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CatchMyPain Community and Pain Diary App to manage chronic illness

Hi everyone-- I'm new here

Jul 31, 2016 6:52 PM

Hi everyone! I have Rheumatoid Arthritis and chronic pain. I was just recently diagnosed with lumbar spinal stenosis, degenerative disc disease, pinched nerves, and plenty of arthritis and other stuff going on. I used to be just concerned with the RA. Now back issues-- I have been bounced between doctors and hope I finally have a pain doctor to do injections. I have had mediocre success with them in the past so we will see. Wishing all good health!

Jul 31, 2016 7:04 PM

Hi JillKF. Welcome to PC! I have what you have, except RA (as far as I know thus far. The nerve pain just takes me out most days. I do not know what a good day is anymore. Walking has become such a chore that if I am going anywhere that doesn't have a cart, I either cannot go or rely rather precariously on a cane. Please share with us how it is with you. This is a great app with knowledgable and caring people who have Pain. โค๏ธ

Jul 31, 2016 8:26 PM

I have pain daily and I deal with pain from RA but a lot is from the damage to my hands and feet. It is hard to get anyone to understand how bad it is... Trying to explain to doctors but even my family! I used to be a dental assistant but my hands will no longer let me. I miss it so much after 20+ years. Now my back feels like someone is pressing my spine through my body, besides my hands aching! My elbows have nodules and I have trouble getting comfortable to sleep with all the aching!๐Ÿ˜”

Jul 31, 2016 9:38 PM

Hi Jill and silvrry:) I'm new too and this is my first post. So sorry, bear with me. Lol I had an acdf done in 2013 and a foramiectomy done 2 months ago. I had a herniated disc between C6 and C7 and C5 and C6. I have a thoracic herniation also. T8. I have had so many injections! I feel like the Bride of Frankenstein. About six months ago I was feeling stabbing pain underneath my left shoulder blade with pain radiating down my left arm and into my fingers. It got progressively worse. I'm putting up with this pain about 4 years ...The pain is like somebody stabbing me with a hot poker underneath my shoulder blade :-( I saw a great neurosurgeon recommended to me by my pain management specialist. We did the foraminotomy and after the surgery the pain was totally gone in my left arm and underneath my shoulder blade !!! I was so happy and excited. I had taken seven weeks off of work to recover and during that time I started feeling much better. I went back to work just this last Monday and worked probably 32 hours during the week. Friday at about 2 o'clock in the afternoon I felt the stabbing pain underneath my shoulder blade come back with a vengeance. I was so upset I left work and came home and cried all night long. I do not know what is causing that pain. The neurosurgeon doesn't know. And neither does my pain management specialist. At this point in my life at 52 years old after working for 35 years I have had enough. I have been working with this pain for 4 years straight. I can't take it anymore :-(

So... I am so sorry that I took up this thread by telling you my story when your pain with RA I'm sure is so debilitating. One of my best friend's has RA so I know how hard it is. And my thoughts are with you. I was excited when I found this app because it allows me to track my pain and communicate with people who are in constant pain like us. Peace and prayers for a little less pain :-) and some positivity!

Aug 01, 2016 12:26 AM

Lauralee, oh, I am so sorry your pain has returned so rapidly. It is just not fair!! It is okay to feel what you feel. I know how hard it is. My disease has descending pain plateaus. The last was so incredibly pain filled. I was panting , hobbling holding on to the walls trying to drag myself to the bathroom to pee. It went on for 2 months & then plateaued. When I think about it, and don't block my reaction, I think I will die when it comes again. Then I jump into damage control and tell myself you can do this. The pain will come even worse, but you will prevail blah blah blah. So I do my mental tap dance.
I am so glad you found this app! Lots of good stuff here. Coping skills & lots of ears. Good people here.๐Ÿ˜Š

Aug 01, 2016 12:36 AM

JillKF, yes I do know what you are facing. My Mother had RA. It completely took over our hom life. She would go have par paragon dips for her hand pain. 2x week my Dad would drive her t2 hours after they both had worked all to get a massage from a reputable Ivan's see this text so I will stop here. I hope your pain level goes down๐Ÿ™‚

Aug 01, 2016 12:57 AM

Silvrrry and Lauralee, I thank you for your kind words. The pain we all go through is not fair. I hang on as best I can. I have had doctors and even family members not understand how much pain is involved. I hope all of our pain levels go down soon!๐Ÿ˜Š

Aug 01, 2016 3:54 AM

Hello sweetie ๐Ÿค—nice to meet u
welcome โš˜โš˜โš˜to our community x

Aug 01, 2016 12:05 PM

Thank you Lulabel.๐Ÿ’™Nice to meet you too!๐ŸŒบ๐ŸŒผ๐ŸŒท

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