go nuts. Blessed day..
I hope they do go with a port for you so you have less problems. I wish most doctors would listen to what we say about treatment and not just think they know everything and have to be right all the time. I'd rather have a doctor who will admit when they are wrong and are willing to increase quality of life by trying something other than only the conventional methods.
Megan, there will be some very firm discussion that afternoon. I will NOT back down from this. He's not the one having the hell stuck out of his arms, so what makes him think I can or want to tolerate it any longer? And this might not be the last round of it. Starting to break out on my neck unfortunately and that means I can't go to my nieces birthday party on Sunday afternoon because it can't be covered with a dressing. I hate to do that, I just don't want anyone else to get this crap and especially not the little ones.
I'm so sorry to hear this may be spreading on your neck! My sister had to miss a gathering with the family because of an outbreak of staph. Maybe you can do something special later with your neice. I truly hope your doc listens to you. Hugs, love, & prayers things will go much better next appt!! 🙂💕🙏🌼
Amanda, I am sorry to read yet again that you have another infection. Perhaps yourysicians are treating what they consider a simple, easy to treat with IV antibiotics. But it seems to be rather complicated For you. The saline IV locks don't necessarily blow that frequently.. Unless you are manipulating them or messing with them Because once they are in a vein and locked there really is no way for one to all of a sudden blow. Unless you need chemo or are suppose to be on long-term IV fluids with antibiotics.. Then keep the saline Iocks.. Port lines and PICC lines are extremely high maintenance more than IV saline locks are. They doubly increase the poor outcomes of systemic infections.
Terri, thank you. It's not so much that the saline locks are blowing. The issue is that the nurses are having a hell of a time finding a vein that they can access without issue. Normally they can get me on the first try, but here lately, my arm has been bearing the brunt of it. They even tried floating the IV in the other day, but that didn't even work. And they really don't want to use my hands because they need stable access. I hope that made sense, cause it's really early in the morning.
Do they ever use a blood pressure cuff to find your veins? If not, it's easy. Have them cuff you, pump to 110, if the vein is there have them keep the pressure and make stab @ it. (sorry for pun) lol Go slow w IV needle, they will get a "flash" blood from the vein. After flash, they pop the cuff and hook U up.
Sorry to hear.☹️I'm new here and was shocked at the # of people on the site. I forgot I'm not alone with my buddy mr. pain. Seems hard to catch the story lines to offer a good reply. It's Late and the concentration is waning, & my med quota for the day is up. ... Arrgg. Truly wish U better success and solace in the days to come. B Well