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Here we go... Again.

Feb 18, 2016 2:45 PM

Just left my pain management doctor & she is putting me on OxyContin, for longer pain management. Has/does anyone have any experience with this drug?

Feb 18, 2016 3:05 PM

I have been in recovery from street drugs & alcohol for 12 1/2 years now. I am a little concerned. Does anyone know if it is the same or different than Vicodin? I was on methadone last year, but my dreams were so vivid & I was so constipated, I asked to be taken off. My pain levels (9-10+) are so consistently high these past few months, that they have become my good days! My multiple bad days, I am laid up in the bed, just trying to get in the most comfortable of the uncomfortable positions. I'm exhausted, weak & drained.

Feb 18, 2016 3:08 PM

Much much stronger than Vicodin. Just try to only take it when you need it.

Feb 18, 2016 3:54 PM

Wow. Okayyyyyy, currently I am in way too much pain to remember what day it is! So I will need to take 1 at 7am and the other at 7pm. Any other suggestions?

Feb 18, 2016 4:21 PM

Take it as prescribed only and you should be ok.

Feb 18, 2016 5:12 PM

First of all, I'm sorry you are in so much pain. No one should have to endure that . . . yet we do. I agree here. Taking the prescribed dose and maybe using a different type of med in between might at least let you think. I'm on tramadol and other meds for my many pain causing illnesses. But it doesn't help like hydrocodone did. . . . Best hopes.

Feb 18, 2016 5:14 PM

Are you not able to take Vicodin anymore, 7autoimmunes?

Feb 18, 2016 5:19 PM

Painedlady- of course I will take it as prescribed. My doctors know I am in recovery, & I am closely monitored, to only be able to refill my meds on the last day of my pills. Plus I have to sign a pain contract every year, & take random urine tests. Kaiser Permanente doesnt mess around! I don't mind either. I wonder, if anyone has or is on OxyContin. I am super curious to ask what it is gonna be like for me. I can't start using it until 2/29/15 so I have some time to ask questions. :)

Feb 18, 2016 7:40 PM

Autoimmunerrrrr, I use an app called Dosecast, which allows me to set when to take each med, like an alarm clock. I could not keep up with my meds even when it was half as many. This app has turned out to be awesome. I can pull it out at the doctor's office to see what another doc may have me on. My husband knows now where to find a list of my meds in an emergency. It has the dosage and how often I take them too, as well as if I take them PRN or on a schedule. They have a free version which allows only minimal info. I purchased the upgrade and it's been well worth it. You might find this useful in case you behind having side effects, as there is an address to put notes. 🙂💕🙏🌼

Feb 18, 2016 7:43 PM

Thanks Flappyslady81, I actually use the med portion to this app!

Feb 18, 2016 8:06 PM

Unfortunately, after downloading and using the Pain Companion in my tablet, the Catch My Pain app no longer works properly, so I can't use the medication portion. I do hope you can find better meds to cope. 🙂🙏

Feb 19, 2016 9:08 AM

You should be fine with it, I hope it helps with your pain. Some people that I know who are in recovery don't even want to take the narcotic pain meds. And I didn't want you to be one of them when you need it for pain. I can't even go see my pain management doctor cause of no insurance and I'm constantly in pain everyday like this morning and I just got out the hospital the other day. Sorry having a bad morning.

Feb 19, 2016 10:37 AM

Painedlady we are in the same boat today. I have new pains this morning, on top of the usual ones! I am sorry you are hurting so much. I am happy to be able to dialogue with you. Yes there are a lot of my friends that would rather suffer than risk losing their recovery. If I don't need them, I won't take them. I haven't had that chance yet tho. :( my last day drinking/drugging 12 1/2 years ago, put me in a coma for 10 days, & the God of my understanding came to me, in the coma, to let me know what my purpose was to be. Which was to help others. 💗🙏🏼 So when I woke up,I had forgotten that I ever used any mood altering substances, & got to work. 🤓 I respect this disease that tells me I don't have one. Now I just need to find that same respect for CREST syndrome disease, that reminds me all day & night of its presence.

Feb 19, 2016 10:41 AM

I have been taking oxycontin for two years now. I have only had one dosage change upwards. I am in pain management for degenerative disc disease aka spinal problems. I have fibro as well naturally. Oxycontin is a long-acting form of oxycodone it does not feel good drug. Generally the short-acting forms of opioids are the more fun time get high type of things. After my initial adjustment. To oxycontin I found any euphoria and disorientation to be minimal it took about 2 weeks and things became pretty regular. You take at least twice a day at the same time everyday the idea is to get a regular level of it in your system so that you really never come down it is for constant intractable pain. This allows me to sleep and get work done and live a more normal life. I can even do dishes most days. The initial adjustment to the dosage and and regular presence of it in your system is the worst part. Make sure to eat regularly and sleep regularly and take it at the same exact time everyday this is not an as needed medication it is always needed that is why it is long acting and prescribe that way. It gives pretty good relief for me and I haven't had any terrible side effects from it. I now take oxymorphone for breakthrough pain four times a day this is a short acting drug and helps you through the two or three hours while the long-acting oxycontin is getting up to speed in between doses. The two of these together give me excellent coverage and my pain is managed well. Good luck

Feb 19, 2016 10:46 AM

Hngrytgr- thank you for sharing that with me! When did your doc add the oxymorphin to your regime?

