Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hey I'm new here.

Dec 08, 2016 9:27 PM

Hello I'm Jess. I'm 21, I live in Manitoba, Canada. I don't really remember when my pain started, I could have been a child. I remember have been in some degree of pain that I had normalised. I was a very sick baby, very premature. I was basically in the hospital until I was 1, but I don't remember it. I assume it had some sort of psychological effect on my.brain.
throughout my life I had 2 eye surgeries and a kidney surgery. I don't know if my condition came from those surgeries. I had many, many emotional traumas in my life too that could have contributed to what's happening to me. I have also struggled immensely with depression and anxiety for most of my life.
5 years ago(or more the pain wa's always kind of there ) I began having bad back pain, but I didn't think much of it until it drastically began affecting my work 2 years ago, then I found I needed medical attention. Last February I had to quit working because of my widespread chronic pain. Since then I have done everything I can to feel better and find the right doctors. It ha's been a terrible and stressful journey ... I suffer every day as I do test after test and appointment after appointmemt. And i was met with much scrutiny from my doctors, and my family.
I am setting up a support team and they think I have fibromyalgia. I found this out only a few days ago and I'm kind of panicking . Medication wise they have been treating me as if I have the condition which I appreciate. I take.1200 mg of gabapentin 3 times a day, 150 mg of venlafaxine every day, and zopiclone to help me sleep .
Anyway check out my pain chart. I think I'm just venting. My.pets and my.boyfriend.keep me sane.

Dec 08, 2016 10:10 PM

Hey jessieNova! It's OK to vent. I'm new too and kinda just vented myself. I wasn't really sure what to put in my post so I put in a little of everything! I am also (hopefully) on the verge of being diagnosed myself. When my step sister mentioned that she thought I had fibro (she has fibro too) it all clicked together!

Dec 08, 2016 10:12 PM

Thanks it definitely is a journey..

Dec 08, 2016 10:51 PM

Welcome Jessie. I'm from Alberta Canada. It was a long journey for me finding answers to. Don't give up finding a doc who will listen. Sorry for what you've been through and still go through.
I have lupus, Osteo in my back and hips complicated by lupus and Raynaud's.

Dec 08, 2016 11:04 PM

Thank you for your courage! I'm new here too, but an old hand at pain coping. In the early diagnosis phases of fibro, it's important to run through the list of co-conditions that might be contributing and tease apart the pain types for targeted therapies. Here's a book I found most helpful in that regard.

"Fibromyalgia and Chronic Myofascial Pain: A Survival Manual"

https://www.amazon.com/Fibromyalgia-Chronic-Myofascial-Pain-Survival/dp/1572242388

I personally appreciated the author's gumption in the quest for knowledge and the outstanding research she put in. She doesn't mince words about dealing with the heathcare system and it gave me courage back in the years before much was understood. I copy chapter 1&2 for all new medical staff with whom I interact.

Finally, since you mentioned your lower back, be sure you've had your lower back evaluated for 'facet joint' inflamation (tiny joints between vertibrae that if inflamed can strangle a nerve as it exits the spine and can refer out a constallation of pain). Because it can't be seen on CAT, Xray or MRI, these tiny fascia joints are often overlooked in the bone, disc, and nerve evaluation, and have several options for treatment.

Dec 09, 2016 5:00 AM

Welcome JessieNova. I have fibro too. I'm on Lyrica and tramadol. One book to help you understand fibro is Fibromyalgia for Dummies. You can get it on Amazon. There are a lot of different treatments. I went Gluten Free. It cut my pain level in half. Hot water in a tub with Epsom salt helps if you're in a flare. There are vitamins that help. Magnesium is one. Those are a few things that help. Good luck in finding things that will help you.

