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Hi :)

Jun 26, 2015 1:17 AM

Hey I'm new here, possible fibro diagnosis but ongoing tests to rule other things out. All I've read about fibro is conflicting, is it something that gets worse over time? I've read people suffering terrible pain and not being able to walk at even my age (late 20's). Mine seems quite mild compared, but is it likely to get that bad?? Sorry. Just confused and anxious about future.

Jun 26, 2015 1:48 AM

Fibro seems to affect each person somewhat differently. There are of course certain defining characteristics of the condition that many suffer from, but pain,being subjective, is felt differently from person to person.

Many have mild cases, others are almost bedridden. Some started mildly, then go on to get worse.

There are many Fibro sufferers in this community. I'm sure they will have great tips on how to keep it from getting worse.

Just know that you are not alone. We are here for you, even if we don't have the same issues 😊.

Jun 26, 2015 1:52 AM

Thankyou for that information, it's very helpful! :) I'm happy to have somewhere like this where we can all help eachother :)
Thankyou again xxx

Jun 26, 2015 9:58 AM

Welcome SarahJane87! I began having fibro symptoms in '08-'09, but I wasn't diagnosed until 2012. My pain started very mild. I was working a physically demanding job then and would come home very tired, which I now know overexertion intensifies pain. I had a major surgery in 2010 that turned into 5 in 1 procedures. It took almost a year to recover, but in the meantime I developed other meds issues and the fibro caught on like wildfire. Now with meds and other procedures for other issues my pain from fibro is tolerable unless I'm in a flare. I've developed hypothyroidism and sjogrens, which shares common symptoms that also affect each other. Every one of us have varying pain threshold and issues that cause our chronic pain. I have a huge list of med allergies so my options for meds is very limited. I take Tramadol, Aleve, Tylenol Arthritis, ice & heart packs, voltaren gel, and rest when I need to. I don't overdo when I feel good.
I pray you'll have minimal pain for as long as possible, and if you're does increase you'll find methods that work for youGod isey say exercise is good for fibro, and last year I had to stop. I felt better while exercising but developed breathing and heart issues. I'm just now beginning to walk on a treadmill, 10 min @ 1-2 mph daily. It's actually helping with my night leg spasms. Good luck and God bless! 🙏🌼

Jun 26, 2015 12:18 PM

Sorry to hear you've had so many problems, I hope that things will get better for you with the gentle exercise.
Thankyou for messaging :) xxx

Jun 26, 2015 12:34 PM

You're welcome. Pay attention to what you're doing when you start hurting. Keep a list of notes to see if there's a pattern. Hopefully you'll not develop into more severe pain. Two things that can cause it to worsen is having some serious injury or illness, or developing illnesses that share common symptoms of intensify the fibro symptoms, both of which happened to me. Research anything others suggest to you. Sometimes fibro goes along with many others issues. Good luck! 🙏🌼

Jun 26, 2015 1:06 PM

That's very helpful information, thankyou again! Unfortunately I've got a job where I'm on my feet 3 days a week, and also got two little boys, so don't get much rest, so I'll see how I go! Xx

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