Feb 19, 2016 10:55 AM

Generally a long acting opioid is prescribed with a short-acting pain killer of some type for breakthrough pain I just started oxymorphone when I changed my dosage upwards this year prior to this I was taking oxycodone which had no effect. She thought it was because they are the same drug oxycontin and oxycodone. Oxycontin and oxycodone do a much better job I think because they are chemically dissimilar. This is my first dosage change and it was a large 1 I put it off a long time because I don't want to take more drugs. It turns out it was a very good thing though I have two weeks of nausea and dizziness and bingo dopey. After that it got much better and my pain levels are amazingly lower I'm very happy with it.

Feb 19, 2016 10:57 AM

It's funny I used to drink everyday the turns out it was only to manage the pain. Now that I take these medications I don't drink at all unless its a drink and dinner once a week. And then it's really a drink. A lot of abuse of drugs I think is simply people trying to manage their own pain. Once you get to the good place with your pain management that maybe that the desire to do anything like that simply melts away. Self medicating and drug abuse are not different things its just a different attitude towards the way people look at it.

Feb 19, 2016 2:06 PM

I took oxycodone (10mg) after my surgery and it worked well. Once I started working again I asked them to put me on something not as strong (Hydrocodone 7.5mg) and once I finished those drugs, I was extremely irritable and had to double up on my anxiety meds for a few days to take the edge off. Just be careful because they're extremely easy to get addicted to. My friend just passed away 2 days ago from an OD. 😢

Feb 19, 2016 2:41 PM

Be Very VERY CAREFUL! It is a Strongly Addictive and Dangerous Drug.

I was once on them along with many other drugs to try and control the pain. After 3 month I was losing my hair and gaining then losing 15-20lbs every two week. I would HIGHLY suggest getting off then within 10 Days. These Drugs are ment to be used with constent watch. Notate and and all POSSIBLE side effect.

Again, please be carefully. These Drugs destoryed more then my life, But also any unbore life I might have brought into this World 🌎

Feb 19, 2016 3:30 PM

Omg ,please Tappin, are you a doctor? Autoimm, you will be okay I speak as a recovering addict and a nurse. Oxycontin is Percocet without the Tylenol , it is capusalted in a form where you can't chew it or shoot it up, .I know it will provide for you a lasting pain management , you have your doctors support just follow the prescription ..don't double up or skip doeses...you problems in the past have you concerned! That is excellent! It is good fear. So please take you meds like your MD prescribed so you can function. Thank you for allowing to share, Love Tetri

Feb 19, 2016 4:02 PM

Autoimmunerrr, know that being scared is ok. I was addicted to Vicodin years ago (over 23) and when I went to pain management was worried about narcotics. I still worry if I need to change meds. I, myself, was put on OxyContin because my pain levels are so aggregious. I was worried about addiction and the doctor said to take it as he prescribed and not to miss doses or double up and it will ease my pain. I had NO ill effects from it, did not become addicted and had NO trouble coming off of it either. (I came off because insurance wouldn't cover it). Please let your doctor help you, take your meds and get some relief. It'll be okay. It's good to keep that fear, it's a GOOD fear that will keep you from ever backsliding. {{Hugs}} 💕🙏🏻🌻

Feb 19, 2016 4:07 PM

Tappin, if you go online and read all of the possible side effects of Tylenol, you wouldn't take that either. Every medication has its pros and cons. Maybe you lost your hair because you were on that with many other drugs (as you said in your own post). Every person is different. If your pain levels are higher than the dose of pain medication, there will be no euphoria or "high" that some people like the feeling of. That info was given to me by a pharmacist and they ARE schooled in all drugs and their side effects. The last thing you needed to do was frighten autoimmunerrr further. I hope you have a good day. 🌻🙏🏻

Feb 19, 2016 5:04 PM

Tappin, constant vigilance and fear tactics is what makes those of us who have no choice but to take these meds feel like criminals. Ppl who shout beware and drug addiction make us all get parsed and dissected before we are allowed the thing that we need desperately....pain relief. It's bad enough that we need it without ppl crying that it's bad for us and saying that it's making us addicts. We KNOW that it can be addictive, but what we also know is that we depend on it for relief. Being dependent and being addictive are two different things. A diabetic might be dependent on insulin to keep from going into a coma, they aren't addicted, yet they can't do without it. I rely on hydrocodone to help keep my pain at bay so that I can survive without killing myself. My body is dependent on it and will even go into withdrawals from it, but I don't crave it. I don't clamor for the drug. If you offered me an alternative that worked I would switch happily. Stop with scare tactics on someone who obviously needs reassurance not more worry.

Feb 19, 2016 5:18 PM

Very well said Phoenix! Thanks for the support! Love ya, Terri

Feb 22, 2016 12:02 AM

Tappin- thank you for the concern. I am sure if the post you made in this thread was written in a softer, heart felt manner- your message would have been received much better.
Thank you everyone for your support & understanding, with my (yes) healthy fears. I am not sure of the dosage yet for the OxyContins, i won't be receiving them until 2/29/16.
Honestly, if the doctors told me that I have to cut off a limb, lay on bed of nails to feel better-- I would be first in line. My pain is so distracting and annoying! 💗🙏🏼

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