Dec 09, 2016 7:55 AM

Welcome to the asylum Jess!! You've come to the right place. It's good that your fur baby and bf keep you positive. That's very important when dealing with the crap that we all deal with. Hope you get the support you are looking for. There's a tremendous amount of information here if you search earlier threads.😊😊

Dec 09, 2016 8:31 AM

Shoot. I hit the wrong button and deleted a long post I had typed. Hate when that happens.

Welcome to the community. The pain charts and journal here can be invaluable tools for both you and your medical team. Chart at different times of the day so you can see how your pain looks before and after meds. That will give you a good indication on how good your medications etc..are working.

The community is just as important. We may not have the same conditions or treatments but we all understand chronic pain. You can vent here, cry and scream here, laugh here or just sit quietly and read. (((( gentle hugs )))

I know where Manitoba is. Have even been there a few times. My son went to Western Christian College. (not one of our better decisions...) He often stayed with friends in Dauphin. Later he transferred to one of the universities in Winnipeg. I love Winnipeg BTW. He is visiting here now but lives in Montana - by Yellowstone.

Glad you found us. Please make yourself at home.

Dec 09, 2016 11:06 AM

Thanks so much everyone !! I appreciate your kindness. I really like the pain diary on here. I woke up not being able to move my neck or arm/ shoulder. I think.I pinched something because it hurts so much it takes my breath away when I try to deep breathe and relax... ugh today is a day :(

Dec 09, 2016 11:32 AM

Hello beautiful ⚘ so nice to meet u hunni. πŸ€— welcome to the family 😊 ...i hope u can find some greeat ideasπŸ“– and fabulous πŸ‘­πŸ‘¬πŸ‘«πŸ‘¬πŸ‘­ friends here... W E L C O M E ...🌹🌹🌹

Dec 09, 2016 11:34 AM

Thank you lulabel !! I have an odd question. How do you tag people in replies ?

Dec 09, 2016 11:55 AM

Hi JessieNova and welcome to the community....well actually I feel here's more of a family than a community. It's been my lifeline....to finally meet people who understand what chronic pain entails, the good and the bad.
There is a wealth of ideas, different suggestions for treatments, medical and non medical....that is trial and error because each of us are different and we all react to treatments in different ways.
We're here to listen when you need to vent and we're here to celebrate your good times with you.
There's no judging each other just support.
Unfortunately a lot of the medical profession, friends and family who don't suffer with a chronic condition can't/won't/don't understand what you deal with especially being an invisible condition. You can show them the spoon theory and the letter to "normals" but some of them still won't get it.

Sometimes we need to vent so feel free, this is a very diverse group of people from all over the world so you may find that when you post something it may take people time to reply depending on their time zones and daily routines.
Grab a chair and join in when you like all advice is welcome and if you have a question we try to answer it the best we can.

I hope your having a pain easy day xx

Dec 09, 2016 3:24 PM

Welcome to our community family JessieNova! There is no end to the support and suggestions you will find here. And there is no right or wrong way, because each of us are different in how our bodies respond to our illnesses as well as the various treatments. Hugs love and prayers you can find ways to reduce and relieve your pain. πŸ™‚πŸ’•πŸ™πŸŒΈ

Dec 10, 2016 8:58 AM

JessieNova, I don't think you can "tag" people in posts like on Instagram or apps like that. When you post in a thread that someone has posted in you get notifications that someone has posted. Hope that helps!!πŸ’•πŸ˜Š

Dec 10, 2016 10:24 AM

Thank you Sezzy !! I'm slowly building myself a team for support. I appreciate the advice and will begin trying stuff to see what works for me.

Dec 10, 2016 10:25 AM

Hey Flappys! Thanks for the support. I'm slowly learning to deal with my condition β™‘ the support on here is amazing

Dec 10, 2016 10:26 AM

Thanks Alwayzinpain I'll definitely remember that !

Dec 10, 2016 10:43 AM

Oh lordy I have had such a high pain tolerance my whole life but today is horrible. I have to pop my chest and cracked my sternum / collar hone all the time. I can't make the movement I need without yelling in pain today

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