Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Hi everyone

Jan 25, 2016 6:04 AM

Newbie here trying this App. So far I like it. I'm using it to log my chronic severe pain that I've had for the last 13 years. I have a literal list of issues wrong with me. Some of which are: spondiliothesis, scoliosis, twisting spine, congenital osteoarthritis, degenerative disc disease.... I am 27 now. Doctors refuse surgery as I am "too young" and will be needing more surgeries once I start with the first. They said I may have little, no, some, or quite a bit of relief-it's not guaranteed and they don't know.... These are the same replies I got over a decade ago when the problems worsened and I was finally old enough to seek medical attention on my own. I have a fractured spine due to an abusive childhood and child labor. My parents never allowed medical attention so now I live with the results.... When I was 18 and taught myself how to drive, the first thing I did was (after buying myself my first car for 500$) was get to the doctors! And that's when they slowly discovered to slew of issues. Pain is every day. Pain rules my life. Pain restricts me. And it's a shame especially at my age. (And even 10 years ago...)

Jan 25, 2016 7:26 AM

Hi Sarah stranger welcome to this little hub of hope, tears, rants, funny moments and other people like yourself who understand pain and all it brings.
Hope you find the lovely warriors on here a source of support.
Sorry to read other peoples actions have had an effect on your life now as well as your conditions. Must say a huge WELL DONE you for teaching yourself to drive, passing your test, getting a car and surviving your past. πŸ˜ŠπŸ‘πŸš˜ a proven warrior.
Thank goodness you took yourself off to the doctors as soon as you could.
I too have had the we can't give you stronger meds or do procedures as you're to young and you'll run out of treatment options thrown my way. πŸ™ it really sucks , if only they could feel ouyr pain and live our restricted lives. I've had back issues since age of 13 gp just put it down to growing pains and I used to constantly get berrated for slouching, they didn't know I couldn't actually sit straight no matter how I tried. So also know the feeling of being let down .
I hope you find comfort and friendship via this app and as we're from all over there is normally another insomniac rattling around at all hour to chat to.
Gentle hugs 🌷

Jan 25, 2016 10:35 AM

SarahStranger, welcome to our community family. I am so very sorry to hear that you are suffering with such pain and that part of it has to do with not getting adequate medical attention as a child. I am very impressed that you taught yourself to drive, passed your test and got yourself to a doctor!! You are, indeed a strong young lady. I have been in pain close to 23 years and have had 29 surgical procedures. Unfortunately, I have RSD/CRPS and it has settled into all of the areas I have had surgery and then some, so it's pretty widespread. I also have fibro, degenerative joint disease, degenerative disc disease, scoliosis, spondylosis, cervical spondalytic myelopathy, TMJ, SI Joint disfunction with fractures and a laundry list of other diagnosis including hypothyroidism, depression and anxiety. (The last two only made worse by pain). I hope that you find hanging out with this zany bunch of wonderful people that I call my family helpful. I hope you find the support, love, advise and friendships that I have finding this wonderful group. It's been a Godsend. Know that you are never alone, there is always someone who is up and about no matter the time of day or night. There are no judgements here so if you need to get something off your chest, no worries and no apologies. So, welcome aboard. I'm sending you gentle {{{Hugs}}} and prayers that you are having a peaceful and light pain dayπŸ’•πŸ™πŸ»πŸŒ»

Jan 25, 2016 9:01 PM

Welcome to our community family Sarahstranger! Kudos to you on learning to drive and buying your car, and on getting medical evaluations. It's very good that you know what you're dealing with. I started with OA/DDD in my late 20's, had neck surgery twice due to ruptured discs that almost paralyzed me, and have had chronic back pain nearly 30 years; I'm 54. I've gone on to develop multiple other chronic pain issues, like fibro, sjogrens, pelvic floor dysfunction, pelvic congestion syndrome, and TMJD/DJD. And as depression & anxiety with insomnia to the mix. Like AlwayZ said, this community of wonderfully supporting people has been a blessing. I felt so alone and isolated, not knowing anyone else understood because they suffered too. I hate was all suffer, but I'm so very glad we have each other! Try not to let your pain restrict you too much from living and enjoying what you can. I know it sounds easier than doing it. But for awhile I wasn't doing anything, and it only made my pain worse. Now I'm learning to be active when I can, taking short periods to do things and testing in between. I'm also walking a treadmill 15-25 min/day. I actually feel better after exercising, and a short rest. Lol. I'm not sure what treatments you may have tried, but I hope with suggestions you can find what works best for you. Also, many docs no longer want to do surgery on the spine, except in an emergency, because they've found that the areas above and below surgical sites actually weaken and cause more problems. Shop for a good doctor for surgery or alternate treatments. You'll be in my thoughts & prayers! Hugs!!! πŸ™‚πŸ™πŸŒΌπŸ’•

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