Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hi everybody! πŸ˜„

Jan 21, 2015 10:34 AM

Hi all. I'm (another) Becca. I've been lurking for awhile.

I have cervical Spondylosis and migraines (mostly). There are other things, but whatever. I have four pain treatments: Radiofrequency ablation, Botox, trigger point injections, and nerve blocks. I'm lucky to finally have a good pain doc--I had one in the past who was horrible! Also, there is depression and PTSD. I also was on a lot of klonopin. For the past three years, I have been going off the bento. I thought there was something wrong with me physically as there were a lot of flu like symptoms, and joint and muscle pain. For years. (I've been on the klonopin since 22, and I'm 39). Well now, it's been so long that I'm worried I have a chronic withdrawal syndrome (I've been off the klonopin completely for 6wks--I won't know really for about 2 years). (If anyone's interested in bento withdrawal, there's the "Ashton Manual” which describes both the effects of bentos and how to get off them.) (bento=benzo--bad autocorrect). I hope I don't have fibro--I have not mentioned it to my doc for fear I do have it. My ears hurt a lot now, and my tinnitus has gotten really bad that sometimes I don't hear too well. Also, when I was 22, I was prescribed Vicodin. Since then, I've been on Vicodin, Tylenol 3, Fiorinal and now percocetv(to name a few). I've a,so been on a whole host of meds like keppra, topamax, lyrica, gabapentin, etc as well as steroids. which were ineffective. I am not good with the meds, and the procedures work much better for me. I do take imitrex. I have been dealing with these things since I was 16, and have gone through PT, chiropractic, massage (when I could afford it), and other things (my brain is shot).

I wake up every morning with that "face headache" so many of you talk about, and I grind my teeth (I have a bite splint), so my jaw is messed up. I have had abdominal migraines which were the worst acute pain I've had--I was screaming and panicked because not only did my outsides hurt, but it was painful to breathe. There was bile coming out of both ends of my body. I ended up with a dilauded drip for 48 hours 😳 at one point. chronic pain is pretty awful, and i feel for all of you that go through this. I feel exhausted from the pain all the time, and I admire you guys for your good attitude and perseverance.

I really feel weird about this program. I am reporting pretty much the more intense pain I have--I'm not used to describing all my pain. I want to have a record to show my doctor.

I was a pretty normal kid with some problems, but because of things like "diagnosis by prescription," and doctors pathologizing side effects as if they were additional problems, I ended up totally over medicated. The pain, the psychological problems, and the meds have had a devastating effect on my life. I'm pretty isolated. I don't have kids. I don't really have friends. And although I went to grad school, I haven't worked since 2005. I have plans, though, and now things are better than they've ever been. But sometimes still, the pain is so bad that I am frozen--but I imagine it could always be worse.

I wish I was religious or faithful. I'm not. But I don't believe a person has to be religious to pray or feel a connection with something greater than himself.

I have to drive for 2 hours straight this morning, and am not looking forward to it

Anyway, I think that's enough. πŸ˜€

I know this is bad English, but don't feel like editing... Ergh...

Jan 21, 2015 11:28 AM

Welcome StarryNight. You'll find lots of support here, for the good, bad & ugly days. Many on here have similar yet different issues, and medication/non-med treatment methods. I've never been able to use many pain drugs due to my allergies. My faith is a big portion of my treatments (mind over matter). There's an official website for fibromyalgia if you want to research it more. Also on arthritis today. I'd paste links but my phone doesn't cooperate. Good luck with your plans and God bless. πŸ™‹

Jan 21, 2015 11:52 AM

Hi StarryNight! I am glad you found this app and are using it. It took me a while to start posting but since I started I feel it has helped me a lot in feeling less lonely and isolated in my pain. It really feels great to know if I post something, there are many (unfortunately) that have probably gone thru what I have and worse. It's really awful how many people exist in a state of chronic pain. And since it's an 'invisible' disease it's harder to carry around as very few who don't experience it can be supportive. I have to get going now, but hope to 'see' you around! Wishing you the best day possible today :)

Jan 21, 2015 12:37 PM

Hey Star (your writing was great by the way!). welcome!

Jan 21, 2015 6:33 PM

Welcome to the community, StarryNight. I'm glad you found us!! There are MANY of us here with different problems but all with chronic, horrific pain varying in stages and years, etc.. Bottom line, a huge, wonderful, compassionate, accessible and helpful family. We have very similar issues with pain but very different (some of us) ways that we have been treated by doctors, some meds we've been on, etc.. We are here to listen, share, laugh, cry, assist and learn from each other. I, for one, couldn't be happier that I found this fantastic group of people. Sadly, it's not something pleasant that has brought us all together, but we are all together just the same. Feel free to vent, ask questions, laugh, cry, complain or whatever the day may bring for you. We've all been there and there are NO judgements here. For the most part, myself, and the rest of the folks are here at least once a day. If you need me, just drop a line and I'll be here to chat.

Jan 21, 2015 8:18 PM

Welcome Starry! We're glad you're here and feel comfortable with posting in the community! It's very liberating to be able to do so!

Jan 21, 2015 10:18 PM

Thanks everybody! It's really nice to talk to people who understand. Some of my family is sympathetic, some is not.

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