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Here we go again

Feb 18, 2016 7:32 AM

Well, it's another gorgeous Thursday morning and here I am, at the doctors office again, waiting to see if this IV is still good or if it needs to be changed again. Then it's off to wait a bit longer and go to the surgeons office this afternoon. I'm really beginning to loose my patience already with the lot of it. I don't know if it's just the anxiety catching up with me about everything, but I'm tired and irritable right now.

Feb 18, 2016 8:11 AM

Well just let it out and then do some relaxation. I know you are tired because you've had this stuff way too many times over the past year. Hugs, love, & prayers that it will all go smoothly for you! 🙂💕🙏đŸŒŧ

Feb 18, 2016 8:19 AM

Amanda, I'm sorry you have to go through this again. Do a few deep breathing exercises while you wait.

Feb 18, 2016 2:48 PM

Well, sorry about the wait. My tablet died. That IV did NOT hold overnight as suspected. Took 2 people 4 tries and 30 minutes to get another one in. I will be speaking up on Monday. I am NOT a damn pincushion and that will NOT happen again. Abscess drained this afternoon. Just now beginning to feel it. Going to take some Advil right now and crash. No spoons left and emotionally worn out.

Feb 18, 2016 2:59 PM

You are so strong! And apparently we like to use the same topic titles! Lol! I just said here we go... Again! Then immediately saw that I had 5 posts! Nope. They were this thread not mine. Lol! It's the little things these days that make me smile. 😊

Feb 18, 2016 5:57 PM

Crash and burn right about now. I'm struggling to keep my eyes open any longer, unless I can prop Coke bottles underneath my eyelids. Good night everyone.

Feb 18, 2016 7:43 PM

Sweet dreams Amanda! I'm sorry your day was so rough. Hugs & prayers you'll feel some better after you rest. 🙂💕🙏đŸŒŧ

Feb 18, 2016 7:44 PM

Hey Amanda! Sweet dreams! Hope you get to make it sleeping thru the entire night!

Feb 19, 2016 4:47 AM

Flappys, I really hate to say this right now. I haven't even gotten my infusion for today but it feels like the IV went south overnight, simply because it's starting to burn without anything even going through it. If anything is today like yesterday, I hope this convinces them that some other form of access is needed. The nurse asked me yesterday, "What's going on?" I said, "Perhaps my body is letting you guys know it's time for a port like I've been advocating for since December."
And no, was up at 1 and didn't go back to sleep, perhaps because I was emotionally traumatized by that experience. Oh hell, who am I kidding? I still am traumatized by it, enough so that when I have my cystoscopy next Friday, I'm going to specifically request that anesthesia does the IV start. He usually gets it on the first try and it works. Sorry for rambling. Just not having a good morning.

Feb 19, 2016 7:39 AM

So sorry you have to go thru all that, I now take me a activity bag when going on these long wait and stressful appointments, yes coloring ,pens ect puzzle books .. why not build my brain, some chewy and crunch snacks lots of water and nuts... so I don't go nuts. Blessed day..

Feb 19, 2016 8:02 AM

Thankfully it did hold up. What we thought was a blown vein was actually just the cathater lying against the side of the vein wall. Just have to make it last one more day for this round and that's it.

Feb 19, 2016 8:04 AM

I hope the last day is easier for you Amanda! You are so strong to still fight after so many things go wrong! Thank you for being a great inspiration!

Feb 19, 2016 8:11 AM

Megan, the nurses keep telling to push and push hard for a port. It's not fair to me or them and my docs aren't listening to what I'm telling them.

Feb 19, 2016 9:29 AM

I hope they do go with a port for you so you have less problems. I wish most doctors would listen to what we say about treatment and not just think they know everything and have to be right all the time. I'd rather have a doctor who will admit when they are wrong and are willing to increase quality of life by trying something other than only the conventional methods.

Feb 19, 2016 11:22 AM

Megan, there will be some very firm discussion that afternoon. I will NOT back down from this. He's not the one having the hell stuck out of his arms, so what makes him think I can or want to tolerate it any longer? And this might not be the last round of it. Starting to break out on my neck unfortunately and that means I can't go to my nieces birthday party on Sunday afternoon because it can't be covered with a dressing. I hate to do that, I just don't want anyone else to get this crap and especially not the little ones.

Feb 19, 2016 1:59 PM

I'm so sorry to hear this may be spreading on your neck! My sister had to miss a gathering with the family because of an outbreak of staph. Maybe you can do something special later with your neice. I truly hope your doc listens to you. Hugs, love, & prayers things will go much better next appt!! 🙂💕🙏đŸŒŧ

Feb 19, 2016 5:26 PM

Amanda, I am sorry to read yet again that you have another infection. Perhaps yourysicians are treating what they consider a simple, easy to treat with IV antibiotics. But it seems to be rather complicated For you. The saline IV locks don't necessarily blow that frequently.. Unless you are manipulating them or messing with them
Because once they are in a vein and locked there really is no way for one to all of a sudden blow. Unless you need chemo or are suppose to be on long-term IV fluids with antibiotics.. Then keep the saline Iocks.. Port lines and PICC lines are extremely high maintenance more than IV saline locks are. They doubly increase the poor outcomes of systemic infections.

Feb 20, 2016 4:44 AM

Terri, thank you. It's not so much that the saline locks are blowing. The issue is that the nurses are having a hell of a time finding a vein that they can access without issue. Normally they can get me on the first try, but here lately, my arm has been bearing the brunt of it. They even tried floating the IV in the other day, but that didn't even work. And they really don't want to use my hands because they need stable access. I hope that made sense, cause it's really early in the morning.

Feb 21, 2016 10:27 PM

Do they ever use a blood pressure cuff to find your veins? If not, it's easy. Have them cuff you, pump to 110, if the vein is there have them keep the pressure and make stab @ it. (sorry for pun) lol
Go slow w IV needle, they will get a "flash" blood from the vein. After flash, they pop the cuff and hook U up.

Feb 21, 2016 11:03 PM

Quest, they've done that before and it really didn't work.

Feb 22, 2016 12:01 AM

Sorry to hear.☚ī¸I'm new here and was shocked at the # of people on the site. I forgot I'm not alone with my buddy mr. pain. Seems hard to catch the story lines to offer a good reply. It's Late and the concentration is waning, & my med quota for the day is up. ... Arrgg. Truly wish U better success and solace in the days to come.
B Well

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